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Amyleigh0007

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Latest Celiac Disease News & Research:

Everything posted by Amyleigh0007

  1. Amyleigh0007
    My son was only 41 pounds when he was diagnosed at age 8. He is now 10 and weighs 57 pounds. He gained weight very quickly at first and we were thrilled. He hasn't gained any weight for a few months now. He is still small for his age but it's not so painfully obvious now.
  2. Amyleigh0007
    I get leg pain when I eat gluten. It's more like restless leg symdrome. They ache (especially at night) and I feel like I must move them in order to feel better. I was glutenated last week and my legs have been bothering me for the past few nights.
  3. Amyleigh0007
  4. Amyleigh0007
    Wow! I haven't posted in a looong time and things have changed! Anyway, does anyone know the status of Hungry Jack regular syrup? The ingredients look okay and Smuckers is a brand that will disclose gluten but I wanted to see if anyone had directly contacted the company and gotten a positive answer. Thanks!
  5. Amyleigh0007
    My son has not gained any weight for months now. In fact, he has lost a few pounds so I can sympathize. He gained weight quickly in the first year. Now that we are at 19 months gluten free the growth has stopped and he is regressing. I am so worried. When he had his one year follow up test he was not making antibodies. We haven't changed anything in...
  6. Amyleigh0007
    My son was the first person ever to be diagnosed with Celiac on both sides of the family. I didn't even know what Celiac was prior to his diagnosis. My husband also questioned my symptoms and said my issues might be sympathy pains for our son. I have always had minor stomach problems but it wasn't until my 2nd C-section in August of 07 that my minor problems...
  7. Amyleigh0007
    I finally got a doctor's diagnosis because of my genetic testing done through Entrolab. My doctor did not take me seriously when I first went in for the blood test. It was one year later with my gentic testing in hand did he sit and really listen to me. When he found out I had been gluten free for one year with fantastic results on top of having one Celiac...
  8. Amyleigh0007
    My son is allergic to egg whites. His doctor told me that he should get the flu shot because the flu would be much worse for him then the reaction he would have from the shot. He doesn't have life threatning reactions, he will get heartburn, a stomach ache, and he suffers from EE. But, the years he did get the flu shot (before we knew of the allergy) he...
  9. Amyleigh0007
    When I received my Enterolab results it came with an easy to read explanation of what my results meant. They also have a phone number you can call with questions. When I called I spoke to a lady who seemed very knowledgable.
  10. Amyleigh0007
    Yes! I have seen them at Target, Walmart, and Toys R Us.
  11. Amyleigh0007
    My son's bottom itched all the time! When I say bottom I mean his anal area. Poor kid, it drove him crazy. When we eliminated gluten and went on the rotation diet for the food allergies the itching went away. He had huge constipation problems too. He would have a BM once a week. Your daughter may suffer from food allergies and that may cause the itching...
  12. Amyleigh0007
    Are the miniatures the smallest ones that come in a bag mixed with other kinds? Does anyone know about the small Hershey bars that aren't as small as the mini's? I hope someone knows what I am talking about! I can't think of another way to describe them!
  13. Amyleigh0007
    The cupcake maker that is similiar to the easy bake oven offers gluten free mixes. At least, they did last Christmas when I was looking at them. All the icings too were gluten free.
  14. Amyleigh0007
    Thanks Janet for the link. I should have put it in my original post. The food is really good. My son is picky and he loved what we have had so far. I wish I would have known about this food box sooner!
  15. Amyleigh0007
    I picked up my allergen free food box from Angel Food Ministries yesterday. This was my first time ordering it and I was a bit apprehensive. It included one pound each of frozen chicken nuggets, chicken fingers, chicken patties, and steak fingers. It also included dry mixes of vanilla cake, muffins, pancakes/waffles, and cobbler topping. All that for...
  16. Amyleigh0007
    The October issue of Vegetarian Times has lots of info on eating gluten free. It even has a completely gluten free kid's birthday party menu.
  17. Amyleigh0007
    I have noticed in the last few months that my feet and hands are swollen. I even talked to my mom about it. My dad has heart problems and one of the first symptoms he had was swelling so she naturally freaked out about my swelling. However, I'm only 34 so I don't think it's my heart. I think I might be dehydrated.
  18. Amyleigh0007
    I have two tattoos, one on my ankle and one on my foot. The one on my ankle occasionally itches and swells up. I have no idea why. It is very random. I haven't had any problems with the one on my foot.
  19. Amyleigh0007
    My doctor accepted my enterolab gene test results. He brushed me off a year ago when my blood test was negative but when I recently went back to him with my enterolab report he was fascinated. He said he would diagnose me based on the gene results, a positive response to the diet, and the fact my son has biopsy proven Celiac.
  20. Amyleigh0007
    I know of several people who order the gluten free/allergy free food boxes even though they are not considered "low income". Gluten free food is expensive for everyone, especially the frozen convenient foods. Those are so nice to have on hand when cooking from scratch is not an option. I think I am going to place an order myself! Thanks for the link...
  21. Amyleigh0007
    This year for social studies my son's class switches with the other fourth grade class which means he has a different teacher. This woman has been teaching for 30 years and is set in her ways. She is not flexible in any way. One of the projects she has my son's class working on is a cookie in the shape of our state. The kids make the cookies then use...
  22. Amyleigh0007
    My two-year-old thinks dog food is a tasty treat. We had to move the dog dish to the garage so she would stay out of it. Dog food is loaded with wheat. Could your daughter be into the pet food?
  23. Amyleigh0007
    This isn't weird but it is stupid. Last Christmas I ate handful after handful of a delicious chocolate and peanut butter candy that was on the desk of a co worker. I assumed they were safe. I got very, very sick and when I checked out a bag of the candy at Walmart one of the first ingredients was wheat flour. I no longer assume!!
  24. Amyleigh0007
    For the past several months I have been having the same dream. I eat loads of gluten filled food then suddenly realize I am eating food that is going to make me sick. I then get a feeling of dread and I wake up. Does anyone else have dreams like that? I am not tempted at all by off limits food so I'm not sure why I keep having this dream.
  25. Amyleigh0007
    Search this forum for the specifics. McDonald's fries have been a hot topic for a long time but the end result is gluten free.
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