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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED Complications Of celiac disease
ShayFL replied to aprilleigh1624's topic in Parents, Friends and Loved Ones of Celiacs
Please dont take this the wrong way, but are you sure she is 100% gluten-free. No sneaks at pre-school or Grandma's house? You arent feeding her Wellshire Kids Gluten Free Chicken Bites? It was just discovered they are NOT gluten-free and actually have a high level. No skin care, shampoo, toothpaste, chap stick that you didnt make sure is gluten-free... -
I think this is what he was talking about: What is refractory celiac disease? Refractory celiac disease is a rare condition in which the symptoms of celiac disease (and the loss of villi) do not improve despite many months of a strict gluten free diet. Before making a diagnosis of refractory celiac disease it is important to exclude complications of...
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If at some point the swelling seems constant, consider thyroid. Hypothyroid states will cause the tongue to swell. Just another thought.
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ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
My cholesterol was high once. But once I optimized my thyorid meds it has been normal ever since. High cholesterol does not equal heart disease. I have ZERO heart disease in my family history on either side. So when I got one high reading I didnt even think about it. My last labs said my risk is at the very lowest end. My C-reactive protein is perfect... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
I get my flours from here and they have some ready made goodies: Open Original Shared Link Here is another place: Open Original Shared Link -
ARCHIVED Candida Overgrowth
ShayFL replied to Mother of Jibril's topic in Related Issues & Disorders
I had dandruff for about 5 years that nothing touched. It was worst around my hairline right at the front of my head by my face. I was often horrified when I would get all dressed up and then see the flakes. So I would try to get them out only making more appear. Ugh!! I tried ALL of the different shampoos. Nada. When I finally got my thyroid meds... -
ARCHIVED Does Anyone Have Sugar Cravings?
ShayFL replied to whitball's topic in Coping with Celiac Disease
There is an Ayurvedic herb called: Gymnema Sylvestre (Gurmar, Meshasringi, Cherukurinja) In India it is known as the "sugar destroyer". It gets rid of your desire for sweets and if you eat them, they just dont taste good to you anymore. It will lower your blood sugar a bit, so monitor that if you decide to try it. It has a long track record... -
ARCHIVED For Dq1 And Dq3 (have Both Genes) - What Foods Are You Certain Bother You?
ShayFL replied to ShayFL's topic in Food Intolerance & Leaky Gut
Im not feelin bad. Just curious about this. I did try to "add" back a few things and I paid. But I'm over it now. You wont hear me complain often. I just deal! But today I feel pretty darn good. Interesting about cranberries....I've just never liked them. I've known about SOY for about 13 years. Everytime over the years I tried... -
ARCHIVED Best Dog Breeds For Kids?
ShayFL replied to JennyC's topic in Introduce Yourself / Share Stuff
Perfect Tiffany!! We have used most of these with our dogs and all has been harmonious in our home. We have 2 great danes and a standard poodle. You DO NOT want chaos with dogs this size!! Lucy (poodle) is the only one who uses the "crate" in our home and it is a lifesaver. Otherwise she would bark all night in the back yard (we have a doggie door... -
ARCHIVED For Dq1 And Dq3 (have Both Genes) - What Foods Are You Certain Bother You?
ShayFL replied to ShayFL's topic in Food Intolerance & Leaky Gut
I checked my bookshelves and I couldnt find it. It was a very thin book (less than 1/2 inch) and was red and said in white "food allergies" on the front. I got it at the health food store. But this might help : Open Original Shared Link -
Sorry to hear about your friend. But most recover from GB and he is young and healthy and should do well. One of my DH colleagues lost her husband last night. 46. Yes....it can always be MUCH WORSE than not being able to grab a slice of pizza from Pizza Hut!!!!
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ARCHIVED Hypothyroidism And Gluten
ShayFL replied to mysecretcurse's topic in Coping with Celiac Disease
The scary thing is that if your thyroid hormone gets too low....you could die. Google: Myxedema Coma This isnt something to play with or ignore or hope it gets better. A small number of people recover their thyroid function after gluten-free, but many dont. Me included. Armour thyroid saved my life!! I was like you....suicidal. It was... -
ARCHIVED I Need Help,thinking On Ordering Test Online.
