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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    Im doing well with SCD too. It is worth looking into.
  2. ShayFL
    I use it in baking and you can add a Tlb to a fruit smoothie. I know some people mix it half and half with olive oil and use it as a spread.
  3. ShayFL
    Welcome! Removing gluten for 3 weeks can sometimes be enough for regular Celiac bloodwork to be negative. And even your villi could have healed enough to give a negative biopsy. If you want testing, your best bet now is Enterolab. It doesnt matter if you have been gluten free (I think up to a year). If you can afford it, get the genetic test too...
  4. ShayFL
    I am roughly on an SCD diet. I follow it about 85-90%. No grains. I think that is key.
  5. ShayFL
    Have you tried cutting out dairy and soy too? These are problematic for A LOT of celiacs.
  6. ShayFL
    Great thread! Like I said...use sparingly. For special treats now and again. Even breathing damages the body. But we cannot do that sparingly. We have a choice with what we put into our bodies. Just use common sense. Is it natural? Could I find it in this form in nature? If not, dont eat too much of it (or not at all).
  7. ShayFL
    And there isnt really anything you cannot have. A gluten free alternative. Generally the ones you make at home will taste better, but there are some wonderful cookie and brownies pre-made or mixes where you just add liquid. I am grain free. And I still get to eat cookies and muffins. I made blueberry muffins today. They are delicious and taste...
  8. ShayFL
    If lymph nodes stay swollen for more than a week, you should go to see a doctor. It could just be an infection. They can test for that. And if not an infection, they can do a needle biopsy to find out. Please do not let fear keep you from acting. You always want to catch things as early as possible. Likely it is nothing, but you need to find out. ...
  9. ShayFL
    Shan, I just found a clue in your last post. Children are extremely perceptive. Perhaps she has heard or seen your subtle clues that you think gluten-free is yucky. Or maybe they werent subtle at all. What little one doesnt want to be just like Mommy? If it were me, I would eat that Challah with gusto!! Even if you dont care for it as much as gluteny...
  10. ShayFL
    Keep in mind that Agave is a very concentrated source of "fructose". So much more in a tsp of that than an apple. We arent designed to eat that much fructose in one sitting. The body always rebels against what is not natural. Always. The body is smart that way. So like I said, eat sparingly. I eat it now and again in my Coconut Ice Cream from Turtle...
  11. ShayFL
    Welcome Lesley! If you are having an Endoscopy....DO NOT LOWER YOUR GLUTEN amount. Keep eating it. Try to get the scope ASAP!! And then eliminate gluten as soon as it is done. Hope you feel better soon.
  12. ShayFL
    If I ate 2 pints of ice cream and figs.....I think I would end up in the ER. Neem isnt a cure all. But it does kill off things that dont belong in your body. Like I said, I am rotating. The GSE is giving me some D now and again. But nothing like I was before gluten-free and grain free. It is die off. I am going to keep at it. Feeling...
  13. ShayFL
    Welcome! "Looking o.k." might not be enough. Sometimes you have to call the company to make sure. Were they "Processed in a facility that processes wheat?" Nuts can be "dusted" with wheat (or wheat derivatives) so check that trail mix. Call if you have to. Kettle Corn is gluten-free. I checked. How bout that Garlic Salt? Who makes it? Check...
  14. ShayFL
    Your husband should get tested as soon as he can. Full celiac panel and genetic testing. This can give you some clues, but not a definitive dx for your little guy (poor thing). His tests could come up NEG for a long time as in children under 6 their immune systems are not fully developed and they might not show enough antibodies for a POS result. You...
  15. ShayFL
    Ask for "Gene" testing too while you are at it.
  16. ShayFL
    Kibbie what great ideas!!
  17. ShayFL
    Yes it is. It is a healthy diet for everyone Celiac or Not and if your daughters are both POS. they got it from either you or your husband (or both). Try not to look at it as a negative. Look at the positives. Being dxd early means both of your girls can avoid, type 1 diabetes, auto-immune diseases, lymphoma, infertility (and miscarrages) and all of...
  18. ShayFL
    I have basically been following an SCD diet for over 15 years except GRAINS. It was the GRAINS that were keeping me from healing. I am utterly convinced of this now. I spent many years of my life studying food and nutrition. I decided to get a degree at some point since all I did anyway was study and read. A Phd in Holistic Nutrition. But it didnt do...
  19. ShayFL
    And dont forget the most conclusive test of all = POSITIVE RESPONSE TO THE DIET.
  20. ShayFL
    Also with the casein coming in at 7, I wouldnt be surprised if it wouldnt help to cut it out along with gluten for at least a few months.
  21. ShayFL
    Ok...I just went on a WILD goose chase. I went to the www.landolake.com that you said to go to and could not find the gluten-free pound cake. Then I came back and read the thread again. It is: www.landolakes.com need an "s" on the end.
  22. ShayFL
    Im so glad I am old and dont go anywhere where sloppy drunks might be anymore.....LOL That is disgusting indeed.
  23. ShayFL
    They should run antibody tests as well. If those come up positive, then it is another piece to the puzzle for you. If you have the gene(s) and positive bloodwork, many docs would dx you. Cant speak for the govt.
  24. ShayFL
    You know.....I think I will send an email to everyone in my email address book. Maybe someone is having issues and has one of these beds and this could be the answer.
  25. ShayFL
    Emily that cracked me up..... In our house EVERYONE including the dogs would be on the porch.
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