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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    I can only say sorry you are feeling this way. I know the dizzies are the worst. I dont slur, but I fumble a lot. Hope you feel better soon.
  2. ShayFL
    My daughter is 12 and she makes her own breakfast and packs her own lunch. That really helps me. I work from home, but it is full-time hours. I try to make a lunch that will make for leftovers for dinner. OR I make huge dinners so I have leftovers for lunch. Leftovers are my best friend. I buy these turkey breasts and roast them, so everyone can have...
  3. ShayFL
    My best friend has pre-diabetes IMO but will not go to the doctor to test it. Her mother had diabetes and died from complications. So I watch my dear friend get major hypoglycemia sometimes. She shovels candy in her face to make it stop. Up and down....up and down. Her poor pancreas is gonna give out. She wont even check it with my monitor. She doesnt...
  4. ShayFL
    I do take a gluten free multi. But it contains soy. It is the only soy I am getting. It is the vitamin E. I have found a rice based vitamin E, so I will be constructing my own multi soon that will not have any of my sensitivities. :0) I will be a job at the health food store reading all those labels, not to mention all those bottles of pills. But I...
  5. ShayFL
    That looks like my list....LOL I hate complication. I hate measuring precisely. I hate word problems. I hate recipes pretty much. I follow recipes very "loosely". My husband always jokes that if I cook something really good we had better enjoy it cuz it wont taste the same the next time I make it. What I have been doing is sticking to simple...
  6. ShayFL
    Some celiacs can tolerate gluten when reintroduced as in they do not have obvious symptoms. But the problem is that the gluten IS doing damage. It is just silent damage for the moment. It can show up later in the form of certain cancers and type 1 diabetes. They are killing themselves by eating gluten. There is "silent" celiac too, people who dont know...
  7. ShayFL
    I agree that trying "natural and uprocessed" oils might be easiest on your body. i.e. avocado.
  8. ShayFL
    I do not have an "official" diagnosis. The genes and positive response to the diet is enough for me. If I have future health concerns, they can treat those. I do not see why having an official diagnosis would change future care. You will need to tell doctors/hospitals that you are "allergic" to gluten. But other than that........
  9. ShayFL
    I find the homemade breads taste yummy. I have yet to try any pre-packaged stuff I like. Better to make at home.
  10. ShayFL
    I make my own soups with Imagine broth. Throw in frozen veggies, meat and seasoning. So easy. You can also throw in par-boiled rice or rice pasta. Freeze for later what you dont eat now.
  11. ShayFL
    Acetone breath I believe they call it. Diabetes breath.
  12. ShayFL
    Im just going by my lab (Lab Corp). 4-10 is weak positive and anything above 10 is strong positive. I only got a (1) on everything. And my IgA is low normal. But I have 2 genes for gluten sensitivity, one of which is DQ3 and DQ1. DQ1 is implicated in nero symptoms without any other obvious cause. This is me, so I am gluten-free and have already...
  13. ShayFL
    I went into an Indian market just yesterday that was next to my daughter's summer camp. Every package said it was processed on machinery with wheat!! Even the plain herbs and spices. So I got out of there. I felt gluten everywhere. Everything felt powdery. Mangos are from the same food family as poison sumac. Many people are sensitive to them. You...
  14. ShayFL
    I think it would have been very helpful if they had done full celiac panels. Also compounding the problem is that each lab has a different range. My lab would put your boys "boarderline". 3 U They should have also done EMA, tTG IgG, Antigliadin IgA and Antigliadin IgG. If it were me, I would wait for all of my results to come back. Your boys...
  15. ShayFL
    Non Dairy Creamer.....remember "natural and artificial flavoring" can have gluten. Animal fur doesnt bother me. Up till 6 months ago we had 4 dogs. 3 Great Danes and a Standard Poodle. The seniors both passed recently (6 mo ago and just 2 weeks ago we lost our 13 yo Great Dane). But I know hair.....LOL And it ends up in the most unusual places.
  16. ShayFL
    What are the ranges?
  17. ShayFL
    I soooo wish I could eat the cocunut flour. But I have tried 3 times and gave me horrible tummy pains for 2 hours after eating it every time. Like crawl into the fetal position and pray for an end. I do fine with coconut milk. I didnt test allergic to coconut on either skin prick or ELISA. But the flour just doesnt agree with me. Maybe it is "too much...
  18. ShayFL
    Teff has a unique flavor, but in cookies with maple syrup and almond butter....it is just yummy!! I want to try tortillas with it, but have not gotten around to it. Ingeri I think it is called in ethiopia. They use a lot of teff.
  19. ShayFL
    Just throwing this in here. I wear contacts. And for years, I wore the extended wear and I slept in them. Only taking them out once a week for a soaking. Well, I started to have some infections with my eyes and went to my eye doctor. The infections were easy enough to treat, but he said that my eyes were "growing new blood vessels" to make up for the...
  20. ShayFL
    I have been studying hairloss lately. Mine has thinned, but my sister's looks really sparse. I have read some interesting research that when Ferritin gets above 40 hair will start to grow back. I am at 19 and am shooting for 50. Taking iron supplements right now. I dont want to go above 50 because lots of research says this can contribute to cardiovascular...
  21. ShayFL
    His IgA is very low. I always question these ranges 34 all the way up to 305. That is quite a range!! So here is my thinking. Let's say someone has IgA of 250 and they are celiac. They are capable of producing A LOT of antibodies. So they get a celiac panel and it comes back positive. But then you have a celiac who has IgA of 40. They are reacting...
  22. ShayFL
    And they should say. So I hope they stay scared. I realize that they cannot list every possible allergen/sensitivity. But EVERY ONE of them (food manufacturers) should have to list: Gluten/Wheat/Soy/Dairy/TreeNuts/Peanuts/Eggs/Corn/shellfish These are the big offenders.
  23. ShayFL
    Yes it did. I would go gluten-free if I were you. With a pos. endo and a pos. response to the diet. You should be able to get a Dx.
  24. ShayFL
    Here is my story: I was born a "blue baby" unable to breath. They were able to revive me, but I was placed in an oxygen tent and remained there for the first 6 months of my life. My Mom did not breast feed as it was just too much hassle for her to do so. I was often sick. Strep throat was my biggest nemesis, next to "stomach flu" which I seemed to...
  25. ShayFL
    I just tried "Nomato". You can find it in the gluten-free Mall. On the left. I think it is under "gluten-free condiments" but not certain. It is pretty good. A very bright red compared to regular tomato sauce, but quite tasty. I poured t over meatballs last night. Yummy!! I find I tend to bake with rice, sorghum, amaranth, tapioca and arrowroot...
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