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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  2. Since you keep linking to the same site that has a focus on the microbiome, it's clear that you have a strong focus on the topic, but here it usually comes up in relation to untreated celiac disease, thus I've shared the research summaries that we've done over the years on how the two are related. Like many disorders, including celiac disease, it's clear...
  3. SIBO is a common secondary issue in people with untreated celiac disease. Articles in this category cover this: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/bacterial-overgrowth-and-celiac-disease/
  4. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  5. In general I'm all for a formal diagnosis, except in cases where someone gets very sick when they eat gluten, and have already been on a gluten-free diet for a long time and don't plan to eat it again anyway. There seems to be more drawbacks that keep popping up with being formally diagnosed--at least here in the USA. I can testify that it's definitely...
  6. While I understand wanting a formal diagnosis, it sounds like you will likely remain gluten-free either way, even if you should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal N...
  7. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
  8. I forgot, why are you doing the gluten challenge again? I ask only because it sounds like you will be gluten-free either way, even if your test results are negative.
  9. You symptoms could certainly be related to gluten contamination, and for those who are really sensitive it can last days or longer. This article, and the comments below it, may be helpful:
  10. This article, and the comments below it, may be helpful:
  11. Celiac.com 09/19/2024 - Imitation crab, also known as surimi, is a popular seafood alternative made from processed fish paste. While it is often chosen for its affordability and versatility, it can pose challenges for individuals with...
  12. If you are doing great on a gluten-free diet and see no reason to get a formal diagnosis of celiac disease, then it's perfectly fine for you to just stay gluten-free. In the Europe the current protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level...
  13. Yes, low carnitine levels can sometimes be associated with celiac disease, especially in children. Celiac disease can lead to malabsorption issues, which might affect the absorption of various nutrients, including carnitine. Carnitine is important for energy production, and deficiencies can occur if the gut is damaged from undiagnosed or untreated celiac...
  14. It's always best to get any chest pains checked out by your doctor, but as @cristiana mentioned, the other symptoms do sound like they could be related to the gluten, and the chest pains may be as well, but it's always a good idea to mention this to your doctor.
  15. While I understand wanting a formal diagnosis, it sounds like you will likely remain gluten-free either way, even if you should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal N...
  16. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  17. Please let us know how things turn out, and good luck!
  18. We added "gluten-free soy sauce" to make this more clear.
  19. Your biopsy results indicate several key findings that are consistent with celiac disease: Partial Villous Atrophy: This means that the villi (small finger-like projections in the small intestine that help absorb nutrients) are partially flattened. This is a common feature of celiac disease. Increased Intraepithelial Lymphocytes: This indicates...
  20. It looks like the test specific for celiac disease is negative, but your immunoglobulin A is high. Did they do a total IgA test? This is usually done in case you are naturally low in IgA, which can cause a false negative result with your TTg-IgA test. An immunoglobulin A (IgA) test measures the level of IgA antibodies in your blood, but it isn't specific...
  21. This article, and the comments below it, may be helpful:
  22. This is naturally gluten-free, even though it isn't labeled that way.
  23. I agree with @trents, and this article might be helpful. It breaks down each type of test:
  24. If your goal is to get a baseline reading without any outside supplementation in your system, then you could do this, however, I get my levels checked while I am actually supplementing to see where things are. You can have higher B12 levels, as this will nut hurt you, only if the levels are too low will this cause issues.
  25. Celiac.com 09/17/2024 - Dolmades, also known as stuffed grape leaves, are a beloved dish deeply rooted in Mediterranean cuisine, particularly in Greece. These bite-sized delicacies date back to ancient times, where they were often prepared...
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