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mushroom

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Everything posted by mushroom

  1. mushroom
    I would say that at only one month in it's still too early to expect to have perfect digestion every day. Give it another couple of months of really careful eating and see how you are. So long as it is not something that is happening every day, the chances are that some things your intestines are just having a harder time digesting than others. Sometimes...
  2. mushroom
    Considering the extent of the disease that seems an extraordinarily low figure. Of course, given the diagnostic ability of the doctors, that could be possible
  3. mushroom
    Someone on this forum coined the term "rat poison" for gluten, that every time we look at gluten we see a rat poison label on it, and there is no way we would consider eating rat poison. You could substitute whatever you want, arsenic, Round-Up, dog poop, whatever would completely gross you out or kill you, and give this analogy. Maybe they will get the...
  4. mushroom
    Yes, I am one of those who have not had testing of any kind. Doctors diagnosed IBS, fibromyalgia, hypochondria (wanted to refer me to psychologists/psychiatrists) so eventually I stopped talking about it at all. (I was not one who was incapacitated by my symptoms.) But I did have a family who all suffered from GI symptoms, a sister who went gluten free...
  5. mushroom
    No, it cannot tell you if you have celiac, only if you are producing antibodies to gluten which could represent celiac disease or gluten intolerance. The stool test is usually sensitive to gliadin for 6 months or so even if you are not consuming gluten. If you carry either of the recognized celiac genes it would probably indicate that it was celiac rather...
  6. mushroom
    If your doctor absolutely refuses to test you, you can (a) find another doctor, or ( do stool testing through Enterolab (you will find plenty of info on this site about it). You do not need a doctor to order it, and they will test for gluten, lactose, casein, soy (and some other) intolerances, gliadin antibodies (which is what show up in the blood work of...
  7. mushroom
    Canned tuna and chicken with the pop-tops for protein. Lots of Lara Bars Peanut/almond butters. Crackers. Nuts in vacuum packs. Canned fruits with pop-tops. Sardines. Depends if you are talking about on the road or at home. Some of these things should be kept in the car for bad weather or other emergencies, too, which is why I mentioned the pop...
  8. mushroom
    I second and third the chocolate Lara Bars. I can now find them here although I brought a bunch back with me, and they are my snack when I spend the day in town running errands (I live in a rural area).
  9. mushroom
    Jess, I don't think it matters much whether they can diagnose you as having celiac disease or not. It is obvious that it does not agree with you and that you should not eat it. This is a case where diagnosis does not matter. If your finger kept getting burned when you placed it on an element, would you keep putting your finger on it even though you were...
  10. mushroom
    Sometimes we react to things whose source we cannot identify. I react to gluten-free sublingual B12 but do not have reactions to any of the ingredients individually. I would say if you react to something, just don't take it and leave it at that.
  11. mushroom
    Yes, it could have affected the results. It is recommended that you continue eating gluten up to the day of the scope. Your doctor should have told you this. Each person heals at a different rate and the damage may have been minimal. However, it is not uncommon to have negative biopsy with positive blood work even if you continue eating gluten.. Sometimes...
  12. mushroom
    I love it, and since the author is unknown will borrow it with appropriate attribution By the way, irish daveyboy, same to you!!!
  13. mushroom
    Most celiacs and gluten intolerants who have gastrointestinal problems have, at some point, been diagnosed with IBS. The question is whether or not this diagnosis means anything;
  14. mushroom
    Yes, if you are Vitamin D deficient, 400 IU will barely give you enough gas to get to the next gas station. That is a maintenance dose for those without deficiency. I was taking 50,000 IU weekly for two months, and then every month with 1,000 IU daily as well, until I got back up to snuff.
  15. mushroom
    Jimmie, I am speaking for my significant other now. My wife has a sister who is gluten free and is a real pain in the butt about it. So when my wife first informed me that she was giving up gluten because of her stomach symptoms and psoriatic arthritis (no diagnosis, mind you!!) I was aghast. But I had seen how she was suffering with the arthritis and...
  16. mushroom
    I agree with Jestgar--gorge on gluten at restaurants, at lunch at work, at the ballgame or whichever place floats your boat, but if you think you are having it hard spare a thought for the one who not only can't eat those things but who lives in terror that she will accidentally ingest some through the carelessness or oversight of others, and do try to be...
  17. mushroom
    I have these fainting episodes when I get an extreme gas attack causing severe pain below the breastbone. This is the only link I am aware of to my gluten intolerance. My doctors told me it is due to pressure on the vagus nerve. I get all the typical pre-warnings of sweating, ringing in the ears, visual disturbance, etc.
  18. mushroom
    Sounds like her new doctor is hep. Negative blood work does not automatically rule out celiac disease. There are perhaps 30% false negatives in the testing process. Even if her biopsy is negative and the second set of blood work, I would suggest that she trial the gluten free diet and see if it helps her. Positive response to the diet is also considered...
  19. mushroom
    Well, now I's here too, late as always (don't like getting up in da middle of da night!). But since it is your OH, SO SPECIAL day just wanted to chime in, and couldn't do it any betta than Leesaargh. Hope your birthday is as spectacular as the greeting. Is it too late in the year to indulge in a few mojitos to celebrate.
  20. mushroom
    Often it comes the other way around. People have problems with their gall bladder, some even have the gall bladder removed (unnecessarily sometimes) and they they are diagnosed with celiac. The two conditions often go in tandem.
  21. mushroom
    T'is a very Down Under thing to do, to add the diminutive-type ending to coined words, and for words of activity. My ear has become re-attuned to it, but when I first came back it drove me NUTS. We have yachties, boaties (without sails!) bikies (as opposed to biccies) which the Americans also do as cookies! We attend/play footie (rugby or soccer), we avoid...
  22. mushroom
    For those who love Spam, I am happy to tell you that all that stuff that comes in on your computer can be safely opened--it is GLUTEN FREE!!!
  23. mushroom
    I had always been leary of soy, and now I think of it as mouse poison, reserving rat poison for gluten.
  24. mushroom

    ARCHIVED Hello

    mushroom replied to jasonD2's topic in Coping with Celiac Disease

    BIG, BIG strides you've made there, Jason. You're on your way now, dude. The girlfriends will come later. Just concentrate on the direction you're heading and you'll be right. Coming clean is the best way to go!!
  25. mushroom
    Then there's the parents who know how its pronounced but have no idea how to spell it. So these poor kids end up with all these crazy variants. One caregiver who worked for my MIL was called Renee. When I saw her name spelled, it was Rena. Now I grew up with someone named Rena, Reena. When I told the actual Renee her name was misspelled she was most...
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