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mushroom

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Latest Celiac Disease News & Research:

Everything posted by mushroom

  1. mushroom
    Well, the reporter obviously had a point of view which it seems he got across quite successfully. It is pretty bad when a reporter has such a bias. And yes, it does make your blood boil
  2. mushroom
    Welcome, Chris. Eliminating all grains should have gotten rid of most of the gluten, unless you eat processed foods or soy sauce or such. So you have probably been mostly gluten free. If you are gluten intolerant, pizza and beer is not such a great idea What a double whammy! I bet you won't do that again. If you are gluten intolerant, gluten...
  3. mushroom
    Hi Jules, and welcome. Normally it is hard to judge raw scores without the reference ranges that the lab uses. And were these the only tests run? Nevertheless, the Deamidated Gliadin IgA at over 100 is a very high count and that test is considered very specific for celiac disease, so yes, I would say you most likely are celiac. All you need is one...
  4. mushroom
    Put me firmly in the lectin problem camp. They are a bigger problem for me than gluten. And responsible for itches which gluten wasn't. ETA: You can learn more about lectins here: http://www.marksdailyapple.com/lectins/#axzz27V82GF5M
  5. mushroom
    You have to choose your restaurants wisely, make the right arrangements sometimes, try going at off peak hours so they can pay more attention to your food, inform the maitre d', the manager, the waitperson, whoever, of your needs and how to prepare your food, usually order your food without sauces or dressings (or have oil and vinegar on the side for salads...
  6. mushroom
    The reason that the experts are fifty/fifty on the grain alcohols is that probably fifty/fifty of celiacs do or do not react to them. You cannot generalize from yourself as to the way others will react. I have just finished a vodka martini to which I have absolutely no reaction, and I do not tolerate potato or wheat, so for me, enough of whatever has been...
  7. mushroom
    Nothing - recycled stuffed chicken thighs from last night, with mushroom fried rice (also recycled) and something green. One must ALWAYS be green
  8. mushroom
    Yeah, that's me, elderly, on imunnosuppressant medication, COPD... they don't come much higher risk than me.
  9. mushroom
    They do take longer than other tests, especially if they do the EMA, but it really depends on the lab. I have heard of tests that took up to two weeks I know that's not what you wanted to hear, but hey, yours will probably come back sooner.
  10. mushroom
    I get that reaction to amaranth, quinoa, and millet, so don't feel alone. I do tolerate sorghum and buckwheat flours, I think because they are not grains.
  11. mushroom
    The way they do the endoscopy is like a general anesthetic, only safer. They give you medications to make you very sleepy, just like you were under anesthesia, and they give you something else that makes you forget anything that happens, so when you wake up you will be wondering when they are going to do it, only to find out it is already done.
  12. mushroom
    Hello, and welcome. And congratulations on your forensic abilities. If you are starting to feel better, that is a hopeful sign. The rash is quite possibly dermatitis herpetiformis, which is the version of celiac where the antibodies attack your skin. It can be both extremely painful and itchy, leave scarring, and hard to get rid of. Besides being...
  13. mushroom
    Prettier than the tapioca pudding colored with deep turquoise KoolAid they gave me in the hospital to test my digestion. Couldn't help but think of Jim Jones and Guyana
  14. mushroom
    Yes. And to reiterate what GottaSki just said, most people hear "diet" and in their minds it is like a weight loss diet, where you "try" to eat things that will not make you fat, and if you cheat or fail here or there, well you just eat a little less tomorrow. The gluten free diet is not that kind of diet, and this must be explained. It means that...
  15. mushroom
    There is a new drive under way to force companies to label food products that contain genetically engineered ingredients. Many of us react to these products; many more may react in the future because the trials that have been conducted on these foods are totally inadequate, and much of the data on adverse effects in animals has been suppressed. You...
  16. mushroom
    I read somewhere that you should spray the inside of the cupcake liners to prevent sticking.
  17. mushroom
    Or, at the very least, contains lots of lactose. Churning it into butter would remove most of the lactose (although not all)
  18. mushroom
    Thanks for your story, Davina. May I say that your doctor doesn't know that the other 50% of celiacs have constipation, not diarrhea??? You do sound, at the very least, gluten intolerant. I hope you convince someone to test you (tell whatever lies are necessary for this :P because sometimes that's what it takes). And I am a Pinocchio Let us know...
  19. mushroom
    I am finding that the on-line bloggers do not use spell-check that often. Was browsing some recipes tonight and came across these: Simmer to thinken. Geate about 1-1/2 cups cheese (still wondering how to do that) -- and my favorite Slosh the top of the pie
  20. mushroom
    Ya know, I just tried that the other day, now that I can have potato starch again, and they WERE delish.
  21. mushroom
    How many pages???
  22. mushroom
    Your IgA level of 189 would be your total serum IgA, a test which is run as a control to make sure that your body produces normal amounts of IgA. The value of 189 would seem to put you squarely in the normal range.
  23. mushroom
    Hubs and I for a while shared the same PCP. Invariably, if either of us mentioned some new thing that was bothering us, he would say, "You know, my wife had that...." We decided his wife must be a basket case We used to laugh about it all the time.
  24. mushroom
    Many of us here have spent lifetimes seeking medical advice which turned out to be absolutely worthless. You must have seen this if you have read much on the boards. That is the real reason that this forum exists - to disseminate information and links to research that patients are not getting from their doctors. Sad, but true!! Of course, it also...
  25. mushroom
    They never seem to recognize that there is a damned good reason for most of this depression. Depression is normal if your life is depressing
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