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Latest Celiac Disease News & Research:
Everything posted by mushroom
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ARCHIVED Anyone Take D3 In Large Doses?
mushroom replied to kareng's topic in Related Issues & Disorders
I initially took it once a month (the 50,000) until my rheumatologist said I needed to take it once a week to fill the tank and another doc said the same. I took it for about three months once a week, and retest showed my tank was overflowing, so cut back to once a month with daily 2,000 IU. No side effects, no particular time I take it, but oh, what a... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Skeeter and barley Patteigh's DS and successful surgery Patteigh's mothering instincts Patteigh's smothering efforts Iditarod. OMG, always thought those guys (and gals) were crazy mad insane (check one or all) And the poor doggies There used to be a guy at North Tahoe who could be seen training his team with a sled on wheels on... -
ARCHIVED Borderline Vitamin Test Results
mushroom replied to David in Seattle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've never known anyone tested for Carotene before -- Vitamin A?? If so, very low. Vitamin D, also very low. My level was higher than yours and I was told by my rheumatologist that the dose my PCP put me on 50,000 IU once a month, was not enough, that it was merely providing me with enough gas to get to the service station to fill up again. She said... -
ARCHIVED Does Gluten Damage Before Onset Of Symptoms?
mushroom replied to afreeclimber74's topic in Coping with Celiac Disease
Certainly you can look at the situation and say that symptoms are your body's way of saying, "Houston, we've got a problem". But how long does it take and how much damage is required before your body asks for help?? And as the previous poster stated, some bodies do not seem able to send the appropriate signals in a timely fashion. I didn't realize... -
ARCHIVED Looking For A Flour Substitution
mushroom replied to jrh1017's topic in Gluten-Free Recipes & Cooking Tips
I have always found the term "whole wheat white flour" confusing, because in my mind it cannot be both. I have seen whole wheat loaves of bread that are white, and am still confused as to what it means exactly. You could try the all purpose mix, which presumably has some selection of rice, tapioca, potato starch, and maybe something else, or you could trying... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Sounds like we all need new lists--why don't we swap and do each others'? Could make life interesting for a day! But I don't want Ray-shelle's list, with dat second workout!!! I don't think I would want to be yelled at by a Jyesss with a sore 'ead And I assigned the task of colouring my hair to an expert; somehow or other it looks more... -
ARCHIVED Changes In A Suspected Celiac Gone Gluten-Free
mushroom replied to Narziss's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, I believe your doctor can order stool/saliva IGA and stool/saliva and/or serum genetic testing through Prometheus or Qwest Laboratories. My phraseology in reply to your constipation question was a little limiting. Posters often report marked changes in bowel habits after going gluten free, some satisfactory as yours initially was, others not so satisfactory... -
ARCHIVED Antibodies Present But No Symptoms
mushroom replied to Akber Biberkopf's topic in Parents, Friends and Loved Ones of Celiacs
If your child has positive tissue transglutaminase, and the doctors predict a positive biopsy, then your child is suffering damage from gluten. Even though he has no observable or reported symptoms. I would not wait for him to become symptomatic. I would have the biopsy right away. If you have done much reading on celiac you must be aware of the very... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Egads, Jyesss, for how long are you going to keep up this pace??? Not long, I hope Although you do sound a bit like me "WHEN I WAS YOUR AGE" Arise, shower, walk dog, feed dog, three cats and parakeet, commute on mostly freeway 45 minutes, work at stressful job (which I loved though), commute on freeway for 1 hour (rush hour of course), grab bite... -
ARCHIVED Changes In A Suspected Celiac Gone Gluten-Free
mushroom replied to Narziss's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, and welcome to the board. I have read your entire post, and will respond to the questions. 1. There is no hard and fast rule about how many weeks can elapse for a biopsy to be accurate, as each person heals at a different rate and has a different level of villous damage. In order to get the most accurate result you should, of course, be eating... -
ARCHIVED Birthday Cake!
mushroom replied to G-freegal12's topic in Gluten-Free Recipes & Cooking Tips
I've never even HEARD of imitation butter extract When I'm in the U.S. and not using butter I do use Earth Balance soy free and like it a lot. Have not got used to using Spectrum as it is only available to the food processors down here (the health food store checked for me and the smallest size available was 15 kg I'm looking forward to trying it this... -
ARCHIVED Need Help With Symptoms!
