burdee
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Latest Celiac Disease News & Research:
Everything posted by burdee
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ARCHIVED The "original" Celiac Diet?
burdee replied to BRCoats's topic in Related Issues & Disorders
Thanks, celiac3270. I noticed restricting the acid stuff really helped me, too. I had to freeze all my fresh tomatoes from my garden, though. I also avoided strawberries, raspberries, oranges, any tomato based sauces or condiments. Then I noticed even mustard and pickle relish bothered me, so I don't eat those anymore. However I had such an EXCRUCIATINGLY... -
ARCHIVED Symptoms That Come And Go
burdee replied to lifeinhim61's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Rose: After reading your doctor's advice to continue giving your son, Luke, dairy products to 'glue up' his diarrhea symptoms, I thought I should share my celiac experience: I had many celiac symptoms all my life, but never suspected celiac disease, because I usually had constipation NOT diarrhea. Excruciating abdominal pain and bloating forced me... -
ARCHIVED The "original" Celiac Diet?
burdee replied to BRCoats's topic in Related Issues & Disorders
celiac3270: This is probably the wrong topic to ask this, but I can't find the thread where you wrote how/why your doctor told you to restrict acidic foods and sugars. What was your doctor's rational for restricting acids and sugars? Specifically what did you avoid? Has that helped your recovery much? After I eliminated gluten/dairy/soy, I noticed acidic... -
ARCHIVED The "original" Celiac Diet?
burdee replied to BRCoats's topic in Related Issues & Disorders
Brenda: I'm not sure why others are still struggling with symptoms, but my experience over the past almost 6 months has been: First it took me a long time to eliminate EVERY source of gluten, besides the obvious breads, pastries, pastas, then the ingredients in condiments, then vitamins, then healthcare items like toothpaste, then envelopes and stamps... -
No, acidophilus won't help with lactose intolerance. You need the lactase enzyme (contained in those lactaid supplements) to digest lactose. Before I learned about 'lactaid', I tried acidophilus milk, which did ZIP for my lactose intolerance symptoms ... but then I also have cow's milk intolerance (lactose, casein, whey or whatever's in cow's milk). Try...
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BamBam: Funny you should ask ... I just had a TERRIBLE day yesterday ... my first gluten reaction in almost 4 months. I had forgotten how bad those excruciating abdominal pains could be (like bits of broken glass stuck in my intestines). I tried my usual remedies for bloating, gas and cramps like drinking peppermint tea and doing some pilates...
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Try using 'lactaid' supplements (chewable tablets) when you consume milk products OR try 'Lactaid' or Dairy Ease or any lactose free brands of milk instead. Yogurt bacteria help digest lactose, so yogurt may not give you similar symptoms. Many of us noticed problems with other foods AFTER we eliminated the gluten, because we didn't experience the extreme...
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ARCHIVED Questionairre-for Yuor Benifit
burdee replied to the-proffessor's topic in Gluten-Free Foods, Products, Shopping & Medications
The Professor: Spellcheck could help you with words like professor, benefit, questionnaire, sandwiches, savory, spaghetti and battered. Nevertheless, here are my answers to your questions: (1) Not enough of either without added dairy or soy. (2) f "Other" Since I must also avoid dairy and soy, I would like more gluten/dairy/soy free sweet... -
ARCHIVED Daughter Sensitive To Everything
burdee replied to Tree's topic in Parents, Friends and Loved Ones of Celiacs
If I paid for Enterolab tests (which I DID) and those results showed I was sensitive to gluten, dairy, eggs and yeast, I wouldn't expect to be symptom free until I eliminated ALL sources of those 4 things. Yeast is used in many products, as are eggs. If your daughter is STILL having symptoms after eliminating gluten and dairy, you might need to 'sleuthe... -
ARCHIVED Enterolab Results
burdee replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Barbara: The website which really helped me when I learned I ALSO had to avoid casein was www.gfcfdiet.com for parents of austistic children. They use a gluten-free/CF diet to help their children control their autistic symptoms. The site lists all the safe and unsafe gluten-free/CF foods. They also sell a little mainstream gluten-free/CF product guidebook... -
ARCHIVED Enterolab Results
burdee replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Barbara: If you did tests through Enterolab and were told you had antibodies or were sensitive to cow's milk, their interpretation probably said CASEIN, not lactose. Obviously I didn't see your test results or their interpretation, but their milk sensitivity tests look for antibodies to CASEIN, the milk protein, NOT lactose, the milk sugar. I agree... -
ARCHIVED Help With Elimination Diet!
burdee replied to Alexolua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey Alex: Apples are a natural source of sorbitol ... which is why some people get diarrhea from drinking too much apple juice and the old 'apple a day' advice helps prevent constipation. If you have problems with artificially sweetened gums and candies which contain sorbitol, that might explain your 'apple problems'. However, if you're into sour apples... -
ARCHIVED Help A Grandmother To Help An Expectant Mom
burdee replied to rsavage's topic in Related Issues & Disorders
RSAVAGE: You asked how to convince your daughter to have a genetic test. I agree with other posts here about showing your daughter info from celiac websites as well as posts here. However, I assume you mean Enterolab tests when you mention genetic test and gluten sensitive stool tests. I did that whole set of Enterolab tests and recall that the genetic... -
My local celiac support group helped me sooooo much to learn about celiac disease, safe and unsafe foods, celiac friendly resturants, as well as meet supportive friends. When I first discovered I had celiac disease our group leader often listened to my frantic calls and emails (when I was confused and scared about 'slips') and reassured me that I would eventually...
