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nasalady

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Everything posted by nasalady

  1. nasalady
    P.S. Welcome to the board! Hope you start feeling better soon, whether you decide to take Dapsone or not!
  2. nasalady
    Hi Bacon, My husband says that in his experience, although Dapsone helped his DH clear up more quickly than it was improving on it's own, quickly is a relative term. He has had DH since February....most of the worst patches have cleared up, but elbows, knees, and buttocks continue to have smaller eruptions from time to time. Dapsone did help the itching...
  3. nasalady
    At first I tried to cook gluten free for me and "normal" for everyone else. After a couple of months of being glutened every other day, I gave up and the whole house went gluten free. As it turns out, we found out by accident that my husband is also a celiac (when he drank beer for the first time after being gluten free for 2 months!), and that both kids...
  4. nasalady
    I've read on this site that some people have had issues before with Bobs Red Mill products. Good luck! JoAnn
  5. nasalady
    Hi Elizabeth, There's a great Irish pub/restaurant in Costa Mesa that has a gluten free menu with LOTS of choices....it's close to the John Wayne Airport though, not the Long Beach Airport. It's probably at least a half-hour drive from Long Beach. Here's the link in case you're interested. We had a great experience there and our waitress was very knowledgeable...
  6. nasalady
    Jason, The sky is not falling. I think you're just over-reacting to a typical CYA statement from a corporation. You can still eat at Whole Foods....nothing has changed!! They still sell gluten free food that is safe for you to eat. The corporate attorneys are the ones who write these statements....it's all just lawyer BS. If you...
  7. nasalady
    Here is a really decadent comfort-food type recipe from my Gluten Free Recipe Archive blogsite. It's my take on a macaroni and cheese casserole with meat and a veggie added (in this example I have chicken and broccoli, but I also do tuna or salmon and green peas, or hamburger and broccoli, or whatever). The possible variations are endless....you can use...
  8. nasalady
    Hi Tabasco, I generally post a gluten free menu plan (for dinners only) on my blogsite every week. The blog has a link to my own Gluten Free Recipe Archive blog plus links to many other gluten free blogs with tons of wonderful easy recipes AND menu plans. If you're interested you can click on "nasalady" and go to my profile, then click on "Visit My...
  9. nasalady
    Hi and welcome!! You have a smart doctor....stick with him/her. Blisters that leave behind dark purple spots as they heal.....classic Dermatitis Herpetiformis (aka DH). I don't know of anything that acts like that. My husband has DH and his behaves exactly like that. If it's DH, you definitely have celiac disease. ...
  10. nasalady
    Those symptoms could possibly be from celiac disease or gluten intolerance. You should definitely go to a doctor. It would be best to go to a gastroenterologist who is up on the latest info about celiac disease if possible. Go to the "search" box on this site and type in "doctor" and the name of your city (or the closest big city). That will tell you if...
  11. nasalady
    Amen! You go, girl!
  12. nasalady
    It's quite likely that your uncle's issues are related to yours. After the blisters pop, especially if you scratched them open, they can develop scabs.
  13. nasalady
    Oh, sorry, you said they come in bulk and are divided up at the market. You may need to ask to see the boxes they originally came in; the ingredients list should be somewhere on the box.
  14. nasalady
    If the spices are not a mixture, they probably don't contain gluten but be sure to read labels! I tend to buy McCormick spices because they are good at labeling. Their chili powder is gluten free.
  15. nasalady
    Speaking of cherries, I found this very interesting looking recipe for a cherry chocolate cookie tart: Open Original Shared Link I haven't made it yet because I don't have any cherries. I'm working on a batch of banana blueberry muffins because I need to use up the blueberries we have. If you make it, let me know how it turns out! JoAnn
  16. nasalady
    The huge blisters sound like DH. Do you remember what they looked like when they were healing? Typically DH blisters turn dark purple as they heal and the purple spots take a long time (weeks/months) to go away. JoAnn
  17. nasalady
    Two months gluten free is definitely long enough to affect your blood tests....the doctor is wrong. Since you have another autoimmune disease (Hashimoto's) which is frequently associated with celiac disease, at least one positive test for gliadin antibodies, and are HLA DQ2, it is more likely to be celiac disease, not gluten intolerance. Your...
  18. nasalady
    After I was diagnosed in November 2008, I tried to run a shared kitchen so as not to force my husband and two kids to be gluten free but it didn't work. I'm quite sensitive and was constantly being glutened by crumbs. So we all went gluten free in January of this year. As it turns out, the kids responded well to the diet; they both have had keratosis...
  19. nasalady
    My husband and I shop at Trader Joe's and Whole Foods a lot. TJ's is very good at marking their gluten free foods (including potato and corn chips) with a little "g" for gluten free. They literally have dozens if not hundreds of foods on their gluten free food list which you can download from their website. Whole Foods also has dedicated gluten free sections...
  20. nasalady
    Hi mysecretcurse.... FYI, jasonD2 said that taking his clients out to eat is part of his job. I'm grateful that my job does not require me to go out to eat with anyone. But not everyone can choose to never eat out again. Of course, as has been pointed out, it is possible to eat out safely. My husband and I have done so at a few restaurants since...
  21. nasalady
    Hi Kim, If the healing spots on your legs turn purple and take a long time to go away it definitely sounds like DH! I don't know if a dermatologist can still biopsy you but it's definitely worth a try. I hope you get your answers! JoAnn
  22. nasalady
    Although none of us wish celiac disease on anyone, it's wonderful to know for certain! I'm glad you know. As to healing, most people seem to say that by 18 months to 2 years on the gluten free diet they felt 100% healed. Some with minor damage heal much faster, of course. I don't really know how fast the villi re-generate in general, but imagine that...
  23. nasalady
    Hi and welcome! The answer seems to be "yes"....alopecia areata is associated with celiac disease. At least this is what the website of American Family Physician says: Approximately 95 percent of patients with celiac disease exhibit specific Human Leukocyte Antigen (HLA) class II alleles DQA1*0501 and DQB1*0201.4 Patients with type 1 diabetes...
  24. nasalady
    Hi and welcome! Your gastro symptoms sound like celiac, first of all. Which is why you went to a GI of course! And just the fact that the gluten free diet has such a positive effect on you tells you something very important! Like "don't eat gluten"! As for testing you for DH, if you still have some blisters, you can have a dermatologist biopsy...
  25. nasalady
    Lyme Disease mimics celiac too. But you won't generally find the antibodies or the gene markers for celiac disease if it's Fructose Malabsorption or Lyme. And you won't have problems with other autoimmune diseases developing with the mimics either.
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