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Latest Celiac Disease News & Research:
Everything posted by mushroom
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I think the older you are at diagnosis, and the longer you have suffered, the more willing you are to buckle down and live with the restrictions. Yes, at first they can be very isolating until you learn how to handle social situations and be assertive. I think, for males particularly, there is a certain sense of machnismo associated with having to be different...
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ARCHIVED Toxic Grains
mushroom replied to kayakgal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I also feel this way, kayakgal. One latest example which boggles my mind: I live in New Zealand which has long traded on its "clean, green" image. We are very much a dairying nation with dairy products being one of our principal exports. We have lovely green, grassy pastures and happy cows. Recently, of course, the small dairy farms have conglomerated... -
ARCHIVED Newcomer In Michigan, Diagnosed Today
mushroom replied to seven's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just a word of warning about cross-contamination, Andrew. If the previous poster's stuffing had been cooked in the bird, the turkey would be contaminated and unsafe for you to eat. This is the kind of way your family can help accommodate you--by cooking the stuffing separately, and not using any gluten-containing bouillon to baste with, for example, would... -
Okay. this got missed Sorry about that. Start a new topic. Go to the main page where all the forum categories are listed (Index Page), click Doctors, and start a new topic entitled "looking for a celiac doctor in or near Sterling, VA"
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I am always looking for new flour blends that do NOT contain potato starch. I came across a three rice flour blend which, in addition to brown and white rice flours, calls for "rice polish". This is the definition I found online for rice polishings (nothing for rice polish) : Function: noun plural : the inner bran layer of rice rubbed off in milling...
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ARCHIVED Amazing Recipe Blog
mushroom replied to MissKristy's topic in Gluten-Free Recipes & Cooking Tips
The Dark Goddess Chocolate Cake is to die for -
ARCHIVED Waiting For Blood Test Results
mushroom replied to sandsurfgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't be overwhelmed. These things don't all have to happen today Just take them one at a time and pretty soon you'll be there. The last thing you need is to stress about these things. Just say, I can do this, and tackle the task systematically. Your hardest task is going to be teaching your family to respect your gluten free status. Your husband... -
ARCHIVED Allergy Test Confusion?
mushroom replied to JessicaHall's topic in Coping with Celiac Disease
Jessica, are you talking about an IGe moderated allergy by taking the ELISA test, or are you talking about testing for gluten/wheat intolerance by doing the celiac panel testing? It was not clear from your post. There is a difference between an allergy and an intolerance. If you are allergic to wheat, you may have an anaphylactic (life-threatening) response... -
ARCHIVED Blood Test Says "Not Celiac" ...Did Come Back Positive For Egg, Milk, And Soy--Now What?
mushroom replied to daniknik's topic in Food Intolerance & Leaky Gut
Welcome to the board, and to the world of non-celiac gluten intolerance, which sounds to be the planet you are living on, along with your doctor. I am intolerant to soy also, as well as corn and nightshades. I was intolerant to lactose, but since my villi have healed I am no longer lactose intolerant . By the way, I was also bruising all over my hands... -
ARCHIVED Waiting For Blood Test Results
mushroom replied to sandsurfgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know what you mean about mourning the loss of things we love. It is common. It is also common to go through a gluten withdrawal, similar to quitting smoking and withdrawing from nicotine (we keep being addicted to these things that hurt us most ), so don't be alarmed if you feel a little punk for a while. BUT, you have not given them up for good. Pretty... -
ARCHIVED Waiting For Blood Test Results
mushroom replied to sandsurfgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, the biopsy is not done under anesthesia. They give you a sedative which contains something that basically makes you forget the whole procedure. It is invasive, but most people do not experience a lot of discomfort following it. But good for you for deciding to make yourself better. Let us know how it goes and what obstacles you encounter. You... -
ARCHIVED Is This Iga Deficiency?
