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mushroom

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Everything posted by mushroom

  1. mushroom

    ARCHIVED Corn?

    mushroom replied to raen's topic in Coping with Celiac Disease

    [quote name='yolo' date='Oct 5 2008, By the way, how can you tell where the cornmeal/flour comes from?? Especially from NZ? Bea
  2. mushroom
    You say you are a diagnosed celiac. Are you currently on a gluten-free diet (I would assume so, especially as this helped you before)? Constipation (or diarrhea), osteoporosis, arthritis are frequently associated with celiac disease. Other posters have described the kind of pain you are having (run a google search). I would suspect that your problems...
  3. mushroom
    You didn't mention how long you have been gluten-free. Some have immediate relief, others (especially those who were not diagnosed early) take longer to experience improvement. Also, it depends on your sensitivity (see my post in the previous thread about toothpaste). But the short answer is, yes.
  4. mushroom
    Some celiacs are more sensitive and have to be stricter than others. It is mostly a matter of trial and error to find our own level of sensitivity. Common sense would say that the less we expose ourselves to gluten the less likely we are to react. The problem with lipstick, chapstick, toothpaste, is that they all get in your mouth (unavoidable), and...
  5. mushroom

    ARCHIVED Corn?

    mushroom replied to raen's topic in Coping with Celiac Disease

    Corn was the first thing I cut from my diet when I moved to the US because I didn't know then that I had a problem with gluten. It made a lot of diference but was not the whole answer. Then came lactose, and finally, 15 years later, gluten, followed by soy. IMHO, it is the genetic modification of corn that has created problems for those of us sensitive...
  6. mushroom
    Oh, what bad luck Jenny. Will keep you in my thoughts and prayers.
  7. mushroom
    WHAT mymagicalchild SAID: "That made me think: "Your food sensitivies are your enemy" is what I hear in your words. What about if you could shift that to a new attitude: "Your food sensitivies are your best friend and will save your life. Accept them. Embrace them. And use them to discover your own healthy diet." : I have been there, and I do sympathize...
  8. mushroom
    Thre are some of us who can handle casein just fine, but not the lactose. Like you, I have yogurt and cheese every day, but milk, cream and ice cream are still deadly for me (or at least I have not dared to test them lately--maybe one of these days I will try a challenge. I do have a little bit of milk in a capucchino now without problem (10 months gluten...
  9. mushroom
    [quote name='MollyBeth' date='Sep 19 2008, ...I keep trying to talk about this with relatives and they're very dismissive because I had the negative blood test. They're making me feel like I'm a hypochondriac or something... I'm so all over the place and this whole thing is making me sad and I just don't know where to start!! I feel like a sitting...
  10. mushroom
    One of my first horrified label-reading discoveries was gluten in Rose's English Marmalade. That was when I realized that they will put gluten in anything at all for no apparent reason. I guess they wanted it to be thicker!!
  11. mushroom
    Hi Kristina, and welcome to the forum. My story is perhaps not typical because I recognized problems with corn and lactose, and then tested sensitive to soy, long before knowing gluten was a problem. I definitely avoided corn and milk and cream and ice cream, and was soy-lite for years before going gluten-free (self-diagnosed, it runs in the family...
  12. mushroom
    I'm sorry, Gentleheart, I really don't know anything personally about their reliability. The only labs I had heard of were Great Smokies (I had testing with them in the early 90's, now called Genova, I believe) and Enterolab which most on this forum seem to use. I did see Diagnos-Techs mentioned by someone else on the forum, and it is the lab my ND uses...
  13. mushroom
    Wow, that is amazing!! I will take this info to my doc when I get back home.
  14. mushroom
    Sounds like you are describing me. I am mid-60's and my skin is so tissue-paper thin I feel that some day it might not even be able to hold me together I constantly have these red raspberries on my hands and arms--most of the time I don't even know how I got them. Mine started while I was taking Plaquenil for my psoriatic arthritis, and this med is known...
  15. mushroom
    I have had a lot of your problems. Continuous e.Coli UTI's, not cured by antibiotics (solved this problem with cranberry tablets); small skin cuts infecting (just had a shave biopsy and it infected--antibiotic cream very slow to work); can't seem to get enough sleep--keep nodding off watching the olympics. Basically my immune system is shot. Very thin...
  16. mushroom
    I recently had stool and saliva panels done, and was surprised at the results. Good news #1 -- no candida Good news #2 -- no c. difficile, no h. pylori, no parasites Bad news #1: Positive to soy (okay, knew about that one) Bad news #2: Positive to casein (knew about the lactose, but now, bye-bye cheese, yogurt ) Well okay, my naturopath...
  17. mushroom
    Like others above, I think you would do better with a naturopath. I have just consulted one here in Nevada and she agreed with me, now that I am gluten-, soy- , nightshade, caffeine- and lactose-free that I needed a GI panel test, to find out what is going on in my gut. This is being done by Diagnos-Techs in Washington state and checks for yeast overgrowth...
  18. mushroom
    I emailed the url for this thread to my naturopath (new for me here in Nevada) and received this response, which gives me hope that we may get somewhere with my treatment: "This is a very good simple explanation of what links autoimmunity and some conditions with gut permeability and food allergies. This is a highly complex field of food allergens and...
  19. mushroom
    I have done it several times. From New Zealand I moved to London for a year (on my own), then moved to Germany for two years with a girlfriend; married a Californian and lived there for 38 years (northern California in the wine country--probably would still be my first choice for living in U.S.), but got to feeling kinda crowded there so five years ago...
  20. mushroom
    I don't know how this idea came into my head, but it did occur to me that if one were to have a blood transfusion from an undiagnosed celiac donor, is it possible that a leaky gut could allow the gluten molecules to cross the intestinal barrier and get into the blood stream, and thereby "gluten" you? Just wondering. Seems to me if you need a blood transfusion...
  21. mushroom
    I have been sitting and belching (not burping) for over a week and feeling absolutely miserable. Finally dawned on me I started a new med just over a week ago and thought I had checked it out. Well, silly me, it contains both lactose monohydrate and some unspecified "starch". Bet it's wheat. Duh! Yeah, both gluten and lactose intolerant, that's me. ...
  22. mushroom
    Sorry to hear about your double whammy! I don't have an official diagnosis either and have been glutened for the past week. When the symptoms lasted to long dh began asking me if it wasn't all in my head!! Darn, we get that enough from doctors. I assured him it wasn't. Finally feeling better today. As far as the rice in the heating pad, I have a...
  23. mushroom
    A+ for me. Supposedly the kind the mosquitoes like. (I can vouch for that.)
  24. mushroom
    I know what you mean about the sideways knocks. Fighting off the gluten for so long really does impair the old immune system and I seem to catch everything that is passing by. Had flu for three weeks over Christmas, felt good for a couple of days and then blam! acute bronchitis so I coughed for another three weeks. Just got over that and and felt good...
  25. mushroom
    Thank you both for your responses. I think I am too "fresh" to attempt the soy lecithin yet--maybe a little further down the road since I am not ready for the itching yet. Julie, the soyfreesales site does offer some soy- and gluten-free choc. chips. I will order some when in U.S. and then I can make cookies!
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