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mushroom

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Everything posted by mushroom

  1. mushroom
    I would think if you are definitely gluten free that it must be an additional food intolerance. Think of what you have been eating a lot of since going gluten free, and that would be the likely culprit. After I quit gluten I itched intensely from soy (they put in so many gluten-free processed foods), then from potatoes, and then from citric acid (the last...
  2. mushroom
    Sorry, but your doctor is ignorant about celiac. You need a new one who has a clue or two!! Ask your local celiac society for a recommendation, or post in the doctors thread "Looking for a doctor in (however far a geographic area you are willing to travel)" and you might get some recommendations from members here. There is also a thread there entitled...
  3. mushroom
    The three gluten-containing grains are wheat, RYE and barley. Most oats are also cross-contaminated unless they are certified gluten-free oats. If he mentioned to avoid soy, that is a separate intolerance that many celiacs have. I know I do. Did they test you for soy? Maybe they actually told you wheat, rye and barley.
  4. mushroom
    "I dunno what it is BUT IT'S NOT THAT!!" Yep, time for another doc! So sorry you are going through this. As if the problem isn't disturbing enough
  5. mushroom
    My husband decided to go gluten free with me because he had a "borderline" response to the celiac test, and some bathroom issues. However, he certainly did not consider himself celiac and was doing it to accommodate me When we were back at Tahoe he indulged in some sourdough french bread, and then some beer, and continued to have a beer or two when...
  6. mushroom

    ARCHIVED Overwhelmed

    mushroom replied to lost's topic in Coping with Celiac Disease

    Now relax and take a deep breath! YOU CAN DO THIS!! Is it easy? No, it's pretty darned hard, especially for a busy mom trying to build a business. You don't say how old your children are so I presume they are not old enough to get on board and take the responsibility themselves. Do you have a partner to support you in this? Sometimes partners can...
  7. mushroom
    You probably need some additional supplements. You need to make sure you are getting calcium, zinc and magnesium to go with your low vitamin D, and the magnesium should also take care of your leg cramps. If your are having continual cramps that would leave residual aching in the calves. Why not give it a try??
  8. mushroom
    Two suggestions: Contact the Celiac Society in your state and ask for a recommendation of a celiac knowledgable doctor, or post under the same doctors section you are in: Looking for a doctor in northern Uzbekistan (or wherever) and see what our members can come up with. If you find another way, please let us all know.
  9. mushroom
    For most people, the answers are yes, and yes. It need only be a measly crumb of gluten to set you off, unfortunately. I once get a very mild glutening (not the diarrhea kind) from a poorly washed coffee cup, and I'm not particularly sensitive.
  10. mushroom
    Loses some of its pong!! on the way across the ocean, I guess.
  11. mushroom
  12. mushroom
    A Psoozle poop-in!! Looong time no see--too long! How're ya doing, mate?
  13. mushroom
    Hello, and welcome to the board. I believe when they do the dairy testing, they only check for casein intolerance (could be wrong? ). Anyways, if you have any intestinal damage (the non-specific "spots") you will most likely have destroyed/damaged the ability to digest lactose which is the milk sugar in dairy (the casein being the protein). Give it...
  14. mushroom
    I developed an intolerance to citric acid 18 months after giving up gluten. Used a lot of lemons and juice, was eating lots of mandarins and bammo!! For me, it was itching. But potates and soy make me itch also. So yes, you do have to vary your diet. I am also an undiagnosed gluten intolerant (and soy, corn, nightshades).
  15. mushroom
    A lot of these medical "professionals" are so out of date as to be archaic, and really belong in a fossil museum. One could laugh at them if it were not for the harm that they do. So many people have been denied the opportunity of a correct diagnosis, instead of this IBS crapola, by their refusal to test. So the patients figure it out for themselves...
  16. mushroom
    The biopsy is considered by doctors to be the "gold standard" for diagnosis, but don't forget that for a long while that was the only test there was, before the blood testing was developed. Of course the GI's want to do the biopsies because they make more money that way. But the biopsy does really not tell you reliably whether or not your symptoms will...
  17. mushroom
    Poeter lives next door to a Scot Off-season bargain, no doubt.
  18. mushroom
    Welcome, Wnedysmiling. Yes, from your list of symptoms, I am pretty certain that you have "it" too. Whether that "it" turns out to be confirmed celiac disease or "merely" gluten intolerance, I think that you should try the gluten free diet right away, because the solution is the same for both conditions. Many people test negative for celiac even with...
  19. mushroom
    What a stupid company. You would think if they didn't know what gluten was they would have at least looked it up Sorry you got sick. Your dog needs some training
  20. mushroom
    Go to the doctor's office and sign a form for release of medical records and request a copy of all your results. They are required by law to give them to you if you live in the US. And I believe most other countries will give you copies upon request. It is probable that you also have a sensitivity to lactose/casein, casein being the dairy protein. You...
  21. mushroom
    I don't know if anyone can quantify your cancer risk, Jason. I certainly can't mine, but I live optimistically that it will pass me by. My maternal grandmother, my mother, my mother's sister, and both my sisters have had breast cancer. One sister tested positive for the BRCA1 gene, one tested negative, so I did not even bother to get tested since it doesn...
  22. mushroom
    Wouldn't it be wonderful, Tom, if we could compile all the posts like yours (and there are hundreds and thousands of them) and send them to every doctor on the planet with an internet connection (as if they would read them, ha!) and let them see the suffering they have caused in this world through their ignorance. I am so sorry about the loss of your...
  23. mushroom
    Just a quick poop in, can't add any silliness, nuff cyber silliness going on. Hard to be psilly when consumed with rage after two days in cyberspace, no phone, burning the cellphone minutes talking to ISP provider, telco, CISCO (customer support in Phillipines and west coast USA), equipment seller, alarm company (yep, it set off the alarm at 5:00 a.m. ...
  24. mushroom
    That's one label I always have to very carefully check; some of ours does
  25. mushroom
    Granted BUT, what I am trying to say is that you have to look beyond NOW! It will not always be like this. Suck it up for a while, be very strict and careful with what you put in your mouth NOW! and you will get beyond this and able to resume your life. Think of it as a broken leg or broken back. Just because you can't see what is broken doesn't change...
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