Takala
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Latest Celiac Disease News & Research:
Everything posted by Takala
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ARCHIVED Gluten On Dishes? Being Too Careful?
Takala replied to Laura.'s topic in Coping with Celiac Disease
I really do not understand the responses to the "I find bits of food on my things" which are claiming that noticing this, and re- washing it because of the possibility of cross contamination in a gluten- shared household, is being "overly obsessive." I think this is borderline trolling behavior designed to elicit a protest, besides being bad advice. ... -
ARCHIVED Could Be Celiac? Starting Gluten Free?
Takala replied to Erbear289's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would suggest you go to the PCP's office, and tell them to their faces in the office that you have symptoms of celiac, that the GI is not agreeing to test for it, and you need to be tested for celiac by a blood draw lab test, and tell them also if you need AN APPOINTMENT to get the doctor to agree to do this, then they are to schedule one right, right... -
ARCHIVED Advice On Next Step?
Takala replied to allisonwilkins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are more likely to get a negative diagnosis anyway because you have been off of gluten for so long, unless you go back on gluten for a long time, even then, no guarantees at all, because damage takes a long time to create, so that still leaves you with the conundrum of what will it take to get you to stick with a gluten free diet. -
ARCHIVED Baking With Sweet White Rice Flour
Takala replied to poptart87's topic in Gluten-Free Recipes & Cooking Tips
Usually used in small quantities in combination with other gluten free flour mixtures, not by itself. It is the same type of rice that is used in sushi, so it is sticky when cooked. But that would mean the use of less gums, so it's a trade off. -
ARCHIVED Brown Rice Pasta Sticking To Itself
Takala replied to EmiPark210's topic in Gluten-Free Recipes & Cooking Tips
If you don't have a large pot, break the noodles in half before you put them in the boiling, oiled, salted water. Stir and make sure it is not trying to settle on the bottom of the pan in the begining. Once done, drain, and rinse in cool water in a colander to get the sticky stuff off and to stop the cooking process. You then might have to add just a little... -
ARCHIVED Asahi = Not Gluten Free
Takala replied to quirozson's topic in Gluten-Free Foods, Products, Shopping & Medications
If it makes you feel any better, I had a waitress in a sports themed bar/restaurant try to give me another brand of beer that I knew darned well was not gluten free to go with my gluten free pizza, saying "and oh, we have brand xxx, gluten free beer." This particular beer brand isn't even marketed as gluten free. I said, that's not a gluten free beer... -
ARCHIVED Gluten Free For Non-Celiac/not Intolerant?
Takala replied to kcorcoran2013's topic in Related Issues & Disorders
Most of the talking points against the "gluten free fad diet" are coming from various lobbying interests, who are all trying to jockey for position over the agricultural subsidies given to corporations to grow various crops, and for the biological research and the medical research dollars for universities. They are using talking points provided by certain...- 2 replies
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- advocating for gf lifestyle
- fad diet
- (and 4 more)
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ARCHIVED Coming Back To Gluten Free
Takala replied to hawkpacific's topic in Related Issues & Disorders
You can have both celiac/gluten intolerance and a wheat allergy or hay fever or other allergies to any sorts of things. Allergies = histamine reaction. Celiac = auto immune reaction where body is bothered by proteins inside and makes antibodies against itself. Gluten intolerance = like celiac without the official diagnostic seal of approvalâ„¢ (okay, t... -
ARCHIVED Need Advice On 10Yr Dd Results Celiac Mom
Takala replied to gfgtj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Pain is not a diagnosis, it is a symptom. Putting the word "functional abdominal" in front of it doesn't make it less so. We have pain for a reason - to make us stop doing what we are doing, that is harmful. If we were back in the stone age, and the grass seeds we were eating caused pain, we'd stop eating them. No different now other than the societal... -
ARCHIVED Daughter's Dad Not On Board
Takala replied to GwenO's topic in Parents, Friends and Loved Ones of Celiacs
He may be in denial because he realizes he contributed to her genetic makeup. He may even have symptoms of gluten intolerance or celiac, and he is also in denial about that. Gluten is addictive, after all. Some relatives are just weird about this. We've had plenty of people on the boards here saying that their parents are not exactly cooperative or fully... -
Avoid processed foods as much as possible, and eat fresh, whole foods cooked from scratch as much as possible. You also may be intolerant to oats as a small percentage of celiacs are. Other common cross reactions are dairy (see that you are already avoiding that for now) and soy proteins such as soy flours. You can't undo years of celiac damage in...
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ARCHIVED Finally Got Into Rheumatology Triage
Takala replied to nvsmom's topic in Related Issues & Disorders
I am thankful I was diagnosed back in the early '80's by an osteopath, because when we moved to a different state nearly 2 decades later, I was rather shocked at how people who are not classic rheumatoid or lupus types are treated, so I tried seeing a couple of equally clueless rheumatologists, and gave up. If you aren't a candidate for the newer ATNF drugs... -
I don't have a dental horror story other than the wisdom tooth extraction. Decades ago, I lucked into my husband working with a co worker who's dad was one of those old school dentists and who was on the state dental review board, so he took me on and made recommendations for things with the other types of dental work. For the next extraction (before the...
