Jump to content

mushroom

Advanced Members
 View Profile  See their activity

  • Posts

    8,702

  • Joined

  • Last visited

  • Days Won

    98

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by mushroom

  1. mushroom
    Raeshell, WIH has been going on in yer life?? (I don't access da Book). What a hideous set of cirumstances and wot a horrid response from hubby; mine does that too, kick a gal when she's down!! I kick him back!! As for MIL, one's religious practices (and ultimate destination ) is one's own affair even if they are her grandkids you are raising. You...
  2. mushroom
    Hi, and welcome. In addition to the iron, you need to be tested for other nutrient levelsl--Vit. D, B12, A, K, folate, are the most common deficiencies in celiacs. Many of us have problems with hair loss, and it is usually due to lack of the proper nutrients in the body. Even if some of these levels are low normal, they should still be supplemented because...
  3. mushroom
    Quoting myself here, from the first response to your thread.
  4. mushroom
    Something strange going on here. You say you have been gluten free for eight months, had few digestive issues before then, and the doctor now says he can't diagnose you without a biopsy. If you have been gluten free for eight months a biopsy will be useless at this point. You would have to go back on gluten for 2-3 months for a biopsy to be valid, and...
  5. mushroom
    I know where you come from, teemaree, and I am sorry about where you find yourself. Good for you to finally seek some help, and good wishes for your diagnosis and treatment. We'll be thinking of you.
  6. mushroom
    Hey Jess, Happy Birthday!
  7. mushroom
    All been struck deaf/mute with arthritic fingers Or perhaps nowt to say and lookin' to be entertained
  8. mushroom
    Yes, the initial colonoscopy is normally recommended at 50, unless there is some other predisposing factor--family history of colon cancer, blood in stool, that kind of thing. The one at 50 is considered to be a screening, checking for polyps which can become cancerous. I don't think constipation is a particularly predisposing factor...but of course I am...
  9. mushroom
    You said a mouthful there Jeanne!. I feel like Sherlock Holmes with my spyglass People say, "but it's gluten free!" and you say, well, I assume that, it's just that I have to find the corn and the soy and the ??unspecified sometimes lecithin, and the potato starch and the citric acid and the peppers and tomatoes . The good news is that after 18 months...
  10. mushroom
    Hi laughingduck. There is no such thing as a "typical" celiac. That is a mistake a lot of doctors make, but after reading around on this forum you will find we are so varied that you begin to get an idea of why it is hard to diagnose. As for your question, I have my own theory about the mucous, which may belong in a cocked hat , but which is how I...
  11. mushroom
    Hi, and welcome to the forum. First of all, not all celiac sufferers have low levels of nutrients though most do. Secondly, I would not call your B12 and ferritin levels "good". Yes, they are within the so-called normal range, but most of us find that we need to be at or near at least mid-range to feel at our best. My B12 and D were both low normal...
  12. mushroom
    Hi, MissPJ, and welcome to the forum. The gluten free diet does have its ups and downs. Don't give up on it so quickly. You may be deficient in other nutrients too, and these deficiencies may be dragging you down. It took me over a year to discover that I was deficient in Vit. D, B12, folate, and was hypthyroid, and lots of gluten intolerant folks...
  13. mushroom
    Well, I think it is a good idea to formulate a plan of action. But I think the first thing to do is to stop and figure out what you *do* know, before you start testing what you don't know. Make out a list of symptoms, make another column of what tests you have done, trials you have done, meds you have taken, results you have experienced, and what you have...
  14. mushroom
    I would suggest that you get a copy of his results, and post them here on the forum, with the reference ranges the lab uses, and let our forum "wizards" take a look at them. Not all doctors are good at interpreting the tests and not all doctors run all the appropriate tests
  15. mushroom
    I would not advise using soy milk as so many of us are also intolerant of soy also. Many of us also avoid nightshade vegetables, so I am not sure if any one dish would be able to accommodate our needs. Probably as Tiffany says a stir fry over rice would be the safest bet for everyone, using a sauce that does not contain soy. I also second the idea of...
  16. mushroom
    Hi Janie, sorry you are feeling so awful. Yes, there are several levels that celiacs should have checked: Obviously, as you say, ferritin (iron); also Vit. D, B12, folate, also thyroid (TSH, free T4 and free T3, and antibodies). These are the major ones to start with. I have no idea how much these tests cost if you have to pay out of pocket. It is...
  17. mushroom
    My answer would be "yes" to all of the above. I took too long to learn that I needed to have these checked. I was deficient in all, but I did not have osteoporosis Also have your folate level checked.
  18. mushroom
    My goodness, yes, you must talk about it. It is not something to be ashamed of and keep to yourself. Yes, you are drawing attention to yourself, but you do have to get over it, and yourself, and just accept that that is the way it is. And with practice it does get easier.
  19. mushroom
    Those first impressions do have a lasting effect, don't they?? Sometimes it is good to go with your gut instinct; if someone makes you feel uncomfortable it is hard to have confidence in them, no matter how reputable. On the other hand, do you have options with your insurance? Will they cover a "second opinion" and let you go somewhere else? Do you have...
  20. mushroom
    Ground flax seed!!! (slaps forehead) Now how come I didn't think of that? Thanks!!
  21. mushroom
    No, the endoscopy is not a scary procedure at all, only the thought of it is scary. You will be medicated (sedated with a drug that will make you forget the procedure entirely) and will have no consciousness of what is happening. Usually, the only after effect you are likely to experience is perhaps a mild sore throat for a day and most don't even have...
  22. mushroom
    Yikes, they is the same the world over. The day the movers were moving in our tatt the woman from Quality Valuers (assessing our 'rates', our equivalent of property/council taxes) was wandering through our house.."Is this Italian porcelain?" lookin' at me washbasin, and I says "No, it's good ole 'Merican Kohler." What a nuisance that beotch was, getting...
  23. mushroom
    Since I have had to eliminate potato starch from baking I have been severely limited in recipes or trying to find a substitute/replacement for potato starch because so many recipes say to use potato starch, tapioca starch AND corn starch, meaning that all have different properties. Bette Hagman has a lot of flour mixes which exclude potato starch, but in...
  24. mushroom
    Sorghum flour has recently become available in New Zealand, and I suspect we are sourcing it from Oz, so this is probably no longer an issue?
  25. mushroom
    Yeah, but most orthopedic surgeons do not BELIEVE in chiropractors. I was treated very rudely by an ortho when I told him I had been treated by a chiropractor (of course, this Rx was because the orthos had failed to diagnose what my problem was and the chiro fixed it (a different problem--I have had so many, it seems )
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.