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lcarter

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lcarter

  1. lcarter
    Here's something else to think about if you are continuing to have problems even though you are religious about staying on a gluten free diet. Celiac disease falls under the heading of a "Malabsorption Syndrome". It is not unusual for people with celiac disease to also have malabsorption issues with one or more of the following: dairy [all factions of milk...
  2. lcarter
    Here's an article from a medical source on the subject of bloating. It sounds like no one knows for sure what causes it. Since celiac disease is an inflammatory disease, it must be an allergic swelling response. Before going gluten free, I have had to go to the ER because my intestines were almost swollen shut [which is a very serious medical situation...
  3. lcarter
    Recently, a new branch group has formed in Panama City, Panama of the international Fundacion De Celiacos. Here is their web site for anyone who might be interested: [url=Open Original Shared Link
  4. lcarter
    VEGETABLE BROWN RICE with QUINOA and AMARANTH This is a very versatile dish as it can be changed easily by whatever vegetables and ingredients you particularly like and have on hand. There are no rules. Sometimes, I add leftover, pre-cooked, diced chicken, pork or beef, or even ground meat. Other times I
  5. lcarter
    I found what you wrote to be very interesting as I had not thought about the continuum concept in those terms. But, the article seemed to be more about the diagnostic decisions made about what is wrong with a patient. Doctors do seem to see things in black and white when it comes to diagnosis. When in fact, there are degrees of illness which doctors do...
  6. lcarter
    I ran across an article by Mark Hyman, M.D. practicing physician a pioneer in functional medicine, which was about another autoimmune disorder, diabetes. Since there is some correlation between celiac disease and Diabetes,as both are autoimmune disorders, I thought what he had to say gave some insight to what we are expierencing with celiac disease. At least...
  7. lcarter
    If you are finding the doctor you go to is frequently refusing to run tests you feel are necessary or not listening to you fully, it might be a good idea to change [primary care] doctors. It is a little known fact that doctors are rewarded by insurance companies for not ordering too many labs or other procedures for their patients. Some doctors are more...
  8. lcarter
    I can relate to the extreme pain your husband was in with swollen intestines and visits to the emergency room. No one ever thought of Celiac all those years, so finally had to figure it out for myself. If we had been born European it is far more likely that we would have been diagnosed much earlier, since celiac disease has been commonly treated there...
  9. lcarter
    I particularly like BRONSON vitamins and minerals products. They are frequently found in medical school supply stores [where medical and dental students buy their supplies on campus], Whole Foods and like places, besides credible pharmacies. I have been taking their Therapeudic Formula and Super B's for many years. Take a look at their formula called ...
  10. lcarter
    There is such a thing as Fructose Malabsorption [the sugar most frequently found in fruit], which is a digestive disorder of the small intestine in which the fructose carrier in enterocytes is deficient. But, do not confuse FM with Hereditary Fructose Intolerance if you look it up on the internet, cause that's a genetic inborn error that shows up in newborns...
  11. lcarter
    Yes, I sometimes get esophagus spasms too, in the area around the adam's apple. It feels like a charley-horse in my neck and hurts like the devil for a few seconds. I can't swallow, have pain, difficulty breathing, and my eyes water. It make me feel like I want to sit up and stretch my neck, tilting my head back. I don't imagine it lasts even 1 minute...
  12. lcarter
  13. lcarter
    What periodic lab tests does your doctor ask for, if any, to check on your celiac disease/GI? I am wondering what further check ups we should be getting.
  14. lcarter
    Jason what an awful experience! I can really relate after the hard time I had in France trying to find enough safe food too, since I have both gluten and dairy intolerance. They put dairy in everything! Discovered that the large markets had deli's with Middle Eastern choices + they had some items that had multi-language ingredient labels as many do here...
  15. lcarter

    ARCHIVED Gluten Intolerant Vs. Celiac

    lcarter replied to Presto's topic in Doctors

    I just don't see this kind of differentiation in the literature coming out of Europe between Celiac and GI. European doctors and researchers have been on the Coeliac band wagon a lot longer than it has even been on the radar in the US. Personally, I am not so sure that there is really that much of a difference between all the symptoms that make up what...
  16. lcarter
    I have a question about the symptom differences between Gluten Intolerance without villi damage, and Celiac, which is Gluten Intolerance WITH villi damage. Are the symptoms the same for both? For example, do both have intestinal inflammation [swelling] as a symptom? What about some of the more unusual symptoms like peripheral neuro problems, seizures,...
  17. lcarter
    Is what we have really "Gluten Intolerance Syndrome"? When looking at the definition of the medical term "syndrome" it sure seems a perfect fit. One person may have the villi blunting, another may not, someone else may have Dermatitis Herpetiformis (DH), some have neurological issues, anemia, etc. There is a whole range of symptoms possibilities and associated...
  18. lcarter
    All of you have some interesting comments and web sites. I really appreciate the feedback. But, still can't help thinking GI is really just a wrinkle of celiac disease, and that it will become obvious after more research is done and more accurate screening tests are developed. [Remember that doctors only "practice" medicine, they still haven't perfected...
  19. lcarter
    I am throwing these questions out for discussion, because I can
  20. lcarter
    Been gluten-free for 3 1/2 yrs [and DF for 25yrs] except for rare accidents. I went on the diet on my own out of pure desperation and frustration with doctors after years of their neglect and lack of knowledge about digestive disorders. The final motivation to hunt for an answer on my own was an ER visit with intestines almost totally swollen closed -- fortunately...
  21. lcarter
    Anyone else with Celiac have sever Colic as a baby? I sure did! I just ran across an article that suggested that Infant Colic "could possibly lead to other gastrointestinal conditions in later life, such as irritable bowel syndrome and celiac disease". Bacteria May Be Connected to Colic Open Original Shared Link Thu Aug 6, 11:48 pm ET THURSDAY,...
  22. lcarter
    I have two additions not mentioned above: Quinoa [a gluten-free grain] and Bragg Liquid Aminoes [helps with digestion, made from soy, used in place of soy sauce as tastes very similar to it]. If quinoa is new to you, as an initiation, try adding it to rice. For example, 1 cup of brown (or white) rice + 1/4 cup of quinoa in your rice cooker. It adds a nutty...
  23. lcarter
    Here is a good definition and discussion on what Peripheral Neuropathy is all about: Open Original Shared Link Fortunately, not everyone experiences PN with connection to celiac disease - when it does occur, it is usually with long standing, untreated and undiagnosed celiac disease. Personally, as far as PN is concerned, I have had Carpel Tunnel surgery...
  24. lcarter
    For years my GP, and then a Gastro, both gave me a prescription for Lomotil with Phenobarbitol to keep on hand, saying that it was IBS. Eventually, I discovered that I needed to quit eating and just live on liquids for 2-3 days. then 1-2 days of white rice and applesauce, followed by gently starting back on a regular diet. It was the only thing that kept...
  25. lcarter
    We discovered the Dairy Intolerance long before realizing the Celiac. I had problems as an infant shortly after coming home from the hospital. Evidently, it never went away and came back with a vengeance in my twenties; it appears to be both dairy factions, sugar and protein. I also have a sugar problem in general. Candies or other sweets cause tingling...
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