mushroom replied to (re)becca's topic in Coping with Celiac Disease
I didn't even think of eating out in a restaurant until I had been gluten free for about six months. The whole process is so fraught with risk when you first go gluten free, it is hard enough to eliminate the gluten when you can read the labels, let alone whatever the restaurant might put in This, I am sorry to say, is learning to relive your life, and... -
ARCHIVED One Less Family Gathering To Worry About!
mushroom replied to shepgs's topic in Coping with Celiac Disease
I do know that feeling of relief. I am going to spend a week with my gluten free sister so although I have a few intolerances she doesn't, life will be easy Except our other sister has decided to come visit at the same time just to make the two of us feel weird To her I say -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Why not opt for both--would make for a better-balanced phace A triangle of horror, so to speak, with some judicious chin hairs just above the chin pheet. Sounds like a good look -
ARCHIVED Birthday Cake!
mushroom replied to G-freegal12's topic in Gluten-Free Recipes & Cooking Tips
Sorry, I missed this post until today. Yes, I did use the butter, which is why it was so rich. I'm lucky not to have to avoid casein. Have no idea how it would work with other shortening. -
ARCHIVED Should My Daughter Get More Testing?
mushroom replied to hpymomof3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
At this point your options for further testing are limited. Did the Enterolab testing include the genetic testing to see if she has a genetic predisposition to celiac disease/gluten intolerance? While this won't give you a diagnosis it could help knowing whether or not she has one of the predisposing genes. Your doctor can also order a serum genetic test... -
ARCHIVED Any Julia Child Fans Out There? Chicago Expo And Beef Bourguignon
mushroom replied to Lynayah's topic in Gluten-Free Recipes & Cooking Tips
That was the first recipe of Julia's I ever cooked, and it IS fantastic. After that I figured, well, I know how to do this dish, so I cut corners, and it never does come out as good as the original -
Deleted by Mushroom as duplicate post.
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There is a definite need to get more information out there. Although the situation has improved vastly in the last two or three years, a vast majority of people still have no idea what gluten is, or what difficulties those with food allergies or intolerances encounter in their day-to-day living. A documentary would be a great way of doing this if you had...
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ARCHIVED Need Help With Symptoms!
mushroom replied to (re)becca's topic in Coping with Celiac Disease
Hi Rebecca: As sandsurfgirl says, it is best if it at first you avoid the gluten free substitute foods and stick with only natural whole foods selected from the outside of the supermarket. The only exceptions I would make would be an occasional slice of gluten free bread (everyone likes Udi's), some rice pasta (Tinkyada perhaps), and of course you have... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
White-tailed spiders are supposedly not poisonous, just slightly "dirty" with what they inject in you so cause infection, but the bite was razor sharp and it left three! fang marks (is this even possible with arachnids??) The only mildly poisonous spider we have is the katipo, a relative of the black widow, which likes to cosy up to you in the sand dunes... -
ARCHIVED Positive Celiac Biopsy/Negative Blood Test
mushroom replied to ~sparky~'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Sparky. Yes, it is not unusual for a celiac blood test to show no antibodies after six weeks on a gluten free diet. The antibodies can leave the blood stream quite quickly. You are fortunate that the biopsy was positive because this is considered to be the "gold standard" of diagnosis. As for your continuing symptoms, it is not uncommon to continue... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
A shroomie update: (a long Shroomie story apropos of absolutely nuffin) Soy in the open-faced sandwich caused a loopity loop which I hope Holter duly recorded (if he was not asleep like I was). I had one other minor electrical disturbance so hope that was enough for them to see. So it's beginning to look like lectins are the root cause of these... -
Duh!!! No, of course not Never occurred to my feeble brain. Now I see it. New_To_This, please copy
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ARCHIVED Need Help With This Board
mushroom replied to modiddly16's topic in Board/Forum Technical Help
Okay, I followed my own instructions, and nothing happened!!! See my post to Scott (admin) here: Hopefully he can sort this out for us, and specifically you. Clicking on each individual post is a pain when you want them all to come up