ShayFL replied to driedupfish's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with everyone. You should see a PCP. But, with regard to directlabs. I have been using them for over 3 years. They do not list EVERY test they offer. You have to call for some. And now it doenst mean that the ones not listed are expensive. They just dont have a complete listing online. I had a complete Celiac panel through them which included... -
ARCHIVED Genetic Freak? Or Something Else?
ShayFL replied to minton's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have every single 200 people been tested with blood/biopsy/genetic tests? I am one who believes there are plenty of Celiacs out there WITHOUT the 2 U.S. recognized Celiac genes. And I also believe that "gluten intolerance" can be the early signs of Celiac with or without the 2 U.S. recognized genes. Your Mom may not have Celiac based on U.S. criteria... -
Over time I have been forced to give up ALL and I mean EVERY single comfort food I ever loved. I am too sensitive to most carbohydrates now (spike my blood sugar) and make me bloated. Diabetes runs in the family and I cannot afford to eat my old favorites. So I stick to simple, unprocessed whole foods (grain free). No sugar, etc. When I am sick,...
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ARCHIVED Where Do You Shop For Groceries?
ShayFL replied to clnewberry1's topic in Gluten-Free Foods, Products, Shopping & Medications
I mostly shop at my local super market: meats, veggies, fruits, plain raw nuts & seeds, squashes, sweet potatoes.....these are ALL NATURALLY gluten-free. Eggs, Plain rice, most corn meal, corn tortillas, milk/plain yogurt (if you tolerate it) etc. are also naturally gluten-free. I forgo the processed junk. It just spikes my BS and is empty... -
ARCHIVED For Dq1 And Dq3 (have Both Genes) - What Foods Are You Certain Bother You?
ShayFL replied to ShayFL's topic in Food Intolerance & Leaky Gut
I dont have any "true" allergies either except a very low reaction to dust mites. Who doesnt?.....LOL I tried a low salicylic acid diet once. The book claimed that if you didnt respond to this strict elimination diet, that food wasnt your problem. I didnt feel any different on it. I have done ELISA off and on over the years and finally decided they... -
ARCHIVED Which gluten-free Brands Do You Trust 100%?
ShayFL replied to Dietcokehead's topic in Parents, Friends and Loved Ones of Celiacs
Chiquita banana......LOL -
ARCHIVED For Dq1 And Dq3 (have Both Genes) - What Foods Are You Certain Bother You?
ShayFL replied to ShayFL's topic in Food Intolerance & Leaky Gut
Anyone with DQ1 and DQ3??? -
ARCHIVED New Symptoms - Need Help Analyzing
ShayFL replied to Gentleheart's topic in Related Issues & Disorders
I had good success when I had a bout of GERD with "CeaseFire" by Vitamin Research Labs. Open Original Shared Link At first the the taste was kind of strong to me. But I grew to like it even. But it really did get rid of the reflux for me. -
You have a legal right to your lab work. He cannot keep that from you.
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My thryoid levels affect my hair texture. Low thyroid equals kinky course patches. Before you decide your thyroid is "fine" read here: www.stopthethyroidmadness.com Get a copy of your Thyroid labs. If they didnt test TSH, FREE T-4, FREE T-3 and both antibodies, you didnt get adequate thyroid tests. I was told I was "fine" for 12 years...
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ARCHIVED Q's For Those With gluten-free Kitchens/homes
ShayFL replied to SGWhiskers's topic in Coping with Celiac Disease
I discovered my gluten intolerance at the same exact time we were having our kitchen remodeled. It was completely gutted...even new drywall. Nothing left but an empty room. So I decided that the new kitchen would NEVER know gluten. I feel there should be at least one safe place in this world for us and it should be our own homes. DH and DD can... -
ARCHIVED Best Dog Breeds For Kids?
ShayFL replied to JennyC's topic in Introduce Yourself / Share Stuff
Collies are "working" dogs and need "work" to feel satisfied. They will "herd" children if they do not have animals to herd. They need A LOT of exercise and grooming. As for the pound. Dont shop adopt is my motto. But for bringing a dog into a home with children, I cannot recommend RESCUE enough!! They screen the dogs very carefully and have them... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Those were done 6 - 7 years ago. Every cell in the body completely turns over in that amount of time. You are an entirely new person. So you need to test everything again to know what you are dealing with. I know it would be expensive, but it isnt wise to "speculate" with adding additional HCL and bicarbonate unless you know exactly that you need...