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cassP

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Everything posted by cassP

  1. cassP
    what kind of meds for IBS ?? steroids?? antiinflammatorys?? please get a complete Celiac panel now (while you're still eating gluten): Ttg Iga & Igg, Anti-gliadin Iga & Igg, Endomysial Antibodies, and Total Iga serum. in europe, when someone has your complaints- they are tested for Celiac from the beginning.. but not in the U.S. the Pharmaceutical...
  2. cassP
    what are you waiting for???? go to a doc- and like said above- get a complete celiac panel, and other basic tests. you do not need to be feeling like this for 2 years... go get answers so you can get better!!!
  3. cassP
    boy oh boy- i REALLY hope you naysayers are right!!! cause i really really LOVE mcd's fries!!!
  4. cassP
    i only deep fried at home once- tried to make my own onion rings with rice flour. i didnt pay attention to how the crumbs mess with everything... but thanks for explaining. i dont have gluten reactions to "gluten free" treats- but ive had an allergic reaction to one of Kinninnick's mixes.. and i generally feel FAT if i eat sugar & carbs. i am...
  5. cassP

    ARCHIVED Foot Pain

    cassP replied to mweinand's topic in Related Issues & Disorders

    i DID in fact read somewhere a few years ago- that some Celiacs can lose some of the fatty foot padding under the feet. i totally had this... completely gone now
  6. cassP
    i agree with a poster above- i think it's something at the grocery store- maybe getting RE-FROZEN. i dont wanna slam W.F. but i have had at least 4 gluten-free Frozen food items with MOLD on them.. and had to throw away i need to speak to the manager at mine- because frozen foods shouldnt be spoiled OY
  7. cassP
    skylark: thanks! interesting blog step: my gene test was only 150$ but ya- its not necessary, just interesting... not as important as the blood test or diet. diet may even be MORE evidential- due to common false negative tests.
  8. cassP
    amaranth is gluten free and it is a grain that is beneficial to the colon my problem was finding an amaranth cereal that didnt have a gluten product in it... and also- im not too great with corn but ya- amaranth is a really good thing
  9. cassP
    i do know that it can damage us even if we dont feel a reaction... i was just curious because i see people on here discuss using different collanders & cooking tools because of CC... and i dont know- maybe i have additional reactions to other carbs... but im WONDERING if there's more gluten in "gluten free" flours & treats than in cross contamination...
  10. cassP
    oh interesting... i knew oxalates should be avoided if you have kidney stones.. but can they cause a reaction for some??
  11. cassP
    ok, so- im not a super sensitive celiac- i do NOT eat McD's fries because i know they contain gluten.. but in the past, i didnt neccesarily have a reaction to them, the way i do from a piece of bread. also- be aware that some individuals with celiac or gluten intolerance dont express ANY gut symptoms. i read only 1 in 6 Celiacs have gut issues. AND...
  12. cassP
    if we're not sensitive to cross contamination- is it ok? or are we still damaging our villi?? AND- ya- it was nice to see when i went to PeiWei that they are educated & serious, and use a brand new fryer for gluten free orders
  13. cassP
    ya- buffalo wings could totally be fine- it just depends on how each place makes it- but it can be done. some blue cheese is made with wheat, and some is not. i hope this list is accurate- if so,im a very verry happy girl... and Red Lobster's 1000 island has always been my favorite!!!
  14. cassP
    DITTO- as long as he reacts well to meats- then a Paleo type diet can be really good for him!!! and for you obviously. carbs and sugars can lead to Insulin Resistance in many people- so its def. worth a try for him!
  15. cassP
    i dont think its a good idea- 1st you already know he has celiac, giving him any gluten is hurting him. PLUS 2nd- i and maybe many other celiacs could tell you- that our reactions to gluten are not always the same reaction. in the past my reaction to gluten could be "rocks in my stomach" or anxiety, or post nasal drip, or constipation. the last time i had...
  16. cassP

    ARCHIVED Tee Hee

    cassP replied to sickchick's topic in Coping with Celiac Disease

    yay for you, but i think you should test out the other nightshades- i dont have a problem with tomatoes, but sometimes peppers bother me... but then again, that could be the fructans... yum, love my tomato sauce
  17. cassP
    DITTO. stay on the gluten & tell your doc u want a complete celiac blood panel. no reason to just be guessing- its just a blood test- your results could give you all the answers you need!
  18. cassP
    do you know what your DQ genes are??? im starting to wonder if Celiac's degree of sensitivity can be related to what their genes are... OR maybe its only related to amount of damage in the gut.??? it's all so interesting to me. before i went "gluten lite & mostly carb free" a decade ago- i DID get to the point where i was having the "D" every day. but...
  19. cassP
    they're sugars that are hard for many to digest. they give me horrible bloating & gas... also all those fake sugars in diabetic foods- like malitol no, they're not gluten i think sorbitol is a corn by product?? idk
  20. cassP

    ARCHIVED I Got A New Doctor Today.

    cassP replied to aderifield's topic in Doctors

    also... i thought it was cool, that my GI this week told me that there's a wealth of information for me in the online community- and i told him "i know- ive learned a lot"
  21. cassP
    i understand, i toyed around with gluten for years because i never got an official dx.... but i had too many symptoms, and some i'd rather not gross you out with. after i got my gene test back- i was like, ok cassie- you'd have to be stupid to just assume that you can eat gluten for the rest of your life. your canker sores also suggest celiac or gluten...
  22. cassP
    sounds like you have a nice doc, and not a dismissive one. i would suggest you ask for a paper copy of your tests. at least all your blood tests. you might even call your doc's office and request copies mailed to you, so you can study it before your visit. i did this- and by the time i saw my Gi this week- i knew everything about my tests- and had...
  23. cassP
    you should do it for sure- it's for your family's puzzle and health. it probably won't affect your insurance. a Celiax DX MIGHT raise your rates??? but again, on a gluten free diet- most of us go back to being regular people with no heightened risks. according to my Gi and most docs-> they dont neccesarily DX you on your genes alone, so i dont think it...
  24. cassP
    everything above poster said is correct- its an amino acid an helps repair your muscles. but it also helps repair your intestines. an alternative doc told my mom to take it at night (preferably the powder mixed with water & a good portion)- and then it's supposed to coat & heal the intestines at night. i have done this before. doing this OR eating...
  25. cassP
    14 is NOT a negative or a normal for your Ttg. according to my PCP & GI's ranges- anything about 10 is a positive. and a >4- <10 is a weak positive. your Iga Serum should be a number within a range- as long as your Iga is between the range- it just means your immune system is normal and your blood panel can be more accurate. there's other tests...
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