mushroom replied to mbridget's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't discount the possibility that you are gluten intolerant/sensitive, rather than full-blown celiac. The treatment is the same for either condition, i.e., a gluten free diet, which is probably why your GI told you to avoid gluten, dairy and sugars. The dairy is because gluten damages the villi in your small intestine where the lactase is produced to... -
ARCHIVED Waiting For Blood Test Results
mushroom replied to sandsurfgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello sandsurfgirl, and welcome to the forum. Yes, as you have found out from reading here, your story is a familiar one (unfortunately ) I am glad you are on your way to getting some answers. You seem to be someone who needs to be definitely told that you have celiac disease, i.e., that a diagnosis is important to you. That diagnosis can really... -
ARCHIVED Is This Iga Deficiency?
mushroom replied to mbridget's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The full celiac blood panel is considered to be: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA Plus there is a newly developed test called Deaminated Gliadin Peptides (DGP) just to confuse you further. Many doctors do not order the full panel for some reason. The... -
ARCHIVED Need A Pie Crust?
mushroom replied to Ahorsesoul's topic in Gluten-Free Recipes & Cooking Tips
Hey, it works on top of macaroons, why not under an ice cream pie? mmm!!!! -
ARCHIVED Dairy Again, Ever?
mushroom replied to OptimisticMom42's topic in Food Intolerance & Leaky Gut
I am like Kathy. Severely lactose intolerant, but not casein. It's been two years, and I am now able to eat some ice cream and have had a good blob of cream with my cake. I used Lactaid with it at first (I was so bad that that never helped before) and yesterday I had my first trial (successful!) without Lactaid. Yeay!! I hope it's the same for you.... -
ARCHIVED Gluten Sensitivity Vs Celiac Disease
mushroom replied to Lisa's topic in Related Issues & Disorders
Wow!! Finally someone expressing and putting together what I have come to believe (I am a woman ahead of my time ) -
ARCHIVED Quinoa Flour
mushroom replied to Roda's topic in Gluten-Free Foods, Products, Shopping & Medications
Did you use any other flours with it? I have used it before (onlyl once) in a bread recipe, but it was in combination with other flours and the bread was delicious. I don't think I would like it as a single ingredient flour. -
ARCHIVED New With A Gazillion Questions
mushroom replied to Kerasita's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, no, that is not exactly how it works Your body makes autoimmune antibodies to the gluten, which show up in blood work if you have been consuming gluten. If you have not been consuming any/much gluten, you will not have the antibodies in the blood. However, they do linger in the stool for longer and can often be picked up six months after you... -
ARCHIVED To Be Tested Or Not?
mushroom replied to Hammod's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hammod, based on what I know now (self-diagnosed, gluten free for two years) I think, if you can tolerate it, you are doing the right thing. So many issues come up if you don't have a diagnosis, ones you wouldn't expect. Even down to my local Coeliac Society (New Zealand) won't let me join because I'm not diagnosed. You have the piece of paper, just like... -
Thanks, Peter; that did it! (Not a power user )
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Okay, didn't know that was called the Index Page. And that's the one that has the incorrect time in the lower right corner. I can highlight it, but I can't change it.
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ARCHIVED Could I Have Celiac'S Disease?
mushroom replied to Jamie Michael's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am not expert on this, but I believe if you were tested within a week of going gluten free the antibodies should still be sufficiently high to show up. But if the doctor wanted to schedule a biopsy by the time you got in for that it would probably be too late. You say you have not noticed much improvement, so it may not be too painful for you to resume... -
Okay, RiceGuy, I need your help here. I sent Scott an email about this problem. My time is not adjusted for daylight savings either. BUT, what the heck is the index page and how do you get there??
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ARCHIVED Why Is This Such A Popular Condition For People To Self Diagnose With?
mushroom replied to silvertail's topic in Publications & Publicity
You have hit that mail right on the head, Ahorsesoul. My three most problematic foods are also the three most genetically engineered--wheat, corn, soy.