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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    Lucid, it means you found your answer. Yeah if eating gluten made us projectile vomit and sweat skunk odor NO ONE would feed us gluten......LOL
  2. ShayFL
    I agree. Get tested.
  3. ShayFL
    Welcome to the world of "accidental glutenings" and "cross contamination". Best bet: Eat at home. Simple foods: meats, pure spices, eggs, veggies, fruits, potatoes, corn, rice (plain) with your added seasonings (not seasoning packages).
  4. ShayFL
    Generally there are no false POS on blood, but many false NEG. I am one of them. I would say, yes, go ahead and get the biopsy because if it comes out POS you will get the dx and know what you need to do to keep yourself healthy for the rest of your life (and avoid auto-immune diseases and cancers associated with Celiac). BUT and this is a big BUT...
  5. ShayFL
    Weird stuff yes: cranky, crying, pooping alot, fatigue, starving no matter how much I ate.....just to name a few. You are in good company.
  6. ShayFL
    Welcome! Of course symptoms can be different. And she would likely test negative anyway because she is so young. Children's test are notoriously inaccurate. Why not go back to gluten-free? You are anyway. And that would make life so much easier for you. And see if the trantrums go away. Also, you can supply gluten-free snacks for your DD for...
  7. ShayFL
    The first time I tested with Enterolab I was negative too. Think about it, if 10 is the cut off range...doesnt 8 seem kind of high? I learned with my thyroid that "in range" didnt mean "symptom free". You have your answer...the gluten-free diet. Rejoice in this and stay the course.
  8. ShayFL
    I had that constant sleepiness. gluten-free wasnt enough. But I noticed when I cut out all grains it went away.
  9. ShayFL
    I have heard that some people respond violently when glutened. You may be one of them. The best you can do is cut out the dairy for a month or so. Eat simple foods cooked at home: meats, eggs, veggies, fruits, safe nuts & seeds and go easy on the grains (even gluten-free ones) and processed foods. Stick to whole foods. Drink lots of water. ...
  10. ShayFL
    I posted a bulletin on My Space to all of my friends and already I am getting responses: Sharon thank you so much!! I have one of these beds and have to get up in the middle of the night and sleep on the couch..suffering horrible asthma attacks and my hubby doesn't believe it. I opened it up and there it was to my horror.......mold!!! This is wonderful...
  11. ShayFL
    Gluten free wasnt enough to rid me of my neuro symptoms, although the migraines went away pronto. The others (vertigo/balance and neuropathy) werent budging. I finally cut out ALL grains and the lights came on.....I started healing. My vertigo is MUCH improved now and the tingling is better. Some days I barely notice it now. It was the "starches...
  12. ShayFL
    It is a correct statement, but it isnt complete. Celiac is an auto-immune disease that is triggered by gluten. It is common for auto-immune diseases to show up after a trauma, major life stress (childbirth, death of a loved one, divorce, etc.) or an infection.
  13. ShayFL
    I agree to make sure the formula is gluten-free. No Malt or Barley derivatives. Call the manufacturer to MAKE SURE. And ignoring a "NEWBORN" for 10 hours is neglect. It just is. This happened after birth not at 2 months. Though at 2 months it would be bad as well. Newborns do not necessarily need a lot of calories but they do need to nurse (cholostrum...
  14. ShayFL
    But no biopsies taken????
  15. ShayFL
    Before taking calcium supplements, read these: Open Original Shared Link You take calcium supplements to protect your bones and prevent fractures, but a recent study suggests they might be damaging to your heart. The study, published online Jan. 15 2008 in the British Medical Journal (BMJ), found that healthy postmenopausal women (average age 74...
  16. ShayFL
    I agree with LMA. Enterolab if you want tests. But it appears you have your answer.
  17. ShayFL
    Did your doctor just do a "visual"??? Did she take samples to be sent to the lab for analysis? Samples from multiple spots? If she didnt, then she didnt do her job right. Have you had a complete Celiac panel? Genetic testing? You can accept your doctor saying that she doesnt think it is Celiac. Or you can do what you have done. The gluten...
  18. ShayFL
    I have had success with "Intestive" made by the "SeaCure" people. Google it. Also 8 - 10 mg Biotin helps. Also look into PepZin GI.
  19. ShayFL
    I know for many they just cant afford it. But when doctors refused to test me for things, or gave a hard time, I just ordered the tests myself through Direct Labs or HealthCheckUSA. Now I have a good doctor who listens. A lot easier on the pocketbook.
  20. ShayFL
    Did your doctor test you for thyroid antibodies??? If no, then you need to get that done. BECAUSE there are different reasons the thyroid hypofunctions and depending on the reason, treatment can be very different. For instance if you have Hashimotos (antibodies) then your thyroid is low because it has been attacked (auto-immune) and if you do not have...
  21. ShayFL
    Yes, we all have VERY DIFFERENT experiences. I will not even go into the 2 endocrinologists that I have seen. I got into trouble in these boards once by explaining my experience with them. I would rather have a veterinarian treat me than either one of those experts in Tampa. I do take calcium. I also know that calcium has to be carefully balanced...
  22. ShayFL
    I did enough research and read enough compelling books to lead me to the conclusion that HUMANS are not designed to eat GRAINS. They are naturally foods for birds and rodents. I was very interested in the SCD diet and that is what I follow 85-90%. The improvement has been striking. This morning I had grain free blueberry muffins that are amazing...
  23. ShayFL
    This just isnt true. My doctor doses by "how the patient feels" the way it was done for years before "sophisticated" lab work was discovered. That fact is that people who can find a traditional thyroid doctor feel better and their hypothyroid symptoms go away. My Mom had her thyroid removed and was dosed by "labs for 2 years and she felt TERRIBLE. Now...
  24. ShayFL
    Ragu - If wheat or gluten are in the ingredients, they will list them. They do not hide ingredients. Care Package: Thai Kitchen has some easy to prepare meals. Does she have access to a microwave? Open Original Shared Link Lara bars Trail mix (make sure gluten free) Pamela's cookies I dont eat any processed food myself, but these come...
  25. ShayFL
    Everyone in this forum that I have seen, who tested POS with bloodwork responded POS to the gluten-free diet. Some doctors would dx Celiac with those two (POS blood and POS response to the diet). It maybe that the damage is not significant yet. Thank goodness!!! She has a chance to save herself a world of misery and auto-immune diseases, infertility and...
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