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Takala

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Latest Celiac Disease News & Research:

Everything posted by Takala

  1. Takala
    Well, as they say, "don't get mad, get even." Yes, nerve damage = pins and needles/electrical charge sensation shooting down your arms to hands. Like "burners" that football players can get. This can also be caused or made worse by cervical spinal stenosis and bone spurs. It's all nutrient related as the body doesn't get what it needs from food...
  2. Takala
    Been there, done that, got the T- shirt. Had the lumbar puncture routine and it came up negative when I was ... mmm, thinking... this would have been maybe as long as 25 - 30 years ago. Fast forward to very early new 21st century. Yes, I had the "bright spots" or brain lesions typical of Celiac damage. You ought to thank your lucky stars you...
  3. Takala
    My symptoms were supposedly "atypical," so this isn't a problem for me. I will tell people if they have a "need to know" that I have food allergies and intolerances. And this isn't a lie as there is other stuff I'm avoiding.... They hear the word "allergy" and that conveys the seriousness. This disease damages the gut and causes malnutrition. THAT...
  4. Takala
    Has anyone mentioned yet that BENEFIBER is NOT really gluten free ?
  5. Takala
    You need to learn to use 'teh google' to help you find what you need. Google "gluten free" in front of anything and it comes up. So "gluten free name of your town health food store" should pull up a search of nearby health food stores, where you may get better deals than at TJ's and WF's, anyway. The first thing you ought to get is a few staple...
  6. Takala
    Stainless steel and ceramic and glass is okay. Porous- plastics, rubber, and non- stick is not okay. You will need your own toaster, your own colander(s), and your own cutting board and tupperware/storage type containers as a minimum. (Old Cool- Whip containers work well as plastic storage bowls, so start saving them) Using paper towels laid down...
  7. Takala
    Real Mexican, Italian, et French cuisine have very little gluten.... the fact that you already cook will make it easier to switch to gluten free than someone who expects to be just fed or use a drive- thru fast food window (shudder.... ) Mexican you switch to gluten free indigenous foods of the Americas, such as quinoa, amaranth, corn, beans, squash...
  8. Takala
    Not unusual to have negative bloodwork, yet it turns out one will have gluten sensitivity which responds to a gluten free diet.
  9. Takala
    Well...... You can bake it up, crumble it, and use the crumbs for a pie crust or a granola type streusel topping or a cheesecake crust or an ice cream or yogurt topping. You can pat the dough into the bottom of buttered round ramekins and bake, then top with pudding, fruit, or ice cream - a local restaurant chain does this with ice cream and it's pretty...
  10. Takala
    It can be a combination of ingestion AND topical. I'm convinced a gluten reaction from ingestion revs up your immune system so it's just looking for any excuse to go on hyperdrive some more. Sigh. Get yourself a big box of baking soda, a big jug of pure apple cider vinegar, and a jar of coconut oil. You can fake most body cosmetic needs with this...
  11. Takala
    Wheel chocks. Landscaping bricks. Styrofoam packing peanuts substitute....
  12. Takala
    Well, what are your symptoms when you eat dairy, anyway ? If the hard aged cheeses don't bother you, and the yogurt doesn't bother you, it may just be the lactose in milk. When I first went grain free, I would "cheat" with just a little dairy sometimes in cheese, and it didn't seem to make any difference. The freaking yogurt was another thing. I gave...
  13. Takala

    ARCHIVED Is It Worth Seeing A Gi?

    Takala replied to saintmaybe's topic in Doctors

    It's worth it to the medical group that eventually gets the insurance reimbursement...... You would be told to go back on gluten (and likely for too short a period of time to re damage yourself sufficiently for it to show up on a biopsy) and then the G.I.'s office will call (eventually) and proudly announce that You Do Not Have Celiac. You can have any...
  14. Takala
    A doctor is always going to give the answer that makes sense from an insurance reimbursement point of view in the U.S. "Reason for doing test" = "suspected disease xxx" whether or not that actually makes any sense. In this case, a good guess is that this being a teenager, she probably thought a gluten free diet was not actually being adhered to, and there...
  15. Takala
    If you're asking is it okay to read him the riot act for not following directions on a potential glutening, the answer is yes. McDonalds, like many other fast food places, does not set out to specifically make their food gluten free, with some sort of monitoring/testing/protocols along the entire way. While it may fall under the category of "naturally...
  16. Takala
    The recipe for the "Pretzel chicken" is screwed up and missing directions as to what is actually done with the pretzels. Some of the ingredients would not have been gluten free on the second recipe when it was described as to how the original dish was made spicier when the leftovers were cooked again. The article is another one of those which...
  17. Takala
    A possible compromise is she could get genetic testing and see if she's a carrier of the genes predisposing. Just another piece of the puzzle. Oh, and can look at the wiki articles on the DQ HLA 2 and genes and see if family ethnic background indicate are more likely to be potential carriers.
  18. Takala
    Hey, there are gluten free holiday recipes with that article AND links to other gluten free recipes, and they're good ones ! Buckwheat Kasha and Mushrooms Open Original Shared Link Quinoa Corn Chowder for Shabbat Open Original Shared Link Meat and saurkraut and potatoes (Simchat Torah Choucroute) Open Original Shared Link
  19. Takala
    Go to this doctor's office and get your test results in writing. You do not need an appointment for this but you may have to show up, and insist, in case they pretend they cannot give them out. If they want to give you an appt to discuss this soon, fine. Did you have any blood tests to look for antibodies for celiac disease and/or the genes associated...
  20. Takala
    Miss Mellie, that's quite a list of "avoids." Things that are "hot" that are not on your list, include ginger root, horseradish, and wasabi powder, if you could find it gluten free. Radish is also spicy. Have you ever had radish sprouts, they have a sort of kick to them like pepper.
  21. Takala
    _____ Likely somewhere during the handling/manufacturing/processing the dried fruit has been either run down a line with some powdered grain product to reduce stickiness or with some vegetable oil to reduce stickiness, and that stuff was the thing that had the cross contamination. It (dried fruit) can also sometimes have sulfites, such as they use in...
  22. Takala
    I sympathize with the random "gluten free" tortilla and broth/soup reactions. I don't think some these companies test every batch, unless somebody shows me something in writing which states that this is their policy. And I've definitely gotten very sick off of a "gluten free" marked corn flour from a known company that DOES test every batch, and I can't...
  23. Takala

    ARCHIVED Abc's Man Up

    Takala replied to angel-jd1's topic in Publications & Publicity

    Introduction on Hulu, 2:15 minutes "It's in everything good, honey."
  24. Takala
    Here is the directions, in case anyone is wondering: Pamela's Chewy Pizza Crust, using their Gluten Free Bread Mix (not the same as their all- purpose gluten-free ) Open Original Shared Link I mix my gluten free flours into blends, and the other dry ingredients into that, mix the wet ingredients in another bowl, and then add the dry to the wet, but...
  25. Takala
    The author said, Can't tell you how many times I've picked up a bottle of fruit juice mixture and it said "natural flavorings" which is a catch all phrase for anything here, plus it may have said some form of starch, origin derived from unknown, so I just put it down. Peanut butter frequently contains the disclaimer "packaged in a facility that...
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