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wschmucks

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Latest Celiac Disease News & Research:

Everything posted by wschmucks

  1. wschmucks
    YES-- There is a HUGE connection. 1 out of 100 people have Celiac, but 1 out of 10 people with Lyme also have Celiac. The way that the Lyme bacteria goes through your body confuses your immune system-- creating auto-immune disease, like Celiac. Lyme disease is not an easy thing to test for, some people go years without being able to get a positive blood...
  2. wschmucks
    Hi there, First of all if you are still symptomatic of hypo then its VERY possible your medication is not adequate regardless of what your Dr says. A lot of people need their numbers to be above the range to be symptom free-- and in my book if you have symptoms then the issue was not resolved, which is dangerous for your health. Another thing is the levo...
  3. wschmucks
    Hey Guys, I dont eat any grains and usually use almond butter or coconut flour for my baking. I was wondering if anyone has used the Trader Joe;s Almond Flour? It says its make on the same equipment....but I'm not very sensitive at all..so I'm thinking of trying it out. Anyone have any experience with it? Thanks!
  4. wschmucks
    YES. Half my hand or feet would go numb for hours-- totally numb it was sooooo weird-- then I was diagnosed and I've never had it since. I didnt think it was related until I read about it and made the connection. We forget how everything is connected :-)
  5. wschmucks
    I'm not a Dr-- but I say no. Thats the difference between Celiac and intolerance/ allergy; Celiac causes intestinal damage but intolerance does not. If youve been gluten free and you really feel you've improved dramatically then keep doing it! Dont look to a test to tell you what your body is already telling you. Once youve reached a level ground health wise...
  6. wschmucks
    Hi there! First off let me tell you not to second guess yourself. Dont let people make you think youre crazy. Your feelings and concerns are perfectly valid and if you dont listen to your body you WILL pay for it later. OK so the blood test is very unreliable. You can have Celiac and have a negative blood test. So what you need to do is have a biopsy (make...
  7. wschmucks
    Well it takes several months for those anti-bodies to go down. So you could take it now, knowing it will be elevated or wait another 2-3 months...just dont get glutened again. I've had those clusters and didnt react-- it was probably a bad batch (too bad cause they're pretty good!)
  8. wschmucks
    well I would think the problems with that would be that there is no actual biopsy if there is only a camera used. The biopsy is examined under a microscope to check for villi damage, its my understanding that this damage is very hard to see with the naked eye (which is why an endoscopy isnt used alone, the biopsy needs to be taken during endoscopy). It just...
  9. wschmucks
    Yes, Jelly Bellys are gluten free! I have not checked within the last few months but I have not heard of any ingredient changes :-) so dig in!
  10. wschmucks
    Yes I agree with the last post--TSH is good, BUT you need your Free T3, T4 and Thyroid Anti-bodies (for hashimotos) tested. If your Dr wont test for them get another Dr, because it is impossible to be properly diagnosed without those tests. It would be like testing for a wheat allergy instead of for Celiac, close-- but no cigar.
  11. wschmucks
    It sure sounds like you have Celiac. Get to a good GI pronto and demand a Celiac panel blood test. The pins and needles is a big tip off, I had the same thing too-- my finger or foot would get totally numb for a few hrs (soo wierd!). Take it really seriously though, you need to get tested. Also an idea for breakfast-- do you think maybe you could do a protein...
  12. wschmucks
    Yes-- very much NOT the same thing. To be honest since your anti-bodies are literally 0, I would say that a biopsy would be pretty useless. If anti-bodies were boarder line or something Id say do it. The biopsy test isnt the most fun to prep for or do. So if you feel better being gluten free, keep doing it and see if it keeps helping. Also for insurance...
  13. wschmucks
    When I did the test i was light on gluten for about 6 months-- but really loaded up before the test for 6 weeks-- BUT that was for the biopsy. Are you having a biopsy? I'm not sure how that works because hes so young. I'm sure youre aware that the blood test can be iffy as a sole source of diagnosis. Heres what I say: Gluten load him for 3 reasons, 1. if...
  14. wschmucks
    Well there are a few things that you can do. First if youre taking psyllium I would drink a lot more water-- especially cause you work out every day (im a runner too :-)). I really would double your water intake. Also how much magnesium are you taking and what type? For me I have to take Citrate and about 1,600 mg for it to work at all. Another thing you...
  15. wschmucks
    well the alcohol might have gluten... and it doesnt say if its distilled. Do we still say gluten free?
  16. wschmucks
    ok...so im not sure if creme de menthe is ok-- there is not information in the bottle regarding its origins or ingredients. Anyone have any ideas?
  17. wschmucks
    I actually just found a clinic started by one of Dr Oz's colleagues, who personally battled chronic fatigue syndrome to the point of being homeless. Its the Fibromyalgia and Fatigue Clinic (u can google it)-- there are about 10 nationwide. Im going to check it out cause ive been battling this for the past few years and have been bed ridden for 4 months. Might...
  18. wschmucks
    There is a whole thread on this site for the SCD. I have been gluten-free for over a year and can still not tollerate raw food-- so that would not be the one for me. Many of us do not have the enzymes necessary to break down the raw food, regardless of supplements or enzyme rich diet. It is actually a chineese medicine norm not to feed a sick digestive system...
  19. wschmucks
    Diddo on the Thyroid. Go back and insist (tell him you know he doesnt think it would be necessary, but you really need to do it, just to east your mind). My TSH has always been very normal, but if you test my Free T3-- its low, so I am hypo. If you dont test the Free T3 my results look perfectly normal...like every Dr told me for years. I would google: ...
  20. wschmucks
    there was a recipe some where here-- I havent been able to find them commercially either :-(
  21. wschmucks
    You have tp be 100% gluten free for several months to notice a difference and it takes about a year or more to heal the gut, so going gluten free for a little bit and cheating when at a friends house really doesn't qualify as being gluten free long enough to give your body a chance to really improve and heal. It isnt uncommon to have symptoms several months...
  22. wschmucks
    I wouldnt freak out-- Just go to a good GI and have them do some tests: lower sonogram will check for ovarian cysts or any internal abnormalities that may cause obstructions. I was terribly constipated for years with nothing helping and it turned out my thyroid was within "normal" limits-- but it wasnt optimal. Once it was treated the constipation has almost...
  23. wschmucks
    Carmel coloring is gluten free in the US-- even if it is manufactured outside of the US it has to match US standards to be served in the US. So i wouldnt blame the carmel coloring. I go to Starbucks all the time and have no problem. Things that DO have gluten there is the Tazo Green Ginger tea, the vanilla in the shakers and sprinkles.
  24. wschmucks
    I agree on the SCD she should def try it. Some people with UC or Chrons cannot tollerate gluten simply because it is harder on youre intestines. if your daughter was dx wiht chrons/ UC with a small bowel follow through I cant imagine it being misdiagnosed (meaning celiac would never look like chrons on a small bowel follow through). It is very rare to have...
  25. wschmucks
    i agree on the rice cakes. It would be best to stay away from anything that comes out of a box for awhile. To be honest-- it might be nothing youre eating. Youve only been gluten free for 2 months-- usually it takes between 6-12 months to have a real difference. So be VERY careful with what you eat or it will just take longer.
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