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Pegster

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Everything posted by Pegster

  1. Pegster

    ARCHIVED Skin

    Pegster replied to TinkerbellSwt's topic in Coping with Celiac Disease

    Could be many non-Celiac related things. Did you change makeups recently? Do you have something on your fingers that is getting on your face? I heard of someone who broke out after scrap-booking because of the stuff on her fingers. If the weather extremely dry where you live? Do you have a new pillow case that needs to be washed? If your health plan...
  2. Pegster
    The fear is very reasonable. The hardest thing about eating out is feeling that I'm embarrassing everyone else at my table when I launch into my "Wheat Speech" (as my family calls it). Some food service people are super helpful (especially when I use the phrase "food allergy"-because it's easier to understand). But you have to put your health into the...
  3. Pegster
    I suppose anything is possible! My DH itches like crazy, so if whatever you have doesn't itch: count your blessings!
  4. Pegster
    When you say your hand and feet are numb, are they turning white with the blood taking a while to get back into them? Do they tingle painfully when the blood goes back into them? This could be Reynaud's phenomenon. If they are just numb and cold it could be that your thyroid is underactive. I think you need to find a GP who will take the time to listen...
  5. Pegster

    ARCHIVED Pei Wei

    Pegster replied to Pegster's topic in Gluten-Free Restaurants

    I love the sweet and sour chicken.
  6. Pegster
    I feel lucky that I was diagnosed with DH because my not-so-severe GI symptoms had been ignored or blamed on food poisoning for years and years. My blood work was moderately high, but I think I would have had to be desperately ill before anyone would have caught the Celiac. I recommend a biopsy for anyone with the slightest suspicion of DH! It's good to...
  7. Pegster
    Try classmates.com if you know where she graduated from high school.
  8. Pegster
    It's easier being an elementary teacher. I can always blame the kids. They stink up the room all the time anyway. I use a Glade Plug In.
  9. Pegster
    I get outbreaks of those blisters just as you described. I DO have dh, but my dr. wasn't convinced that these bumps were the same thing. I tend to think that they are dh. Mine are around my middle with more on the sides. I use a steroid ointment to help the itch. I've been on a gluten free diet for 2 years, but have these flare ups every so often.
  10. Pegster

    ARCHIVED Pei Wei

    Pegster posted a topic in Gluten-Free Restaurants

    Pei Wei is a small diner owned by PF Changs. There are seventy five or so of these restaurants and they have several gluten free items available on a special menu. What impressed me about this place, was that they seemed so knowledgable and careful with my order. For example, they said my chicken could be completely plain, or they could toss it in potato...
  11. Pegster
    It's pretty hard to convince someone to change their diet even if it's necessary! I have a relative (by marriage) who is VERY ill with Celiac and absolutely won't hear of changing his diet. I just about passed out when he said, "Yeah, I've got that wheat thing, too" as he was chugging a beer and wolfing down a sandwich. I talked to him and to his wife...
  12. Pegster
    Last summer I went to NYC. YES Risoterria is a must! They had a delicious raspberry layer cake when I was there. I almost cried, because I am a true cake-lover. As a tourist, I wanted to hit some of the well-known restaurants, and I found helpful waiters and chefs at Sardi's and Tavern on the Green. I also found health food stores that had amazing selections...
  13. Pegster
    I love PF Changs, but just be sure you keep reminding the servers that you need everything gluten-free! Some are more careful than others. The last time I went, I got VERY sick and I'm sure they brought me regular lettuce wraps instead of the gluten-free. They were trying to make up the special sauce at my table with regular soy sauce and someone other...
  14. Pegster
    I used to have this happen when I fed our bunnies. I gave that job away real fast!
  15. Pegster
    I had a positive biopsy for DH and my dermatologist told me that means I am a Celiac. The blood work was inconclusive, and I refused the small intentine biopsy because I had already bought-in to going gluten free for life. What difference would another invasive procedure make? So if you have a positive DH biopsy, you have Celiac (as several people have...
  16. Pegster

    ARCHIVED Dh Or Allergy

    Pegster replied to MJ27's topic in Dermatitis Herpetiformis

    DH is typically found on elbows and knees, but can also be in the scalp, on the back and torso, and really just about anywhere on your body. The underarms aren't exactly a classic location for DH, but it's not impossible. I have never had it there, although I think I've had it everywhere else. DH is very itchy with small fluid-filled blisters which slough...
  17. Pegster
    What a great friend you are! My DH pretty much disappeared as soon as I went gluten free. I get outbreaks every now and then and usually can figure out when and how I got accidentally glutened (usually at a restaurant!). I never went on dapsone, but my understanding is that it usually works very well and very quickly. Perhaps your friend needs a different...
  18. Pegster
    Are you putting syrup on the pancakes? I understand many syrups contain barley malt as a "flavoring" and may not be listed on the ingredients. I used to think pancakes were making me sick until I switched to real maple syrup from the artificial flavored ones.
  19. Pegster
    Namaste makes a wonderful BLONDIE mix which I take to pot lucks with chocolate chips added. It's expensive, but tastes so good! Kinnickinnick has their own website and I order donuts, biscotti, pizza crusts, bagels, these little rolls called "tray buns" and muffins (carrot raisin, cranberry, chocolate chip) directly from them in Canada. It's a ten dollar...
  20. Pegster
    The problem with waiting until May for an appointment is that you may or may not be having an outbreak on that particular day! A knowledgable dermatologist will understand that a fresh blistered area needs to be biopsied. I don't know about the punch biopsy, but if the lab can analyze the sample for the gluten antibodies, it seems reasonable. When my dermatologist...
  21. Pegster
    Those are really good pictures. They make me thankful that I was diagnosed before it got THAT bad!
  22. Pegster
    I had a biopsy on each of my elbows right next to a fresh blister. The dr. would have just done one biopsy, but I told him to go for it so I could be sure! It was a very small pinch of skin. I had a stitch or two in each one because it was on the outside of my elbow and I barely can see the tiny scars now (nearly two years later).
  23. Pegster
    I'm not sure about the aspirin connection. I have only seen that Aleve and ibuprofen seem to make my flare ups work.
  24. Pegster
    I get this off and on throughout the year, too. I showed my dermatologist, and , although I actually DO have DH- he didn't think this around the waist rash was related. I don't know what to think. I use a spray itch relief gel which calms it down for a while as well as steroid ointments. I also take Benadryl to knock me out at night so I can sleep. Just...
  25. Pegster
    If the rash your daughter has is like the rashes you've seen pictures of and YOU have Celiac, I'd say your diagnosis is probably correct. My Celiac was diagnosed by a dermatologist by skin biopsy. I never had GI problems serious enough to make a Dr. notice. The DH rash tends to be sort of a mirror image effect...if it's on one elbow, it shows up on the...
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