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ARCHIVED What Has Helped You Heal?
burdee replied to BRCoats's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been waiting to answer this one on a day I FELT like I was healing (no lingering reactions from slips). So tracking back to when I first suspected I had celiac disease, these helped me heal: Digestive enzymes (Udo's Choice Enzyme Blend) and Probiotics (Ethical Nutrients Intestinal Care DF include 6 billion active bacteria each of acidophilus... -
This is my unofficial nonmedical expert opinion ... but, from what I have read, doctors who use blood tests to diagnose celiac absolutely depend on your having a 'leaky gut'. Gluten antibodies which cause all those pesky symptoms are created in the small intestine when gluten containing foods arrive there. Those antibodies can only be detected in the...
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ARCHIVED Stomache Bloating/gas Daily
burdee replied to campcour's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I could not absorb fats very well at all before I started taking digestive enzymes. I agree with your GI that your damaged intestines weren't absorbing fats. I take 'Udo's Choice' enzyme blend of 10 digestive enzymes and 'Ethical Nutrients' Intestinal Care DF (dairy free) probiotics. Both those supplements are gluten-free/DF/SF, because I must avoid all... -
ARCHIVED Cna You Answer These
burdee replied to joemoe003's topic in Introduce Yourself / Share Stuff
OK, here are my answers: (1) Symptoms consistent with celiac disease since early childhood, but misdiagnosed or discounted for years ... maybe about 50 years, since I have the main celiac gene. (2) Enterolab diagnosed at age 57. (3) Don't miss ANY gluten containing foods, since I really like gluten-free substitutes, but since I also have... -
Momof2: Did you mean Sea World in San Diego? We'll be heading there in 2 weeks. I would LOVE to indulge in cotton candy. I haven't had much candy since learning I am gluten/dairy/soy intolerant. That pretty much rules out all chocolate. I don't like hard candy. So I'm glad you asked the cotton candy questions. What a treat to look forward to at...
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ARCHIVED "traveling" Gluten Free
burdee replied to tarnalberry's topic in Coping with Celiac Disease
Mariann: I never had any allergy tests, except when I was very small for sinus/hay fever allergies--the doctor didn't both to ask my mom about her chain smoking habit. I only did the Enterolab gluten and milk sensitivity tests which showed antibodies to both gluten and cow's milk. When I tried to substitute soy products for dairy products I experienced... -
ARCHIVED "traveling" Gluten Free
burdee replied to tarnalberry's topic in Coping with Celiac Disease
Hey Tiffany: Thanks for sharing your list of gluten-free foods for your 2 day trip. You gave me several ideas for my future trips. I just planned what to take on my next plane trip which only serves pretzels (not gluten-free) and beverages. I'm taking rice cakes, sardines packed in olive oil and a package of mixed dried fruit for my lunch--I spread the... -
Hi Granny: Thanks for your honesty about packing on the pounds because you substituted candy for cigarettes. So many people want to 'blame the food' (higher calories, more fat grams, more carbs, etc.) rather than their own negligent eating habits. Although some of the gluten-free foods (such as breads) are higher in calories, others are not. I feel satisfied...
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Hi Rachel: I also starting gaining weight when I first started avoiding gluten. Prior to that I had controlled my weight by only eating when I was hungry, whatever I wanted and stopping when I was satisfied (BEFORE stuffed). However, I was in soooo much pain when I first when gluten-free that I comforted myself with new gluten-free foods, so I didn't always...
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ARCHIVED Shopping Guides
burdee replied to gZimmiZ's topic in Parents, Friends and Loved Ones of Celiacs
I agree that the CSA Product listing guide is rather bulky and heavy to cart to the grocery store. However, I like its 3-ring binder format. Whenever I receive email info from a food manufacturer about their product's ingredients, I print out that info and add it to my CSA binder. Nevertheless, I prefer the GFCFDiet website's smaller product guide for shopping... -
ARCHIVED My Diet Is Not Like Most Of Yours
burdee replied to coin-op's topic in Coping with Celiac Disease
Ruth: I had (and occasionally still have) that right lower abdominal pain which also comes and goes with gas or stool passage. Prior to learning I had celiac disease, I started taking magnesium supplements to help with what I thought was constipaton (bloating, gas and occasional hard stools). Going gluten-free helped some, but avoiding DAIRY completely...