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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    A lot of Celiac/Gluten Intolerant children are "picky" eaters and "addicted" to wheat. Wheat fills similar slots in the brain as morphine. Opiate receptor-active peptide fragments (exorphins) have been identified recently in casein and gluten hydrolysates.....(Google this and learn more). It is a vicious cycle. Things hurt and the wheat/gluten makes her...
  2. ShayFL
    Im no expert on canker sores. But if this happened to me, I would go get some colloidal silver and swish full strength in my mouth and gargle then spit it out. I would also buy the nasal spray and do 2 squirts up each nose. I would do this three times a day until all clear. But no longer than 7 days. I know there are the reports of people turning blue...
  3. ShayFL
    When we didnt know what Hanna was gonna do and the one before that one we did a little shopping. I bought canned tuna. Plantain chips and fruit that doesnt go bad fast. And my beloved Almonds by "Back To Nature". I was delighted when I called them and they were very up on Celiac and said all of their products are gluten free. Hemp milk. Apple sauce...
  4. ShayFL
    If they also sell wheat, rye, barley and oats in bulk, be VERY CAREFUL as CC is so very easy as someone uses a scoop from one bin and places it in another.
  5. ShayFL
    Raspberry Hazelnut sounds good. I think pecan or walnut meal would be too strong of a taste and too oily. I dont know if you could use gluten-free flour blend. You would likely need to add a binder like xanthum gum. You would have to experiment. I know these ingredients arent cheap and I dont want to be to blame for a flop.
  6. ShayFL
    I also tested under Enterolab ranges. But my IgA is at the very bottom. I have had a POS response to the diet.
  7. ShayFL
    You should have a full Celiac panel done. Some say that it could be elevated due to other auto-immune diseases and that is why you should also have EMA: Diagnosis of celiac disease There is no test yet which is definitively diagnostic of celiac disease. Relief of symptoms or reversion of an abnormal intestinal biopsy to normal on a gluten-free diet is...
  8. ShayFL
    Yes, honestly, if you can get your regular doctor to do the ultrasound and avoid the Endo, this is best. One thing to keep in mind is that some become hypoPit because of tumors that damages the Pituitary that secrete GH. A lot of folks with hypoPit have issues with their thyroid, adrenals and sex hormones. Arent these bodies so complicated.......
  9. ShayFL
    I made these today. A modification of another recipe I found. I made them SCD legal and they are delicous: Ingredients * 2 1/2 cups blanched almond flour (I prefer the flour from digestive wellness over Bob's) * 1/2 teaspoon celtic sea salt * 1/2 teaspoon baking soda * 1/4 cup honey * 1/2 cup oil (I made mine with 1/4 cup...
  10. ShayFL
    I reacted to Quinoa, but not buckwheat. However, for now, I am grain free. And feeling soooo much better!
  11. ShayFL
    Dina...I feel your pain. Were you tested for (H. pylori)? There is a strong connection with this bacteria and gastritis. Sometimes gastritis develops after major surgery, traumatic injury, burns, or severe infections. Certain diseases, such as pernicious anemia, autoimmune disorders, and chronic bile reflux, can cause gastritis as well. Were you...
  12. ShayFL
    Do you normally eat pine nuts without issue?
  13. ShayFL
    Seems you have 2 choices: Keep eating gluten for the 2 - 3 months and stay depressed and tired. But go for a gold star dx. Or eat gluten-free for those 2 - 3 months and see if your fatigue and depression deosnt lift. You may find that other things improve as well (that you were not aware of were a problem because the fatigue and depression can take...
  14. ShayFL
    I recommend getting a protective dust/allergen cover for the new mattress. It has kept mine looking, feeling and smelling fresh and new. I replace the dust cover every couple of years as it does wear out.
  15. ShayFL
    The great thing is that their stuff tastes the best. I buy pre-packaged because I used to work in the Publix Deli (many years ago) and it is not safe at all with regard to CC. Those slicers have to be taken apart at night to get all of the bits out. There is nothing worse than having liverwurst residue on your smoked turkey. So I have avoided...
  16. ShayFL
    Yeah, I have a regular type mattress....but I unzipped my dust protective cover and looked under just to be sure. This thread gave me the creeps.
  17. ShayFL
    Thank you for that Tim. If you read my original post, I was encouraging the biopsy. But I was also letting this person know that they have options even if ALL tests come back negative. I didnt suggest going gluten-free and then getting tests. Tests should be done first. But if doctors throw their hands in the air and say "There is nothing wrong...
  18. ShayFL
    It sounds like you have done some research already. If you buy capsules, you can empty 1/2 out as well to start with a very small dose. One person in here feels that HCL irritated their stomach lining. They were told to take it BEFORE the meal. But if you dont eat immediately you get this major dose of acid with not enough food to work on. So taken...
  19. ShayFL
    It is so hard being a Mom. And the schools dont make it any easier. I know when I put my daughter in pre-school it was so very difficult because at the time I was a vegetarian and did not believe in ANY refined sugar. Everyday it was cookies and candy. And of course my daughter loved those things. But I had to pay the price when I picked her up.....cranky...
  20. ShayFL
    I stand by my original post. I recommended the biopsy for the very reasons you are arguing Tim. I never said that a gluten-free diet dx Celiac. I said that a POS response to the diet is accurate for Celiac/gluten sensitivity. Honestly, Tim, why must you try your best to cause hostility in here with me. I have no beef with you. And I will not...
  21. ShayFL
    Yes, Low TSH with hypothyroid indicates the pituitary is not working properly. I am gluten-free 5+ months now and my Thyroid has not shown any indication of healing. With hashi's it isnt always possible. I do not say this to discourage you. You may be one of the lucky ones and I hope you are. I am telling you this, because it should be monitored...
  22. ShayFL
    I have. I used it for a few months and then my own body kicked in and I discontinued it. If you want to try it, take only 1 capsule with a moderate or high protein meal. Never take with a carbohydrate only meal as this can damage your stomach lining. You dont need all that acid to digest carbs. If you feel a "burning" in your stomach with that first...
  23. ShayFL
    colonoscopy (up the bottom) will not dx Celiac. You need endoscopy (down the throat and into the intestines) with multiple biopsies. Dont buy "new" foods. Just buy basic simple foods that are unprocessed (you can actually SAVE money this way). Instead of gluten-free bread, buy potatoes to bake or rice to cook. Instead of cookies eat fruit. Instead...
  24. ShayFL
    What I would be interested in is all of those "false" POS for other diseases, how would those people respond to a gluten-free diet. THAT would be a very interesting study which would likely be very revealing. It is true that information on the net can be wrong. Even in respected medical journals. History is rife with the medical community having to...
  25. ShayFL
    No that DOES NOT mean gluten is not the problem. She may have "healed" some while gluten-free (even for a week or two). Enough to change her reactions. But it could still be doing considerable damage. If you are going to the GI, you should not have taken her off of the gluten because even though she is eating it now, enough "healing" might have happened...
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