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ARCHIVED Gluten Free Before Endoscopy?
Takala replied to taynichaf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
'Tis better to err on the side of caution, however, if your birthday is a big gluten blow-out typically, you might want to start to experiment with gluten free treats for that, such as a special gluten-free cake, ice cream, homemade pizza on a gluten free purchased crust, gluten-free beer or soda, etc, but keep consuming at least 2 servings of the glue- poison... -
ARCHIVED So Confused
Takala replied to Worried mommy's topic in Parents, Friends and Loved Ones of Celiacs
So, keep up the good work and send her next time with her own gluten-free personal pizza and cupcake. A lot of people make these in batches, or at least keep pizza crusts in the pantry supply, and freeze them for when needed. Individuals vary on how may hits they need before they become sick from eating gluten. Even diagnosed celiacs will sometimes... -
ARCHIVED Neuro Issues? Help Me Understand?
Takala replied to Nikki2777's topic in Related Issues & Disorders
A gluten free multivitamin with B complex (the B vitamins are important) and a calcium, magnesium, vitamin D type one. The B vitamins are the ones where you can actually feel the difference, after taking them for just a short time. Some people take the sub- lingual ones, under the tongue. The calcium/magnesium for replenishing bone loss, with the vitamin... -
ARCHIVED What Did I Do Wrong?
Takala replied to squirmingitch's topic in Gluten-Free Recipes & Cooking Tips
Soul sucking, need the ass on the kayak wheelie cart, bone grinding tired. Gave in and took a nap today, it was wonderful. I put stevia on the cream cheese or the yogurt with a dash of nutmeg, and tell myself it is "frosting." I imagine this would work with dairy substitutes like that Toffutti cream cheese stuff, "cheese" made from nuts, or ...... -
ARCHIVED No Diagnosis Or Support From Doctors, Not Sure What To Do Next
Takala replied to Eclara's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, dear, I really feel for you not having the support, and the low IGA screws it up, but, the rule of being the grown up is that you have to take care of yourself, first, or you just don't function, because the other sick people will drag you down. Chasing a diagnosis so others will take you seriously is futile, they will just make up other excuses to... -
Okay, look, the "neuro" people tend to have a much more difficult time getting diagnosed. The next step would be an endoscopy biopsy of the small intestine, a biopsy of the skin next to any rashes. Do not go gluten free until you get it. There is a LOT of bad information being put out on the internet by social media concerning diagnostic procedures. Going...
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ARCHIVED Neuro Issues? Help Me Understand?
Takala replied to Nikki2777's topic in Related Issues & Disorders
It takes a long time for damaged tissue to heal up from the antibody attacks your body is performing on itself. The malnutrition doesn't help, but it's auto immune damage. Strictly gluten free will stop this, but it takes time. The earlier research articles I have read (done by European researchers doing data analysis of older people with idiopathic... -
Sorry about that, but when one has a neurological episode of the like strength of reaction, including such waves of dizziness and nausea feeling like one can't walk, and literally can't see straight or focus one's thoughts, plus your muscles are locking up, one begins to understand motivation to "not" do that again. Whatever "that" was. I bet you...
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ARCHIVED Dh Or Whatever It Is Driving Me Crazy...so Is My Mother!
Takala replied to SeekingSarah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm allergic to those antibacterial soaps, I hate when I have to use them in public restrooms and have to try to rinse all the residue off, and was a horrible mess in my job with skin breaking out decades ago when I had to use that Dial soap at work, constantly. That and people treating antibacterial gel as if it would remove actual dirt or gluten...... -
ARCHIVED What Did I Do Wrong?
Takala replied to squirmingitch's topic in Gluten-Free Recipes & Cooking Tips
Hey, this is a Gluten Free Baking Forum. My understanding is that the "gluten free" recipe never works the first time..... or you are out of one of the substitute ingredients ....... My favorite oops was once I dropped a whole box of buckwheat into the dog's water dish mid recipe. The other was the time I tried using fresh corn and created the... -
ARCHIVED What Did I Do Wrong?
Takala replied to squirmingitch's topic in Gluten-Free Recipes & Cooking Tips
octopuses Too wet. Okay, let's review. The directions said add the eggs, oil, and water, but you left out the optional cheese. The cheese adds a bit of protein and oil and moisture. The directions are always so whacked up on these Chebe boxes. I beat the eggs and the oil together, and depending on what else I intend to do, then add either... -
ARCHIVED Expired gluten-free Flour?
Takala replied to TwilightTime's topic in Gluten-Free Recipes & Cooking Tips
Sniff it, mix a tiny bit of it with water with it and taste it, and if it's not rancid, use it. Store brown rice flours and mixes in the refrigerator or freezer so they don't go bad, and be sure to close up opened boxes with another plastic bag or something. You might have to add a bit more baking powder or baking soda and a tiny bit of vinegar to the recipes...