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burdee

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Everything posted by burdee

  1. burdee
    How old were you when you were diagnosed with celiac disease? Some older adults' villae do not recover very quickly after abstaining from gluten. One study showed older adults continue to have lesions despite following a gluten free diet. Some docs consider that 'refractory sprue'. However, I personally would not risk the side effects of steroids to heal...
  2. burdee
    Thanks, I didn't know that. Right now, while I'm taking LDN, I only need a small (3.3mcg) daily dose of T3 without any T4. (I take generic Liothyronine, which doesn't contain any of my allergens in its fillers). I'm taking LDN to treat leukopenia, but LDN positively affects most autoimmune conditions. So I suspect it decreased my need for thyroid supplement...
  3. burdee
    I started with Levoxyl, a T4 supplement, because that brand doesn't contain lactose 'fillers'. I felt better, but never completely lost my hypo symptoms (cold, tired, constipated). My doc increased my T4 dose (from 50mcg to 75mcg) and I overdosed (loads of hyperthyroid symptoms). I returned to my original dose, but also requested blood tests of my total T...
  4. burdee
    Anything that positively affects autoimmune conditions will change your need for thyroid supplements for autoimmune Hashimoto's. Celiac disease and gluten intolerance are highly correlated with Hashimoto's. Some experts say that the same gluten antibodies which attach the intestines can also attack any organ or system in the body and cause autoimmune conditions...
  5. burdee
    I have diagnosed celiac disease (gluten intolerance)and 6 other delayed reaction (IgG mediated) food allergies (dairy, soy, eggs, cane sugar, vanilla and nutmeg). So I take Custom Probiotics Adult CP-1 formula which is free of all my allergies. Those capsules each contain 50 billion live cells of freeze dried probiotic bacteria. I order those online. If you...
  6. burdee
    Sometimes I just have 'palpitatios' or what you call 'pounding heart beat'. However, I had tachycardia when I had hyperthyroid overdose as well as reactions from cane sugar. My celiac symptoms were also initially misdiagnosed as gastritis. So I was prescribed zantac and Tagamet for several years. Also took Mylanta and maalox tablets for waaaay too long...
  7. burdee
    Pounding heart beat or tachycardia is my standard allergy reaction to cane sugar, one of my diagnosed (by ELISA blood test) IgG mediated allergies. I don't even have to eat a meal with cane sugar to get that reaction. I only need to take a Tylenol caplet which has cane sugar coating. So my tachycardia is not related to delayed gastric emptying. I also get...
  8. burdee
    I can eat meat but not eggs. I have a diagnosed (IgG mediated) allergy to eggs. I used to have difficulty digesting meat. Then I read a book entitled "Why Stomach Acid is Good for You" by Jonathon Wright, MD and went to his clinic to get a Heidelberg capsule test for stomach acid production. That test showed that I very slowly produced only a little stomach...
  9. burdee
    My candida was diagnosed by DNA Microbial stool test from Metametrix Labs. Most traditional docs don't even consider candida, much less look for signs of that fungus on a biopsy. I suspect you will need a stool test for an accurate diagnosis of candida or any intestinal fungus, bacteria or parasite. I've been diagnosed by stool tests and successfully treated...
  10. burdee
    If you have a regular doc (internist), request blood tests such as CBCs to check iron levels, plus tests for vitamin D, B12 and folate levels. Celiac disease destroys the villi which absorb many important vitamins and minerals. If you only recently began to abstain from gluten, you may need intramuscular B12 injections in order to absorb B12, rather than...
  11. burdee
    I agree with the food poisoning (gastrointestinal bacterial infection) idea. I had 8 different gastro infections over the past 4 years. My husband and I ate many of the same foods. He never got any of those infections. However, I also previously took acid blocker meds after I was misdiagnosed with gastritis (instead of celiac disease) years ago. Those drugs...
  12. burdee
    I don't think c-d9ff 'causes' celiac, because c-diff is a bacteria and celiac disease is an autoimmune disease. HOWEVER, celiac can cause malabsorption of vitamin B12, which is necessary to fight infections. So celiac can make you more vulnerable to gastro infections, like C-diff. However, just being hospitalized is enough to expose someone to c-diff. Having...
