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heatherjane

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Latest Celiac Disease News & Research:

Everything posted by heatherjane

  1. heatherjane
    Woodwinds rule, Brass drool. Does that remind anyone of middle school band? Shortly after getting diagnosed, I threw out my old reeds that I'm sure could have absorbed gluten if I hadn't had a chance to brush before playing. I disinfected my mouthpiece too. I love to play, and there's no way I'm getting glutened from it!
  2. heatherjane
    If this diet is a marketing fad, it's a cruel joke. After all we have to give up in our diets and alter in our social lives just to be healthy, it better NOT be! I've found with family members that a lot of it is just patience and continual education. My mom has been supportive from the beginning, but I don't think she's had a true grasp of how serious...
  3. heatherjane
    I emailed Yamaha, which is the brand I'm currently using, and a customer service rep emailed me two PDFs of the MSDS (material safety data sheets) for their cork greases. The one I'm using is made up of Petrolatum, synthetic wax, and tallow blends (animal fats, i guess), and wintergreen scent. The sheet for the other one, labeled "organic", says Vaseline...
  4. heatherjane
    The website doesn't specify, so I assume it's all of them. (I live in KY, but there's no mention of state or locality at all on the site.) I may just try to show up around that time and see what's up.
  5. heatherjane
    ...And speaking of Meijer - looks like they're having a Gluten Free Informational event, Saturday 10/24, 10am-1pm! Open Original Shared Link
  6. heatherjane
    Since you're shopping at Meijer, they do list the allergen info on all their store brands online. Open Original Shared Link Scroll down under the section labeled "Meijer Brand Gluten Free Products and Allergen List", and click on the link that says "View List Here". They aren't name brand products, but are usually cheaper and just as good. Plus...
  7. heatherjane
    Kraft (which includes Oscar Mayer and Nabisco) has good labeling practices. According to their website, they will clearly list any gluten ingredients, and they seem to have a decent understanding of celiac disease. Open Original Shared Link
  8. heatherjane
    Thanks for your input. I called the manufacturer today and the lady on the phone said that it's "completely gluten free". Guess I'll have to go with that.
  9. heatherjane
    Going for my 2nd EGD/colonoscopy this week; this time doctor prescribed HalfLytely. The ingredients for the solution seem to be ok, but I was wondering about the bisacodyl tablets and flavor packs. The flavor pack ingredients list the obscure "natural flavors". I found a old list online from 2007 that indicated HalfLytely as being gluten free. My thought...
  10. heatherjane
    I think the point of all this is that when it comes to celiac, sometimes we have to take our doctors' advice with a grain of salt, unless they've proven their research and knowledge to be trustworthy. I've read and heard that since celiac was once considered rare and has no cure other than diet restrictions, that most mainstream docs are simply under-informed...
  11. heatherjane
    I agree with you. I'm wondering if it's partly because some people are just trying to find excuses to get out of serving. (I'm honestly not pointing fingers here, just making a general observation. I'm sure some people have legitimate reasons for requesting exemption.) When I served in a jury pool about a month ago, so many of my fellow jurors did nothing...
  12. heatherjane
    I think it could vary by state, but I was in a jury pool for two weeks about a month ago (in KY), and it was no big deal. They gave us regular lunch breaks, which allowed us to leave the building or just eat what we brought with us. The jury administrators did their best to make our service worthwhile, since it is in deed a service to the local government...
  13. heatherjane
    I was diagnosed this past January and just got my antibodies retested two weeks ago. I'm 75% improved, but I know it's been a slow process. Just give it time. It's too early to freak out. As far other places where gluten can be, you may want to check any lip products, shampoo, medications, vitamins...those things can be easily overlooked. Have you...
  14. heatherjane
    Cool - thanks! What is NIH? I'm assuming it's online somewhere?
  15. heatherjane
    I know this may sound a little random and weird to some, but is there any way cork grease could contain gluten? I've played clarinet for years, and realized the other day when I was putting my horn together how easy it is to get the grease on my hands, and sometimes on the mouthpiece. The ingredients aren't normally listed on the tube...the only thing I could...
  16. heatherjane
    Just my two cents, but I would complain to the hospital that sent your records to the wrong fax #. That is a major violation of HIPAA policies. I work for a health insurance company and it is constantly drilled into our heads about how careful we have to be w/ private health info. Hospitals/Dr's offices are held to the same standard. Hang in there - tomorrow...
  17. heatherjane
    Please do not turn to self destructution and/or suicide. It is NOT worth all of that...this disease is tough to get the hang of at first, but there is SO much more to life. You CAN and WILL get through this rough patch. Remember that you are not alone and there are many people out there who can help you. I agree with GottaSki - find a local support group...
  18. heatherjane
    I was diagnosed with celiac in January and have been gluten-free ever since. (My original numbers were all way over 100, but I don't know specifics.) Last week, I had my antibodies retested. My doctor himself called me this afternoon and left a lenghthy voicemail about my progress. My numbers are down 75%, and I am elated to hear this news because of my...
  19. heatherjane
    The next meeting in Louisville is scheduled for Thursday, October 8th, at 7pm. The topic is holiday meal planning. If you're coming into Louisville via I-64 West, take the Watterson Expressway (I-264 West), and take the Breckenridge Ln NORTH exit. After you exit off of 264, you will eventually cross over Dutchmans Lane. (You will see a McDonalds, Wendy...
  20. heatherjane
    It's a struggle for everyone at first, and some of us take longer than others to start feeling better. The adjustment to this new lifestyle, in general, can be a challenge in itself. You'll get through this tough part. Surround yourself with good people (if you can find a local support group, that's even better) and take it one day at a time. Just remember...
  21. heatherjane
    I was curious about one of their products that is not a part of their gluten free organics line, and here's what they had to say: Thank you for your interest in Desert Essence. We do not use gluten in our Desert Essence products, however we do not state that they are gluten free because the facility where they are produced is not free of gluten. The...
  22. heatherjane
    I've been going to the one in Louisville at Baptist East and it's a great group with a good number of people. We meet once a month on a Thursday, 7pm. Every week a different topic is presented, and there's always food. We just had a picinic in August and will have a Christmas get-together over the holidays. If you're nearby, hope you can make it...
  23. heatherjane
    I'm sorry to hear you all are having such a tough time. If she really has celiac, she should start feeling better after eliminating gluten completely from her diet. I was diagnosed w/ celiac last January after a year or more of annoying digestive issues and have been gluten-free ever since. Basically, "gluten free" means you completely abstain from any form...
  24. heatherjane
    I've been gluten-free since January and neurological symptoms have also been giving me trouble. I've had bouts of dizziness, facial tingling, and I even passed out once this summer. My hunch is that it's something related to celiac, but I'm not sure. I can't imagine where I'm getting any gluten....I'm EXTREMELY careful. I've had all my nutrient levels checked...
  25. heatherjane
    Article on MSN today about food allergies/intolerances with a link to an explanation of celiac disease and gluten free diet Open Original Shared Link
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