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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED Grain Intolerant, Dairy Intolerant, Legume Intolerant, Now Meat? Oh No...
ShayFL replied to Pyro's topic in Coping with Celiac Disease
HCL - Hydrochloric Acid was the first thing that came to my mind. I went through this about 12 years ago. Stopped wanting meat. And when I ate it.....I really paid for it. So I became a vegetarian and then vegan. But what really turned me around was taking a HCL tab with each protein meal. Over time I started craving meat again and found I could eat... -
ARCHIVED Trying To Figure Things Out
ShayFL replied to Civet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your Mom got constipated because in general most doctors dont know squat about nutrition. Taking 1 isolated nutrient can always cause problems. Calcium MUST be balanced with magnesium, boron, potassium and vitamin D. And if he prescribed the carbonate form of Calcium that would also explain a lot. Calcium Citrate is much better. You can pick up a... -
ARCHIVED New Meds: Thyroid, Progesterone, Dhea
ShayFL replied to Jenny (AZ via TX)'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thyroid hormones are tricky and you need a REALLY good doctor to help you figure it out. Did they test your Ferritin? Low iron stores can make you react hyper to even small doses of Thyroid meds. Ditto if your adrenal glands are shot. Did they test cortisol? MANY people have to start Thyroid VERY SLOWLY. I started on just 1/8 grain (7.5 mg... -
ARCHIVED So I Finally Got All The Results Back From My Testing...
ShayFL replied to Myrna's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Probiotics would be a good call. Did they test your gallbladder? -
ARCHIVED Is It Too Late To For Diagnosis?
ShayFL replied to woken's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have only been off gluten for 2 days.....you can eat it again now and go get the tests. 2 days should not affect the tests. Having an "official" dx is important to some. For others, getting healthy is all that matters. It is up to you which way you want to go. I had the blood tests and they came back negative. I passed on a biopsy. I tried... -
ARCHIVED Trying To Figure Things Out
ShayFL replied to Civet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Were you tested for parasites? That bout of D sounds suspicious with the after affects. -
Could be that....but could also be your wiring. Either way....you gotta resist. Try distraction methods. They are helpful for me. I will throw myself into a project with a specific goal.
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It may not be your fault. Blame your brain chemistry. Some people are "risk takers" and their unique brain chemistry reflects this. I should know because I have that brain chemistry (but not extreme). We actually have certain enzymes and chemicals different from people that do not take risks. Google it! I get the same exact feelings/sensations...
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In the beginning YES. Stick to simple foods: plain meats, veggies, fruits, nut butters, rice, oils, eggs, potatoes, (kids love sweet potatoes.....you can make them like french fries...yum!) etc. Simple spices (no seasoning mixes unless they say gluten-free and not processed in a facility that also processes wheat). I dont eat processed foods, but...
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ARCHIVED Testing For Deficiencies?
ShayFL replied to Green Eyes's topic in Coping with Celiac Disease
Ask for B12, MMA, Folic Acid, Ferritin, Vit D along with the standard CBC. This is a good start and he should feel comfortable with ordering these. Also ask for a full Thyroid panel while you are at it: FREE T4, FREE T3, TSH and both antibodies. -
ARCHIVED Sinucleanse
ShayFL replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications
Well it looks safe as it is just salt and baking soda. You could make your own at home. -
ARCHIVED Where Does It All Go?
ShayFL replied to LuvMoosic4life's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would add the magnesium too. It is gentle. Try a liquid (citrate, malate or glycinate). You can also soak in Epsom Salt bath. The skin does absorb it. But to loosen the poo...you need to take it orally. Up to 2000 mg Vit C a day could help as well. Tons of water of course. George's Aloe Vera juice could also do the trick. Healing. Soothing... -
Welcome Kevin! Thank YOU for sharing. So glad you are feeling better. Stay the course and let us know if you have ANY questions. We are happy to help.
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ARCHIVED Test Results
ShayFL replied to wsieving's topic in Parents, Friends and Loved Ones of Celiacs
You have a legal right to copies of your daughter's medical records. Talk to the right person and dont take no for an answer. This is just wrong. I suffered for nearly 12 years from so many doctors that were flat out WRONG. No matter what they tell you. No matter what the test say. You do not need permission to try a gluten-free diet on your... -
ARCHIVED gluten-free One Year And Crazy
ShayFL replied to Debbie-in-the-warp's topic in Coping with Celiac Disease
They are right. Protein is very important. I am up nearly 7 pounds from pre gluten-free days (as of this morning). I was way too skinny for my bone structure. I should be curvy and I just looked like bones. I feel more feminine now. My boobs no longer look like empty gym socks. I dont like meat for breakfast, so I have nuts and fruit. I eat... -
ARCHIVED Anyone Out There Gluten Intollerant
ShayFL replied to Krystens mummy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am gluten intolerant and had weight loss. I have gained 5 pounds back and actually look "curvy" again. I do not have mouth ulcers though. -
Think Green!!! Green leafy.....green veggies. Magnesium is in the chlorophyll. Beans, black 1 cup 120 mg Broccoli, raw 1 cup 22 Halibut 1/2 fillet 170 Nuts, peanuts 1 oz 64 Okra, frozen 1 cup 94 Oysters 3 oz 49 Plantain, raw 1 medium 66 Rockfish 1 fillet 51 Scallop 6 large 55 Seeds, pumpkin and squash 1 oz (142 seeds) ...
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I got "funky" almond flour from Bob's about 2 months ago. It was rancid. I went to 3 different health food stores and he same lot numbers at the stores were rancid. I pointed it out to the stores and hey pulled them. I then contacted Bob's and they gave me refunds for the bags I had bought. Sometimes food goes rancid for whatever reason. It just...
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ARCHIVED Need Help - Positive Blood Work, Negative Gene Test
ShayFL replied to gfwarrior's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A small percentage (3% I believe) of Celiacs DO NOT have the 2 U.S. recognized genes. Someone on this board had a NEG gene test, but retested and they found it the second time (DQ8) the more rare one. So the genetic tests may not be 100% accurate. Also, other countries in Europe recognize 7 genes for Celiac. As always the U.S. is way behind. If it... -
ARCHIVED Needing Info On Enterolab Results
ShayFL replied to newgfmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Looks pretty SEVERE. Make sure you are keeping him 100% gluten-free and cut out the Dairy right now too. In 3 months try reintroducing dairy and see what happens. I would personally go ahead and cut out Soy too if he doesnt get better gluten-free and Dairy Free. No Wheat, Barley, Rye, Oats or Dairy. Then see where you are in 3 months. -
Actually we are each individual in our abilities to absorb the different kinds of magnesium. But in general Citrate, Malate and Glycinate are good.
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ARCHIVED Celiac Test Neg - Should I Continue
ShayFL replied to jenkay's topic in Coping with Celiac Disease
Since you are already gluten-free, I would stay the course at least for a few months and see if you feel better. At that point, you can "challenge" and eat gluten and see if you react badly. That will be your clue. -
ARCHIVED Pamela Products - I've Been Glutened! Help!
ShayFL replied to DebNC84's topic in Gluten-Free Foods, Products, Shopping & Medications
Did you use an old scratched Teflon pan? That could be it. -
ARCHIVED You've Got To Try This...3 Minute Chocolate Cake
ShayFL replied to RissaRoo's topic in Gluten-Free Recipes & Cooking Tips
We made the original recipe in this thread tonight. I cannot say because I am grain free and just dont tolerate chocolate. But DH, DD and her friend thought they were fun and yummy.