  13. burdee
    I took oral Nystatin for 2 months (3x daily) after I was diagnosed with candida by DNA Microbial (Metametrix Lab) stool test. I did NOT follow a restricted candida diet. However, I did abstain from my diagnosed allergens (gluten, dairy, soy, eggs, cane sugar, vanilla and nutmeg). Nevertheless, I could eat any other kind of sweetner (agave, beet sugar, honey...
  14. burdee
    Lactose is dairy sugar, which some celiacs cannot digest until their villae heal enough to produce lactase, the enzyme which digests lactose. However casein is the milk protein. Some cannot tolerate casein without immunological delayed reactions usually mediated by IgG or IgA antibodies. Other people have immediate anaphylactic reactions to casein mediated...
  15. burdee
    After reading the other replies I recalled reading that some companies add 'vegetable' oil (soybean oil) to their product to cut costs and increase profits. I've never experienced reactions, but I only use certain brands.
  16. burdee
    Lower abdominal pain is classic for appendix problems. Usually people get acute appendicitis, but other people can have pain for years before the appendix causes severe pain just before it bursts. If your doc ruled out appendix problems, consider getting a stool test for bacteria, parasites and fungus (like candida). I had a parasite called dientamoeba...
  17. burdee
    Even if you abstain from all your known allergens, chronic gut bug infections (parasites, pathogenic bacteria and candida) will keep you from healing. Focus on killing off your diagnosed gut bugs, before you start suspecting new foods. Also consider why you keep getting gastro infections. What could lower your immunity to new infections? How's your stomach...
  18. burdee
    What I read about that condition said that it's higly correlated with other immunological conditions (like gluten intolerance). So perhaps your mom went off gluten and then accidentally consumed some gluten after a period of abstinence. Most people get even worse reactions after they abstain for awhile and then consume gluten. So perhaps that later reaction...
  19. burdee
    Even without underlying conditions which challenge immunity, c-diff is a difficult bacteria to eliminate. How did your doctor treat the initial c-diff infection? How many recurrences has your daughter experienced? Did your doc change the treatment drug after the first recurrence? I had 6 recurrences of c-diff, after I finally convinced my doc to give me...
  20. burdee
    In 2003 the American Academy of Endocrinologists recommended that all labs (and docs) change their 'normal' TSH range from a previous 0.5-5.0 to a more realistic 0.3-3.0. So results above 3 are considered hypothyroid by docs who have revised their 'normal' ranges. However, my HMO only lowered their 'normal range' by .5 (from 5.0 to 4.5). So my HMO PCP ignored...
  21. burdee
    I had that same question. So I requested a TPOab (thyroid peroxidase antibody) test along with my 2 month thyroid function tests. Because I've been gluten free for over 5 years, I didn't expect a significant amount of antibodies. I tested on Monday and am still receiving my results. My TPOab results were 53 in a normal range of 0.0 to 60. My doc also...
  22. burdee
    First of all, age is no excuse for not adhering to a strict gluten-free diet. I'm 63 and abstain from gluten, dairy, soy, eggs, cane sugar, vanilla and nutmeg (7 restrictions). I consider gluten the easiest restriction to maintain, because so many gluten free substitutions are available. Also there are many naturally gluten free foods (all vegies, fruits...
  23. burdee
    Your assessment was accurate. You have gluten intolerance with some intestinal inflammation (indicated by positive Ttg score). You have 2 copies of gluten intolerance gene. You react positively to casein. Every lab must set a 'cut off' score. For Elab equal to or greater than 10 is 'positive'. Rather than consider your results 'almost normal', consider them...
  24. burdee
    Becoming more sensitive to gluten is very typical for people with celiac and/or gluten intolerance, because our reactions are immune responses. Consider how the body initially responds to a cold virus, which it has never before encountered. We may not even know we're getting a cold, but we get tired before we get the typical cold symptoms of runny nose...
  25. burdee
    Chronic constipation (plus bloated tummy) was my main symptom at age 6. Unfortunately my pediatrician agreed with my mom's dx that I was just getting too chubby. So he told my mom to restrict sweets and substitute skim milk. SIGH At age 52 I had hemorrhoid surgery after years of chronic constipation. Nobody bothered to ask why I had lifelong constipation...
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