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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    With that kind of immediate reaction it sounds like you might have a true allergy. That happens when you develop IgE antibodies to a particular substance and it causes your body to release histamine... which is what causes the itching, rashes, woozy feeling, etc... Gluten intolerance is also a "hypersensitivity disorder," but the reactions take longer...
  2. Mother of Jibril
    Yesterday I had my son at the pediatrician's office for his one-year check-up While we were waiting, another mom started feeding her kids "toddler biscuits." Of course, my son... who wants to try everything I'm eating... was immediately interested. The mom asked if she could give him one. OMG!! A toddler biscuit could set us back for two weeks I...
  3. Mother of Jibril
    From what I understand, xantham gum and guar gum are interchangable in recipes. Personally, I avoid xantham gum because it's produced using bacteria that are fed corn (ugggghh...). Guar gum is a starch from guar seeds, a naturally-occuring product. I get a little bit in my coconut milk and it doesn't seem to cause any problems. Here's some information...
  4. Mother of Jibril
    YES... totally possible, and it sounds like a true allergic reaction (IgE). Some people have celiac disease AND a wheat allergy When I get hives on my arms or face it looks splotchy, but my hands just turn solid red.
  5. Mother of Jibril
    You might also want to consider corn... Taco Bell, Chipotle, soda (high fructose corn syrup)... plus how much corn are you getting at home in your gluten-free processed food? Corn is in EVERYTHING and it gives me the same kind of abdominal pain as gluten. I agree about cross-contamination. But... if it doesn't help you to stop eating out, consider...
  6. Mother of Jibril
    I agree that psoriasis is a possibility. Seborrheic dermatitis and candida overgrowth can also cause flaking, but (as far as I know) these other conditions are not itchy. They also respond to different treatments (like anti-fungal shampoo). Psoriasis is itchy because your skin cells are turning over very rapidly... every few days instead of once a month...
  7. Mother of Jibril
    Taste-wise, my favorite non-dairy milk is almond milk You might also be able to tolerate goat's milk (and sheep's milk) since the proteins are different. Some people don't like the taste, but IMO goat's milk yogurt and cheese is fantastic! Unfortunately, as you've already discovered, a lot of the vegan "cheese" still has casein. That's the culprit you...
  8. Mother of Jibril
    Potassium is tricky, because it's not a typical vitamin/mineral where you can just add more. From what I understand, sodium and potassium are the two main electrolytes that control the flow of water in and out of your cells (osmosis). If your potassium is low, then your sodium is probably high (and vice versa). One of the symptoms of Addison's disease...
  9. Mother of Jibril
    The greatest risk factor for developing celiac disease is having a first-degree relative with the disorder... so kudos to you for getting your sons tested! No big surprise that your son has one of the DQ "celiac" genes, but a blood test is required to tell if he actually has celiac disease. I assume that's what the appointment will be about. If it comes...
  10. Mother of Jibril
    Tea bags have traces of corn?? I guess I never thought about what they might be made of...
  11. Mother of Jibril
    Here's an interesting link about how mold is used to process chocolate: Open Original Shared Link Yesterday I made a chocolate cake (gluten-free, casein-free, corn-free!) for my son's first birthday, so today is the start of my new chocolate-free life As much as I really HATE to get rid of it, the mold IS a problem. Plus... just about all chocolate...
  12. Mother of Jibril
    In my case, the allergies didn't show up until after I went gluten-free. In August I had some allergy testing and not one single thing showed up... I didn't even have any welts to measure. I've been off gluten for six months now and I'm really, really strict! I don't eat at restaurants (well... I get a cup of hot water and use my own tea bag from home...
  13. Mother of Jibril
    Hmmmm.... Are you talking IgE allergies or IgG? When it comes to IgE allergies, it doesn't matter if the allergen is touched, inhaled, or ingested... any of these pathways can cause your body to release massive amounts of histamine. It all depends on how sensitive you are. If your symptoms are minor... hives, itching, runny nose... and you really...
  14. Mother of Jibril
    Welcome to the group! Our stories have a lot in common. Five months after my son was born (third pregnancy) I was diagnosed with autoimmune hypothyroidism. Then I figured out that I'm intolerant to gluten... and then corn... and then recently (after a scary anaphylactic reaction) I've discovered that I'm allergic to peanuts, almonds, celery, parsnips...
  15. Mother of Jibril
    My alkaline phosphatase was elevated before I went on the gluten-free diet, but it's now back to normal (thank goodness!). Elevated liver enzymes indicate stress on the liver, gallbladder, and kidneys... probably from all the undigested gluten and other nutrients your intestines are having a hard time absorbing (due to the damaged villi).
  16. Mother of Jibril
    About two weeks ago... out of the blue... I had a severe allergic reaction to something. Hives, diarrhea, vomiting, terrible itching all over my body... I ended up calling 911 and going to the hospital. Very surprising, because I had some allergy testing (IgE) back in August and nothing turned up. So here's what turned up today: almonds, peanuts, four...
  17. Mother of Jibril
    YES... when my son had meningitis last year, I was sooooo grateful for modern medicine. If you're having an acute medical crisis, the United States is a great place to be! What we could definitely improve on, however, is preventative care... and treatments, screening, etc... for people with autoimmune disorders.
  18. Mother of Jibril
    I agree that you should keep looking! Another thing you might want to consider is "mastocytosis." The most common form is when you have too many mast cells in your skin (causing constant hives), but you can also have too many mast cells in your bone marrow, lymph nodes, liver, spleen, and digestive system, causing lots of problems that are similar to...
  19. Mother of Jibril
    Welcome to the group! IMO, you have two options at this point: 1) Stop eating gluten 100% and assume you have celiac disease 2) Keep eating gluten, get tested for celiac disease on a regular (probably annual) basis, and hope that the damage isn't too bad by the time you get a positive result I'm sorry your Dr. wasn't able to give you a clear interpretation...
  20. Mother of Jibril
    So... I got the results on my ferritin this morning. 47. Could be better, but not bad. What now??? I'm still tired I was really hoping I could find a simple answer.
  21. Mother of Jibril
    I'm sorry it took so long for your doctor to respond!! This website has really great information about vitamin D, plus links to research on just about every aspect of vitamin D you can imagine: Open Original Shared Link
  22. Mother of Jibril
    By definition, celiac disease is an autoimmune disorder that causes damage to the villi in your intestines. A stomach biopsy can't rule it in or out.
  23. Mother of Jibril
    Hi Crystal, What were the actual numbers on your blood tests? The reference ranges are designed so that you only get a "positive" result when you have obvious damage. However... you can have antibodies long before the damage is obvious. It's not black and white. For me personally, the genetic test explained a lot of things about my family history...
  24. Mother of Jibril
    My guess... and I'm not a doctor... is that your daughter has something else going on that's related to celiac disease. Maybe it's something simple like a vitamin/mineral deficiency. A good place to start would be to ask a doctor for a CBC, a CMP (complete metabolic panel) and to check her B-12 and ferritin... it's very common for celiacs to have...
  25. Mother of Jibril

    Hi mother of Jibril, I am logged on as DNP student currently working of my dissertation on celiac disease. Gathering data to create an awareness of the effects of celiac disease on families. Your posting raises some interesting areas to pursure. I would like to include it as part of the qualitative research with your permission. If so, please email me directly at doeykelly@aol.com. Thanks HK

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