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GottaSki

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GottaSki

  1. GottaSki
    Doesn't sound like gluten is the issue, yet there could be a food or environmental trigger. Have you visited an Allergist for blood and skin prick allergy testing? If all was negative, try a food journal.
  2. GottaSki
    Those numbers are very pretty The difference since removing gluten is important ... you could probably teach the dietician about living gluten-free! I'd wait until your six month mark for the next panel. Great work
  3. GottaSki
    Yes....my tests are much more expensive when ordered by doctor and billed to insurance. The $200 panel is what I found when I researched alternatives to obtaining doctor's orders. I think it was from USHealthCheck...which utilizes a network of labs nationwide. Edited to add: Just checked...current price even lower than back when I found...
  4. GottaSki
    Welcome! Simon says....remove ALL gluten today In all seriousness....all of your health issues could improve or completely resolve living gluten-free and you have come to the correct community...we understand. Far too many of us went misdiagnosed/undiagnosed for decades while our health continued to decline. The transition can be tough....the...
  5. GottaSki
    You should explain to your primary exactly what has happened. That the GI found atrophy but felt it was not celiac based on the single biopsy. You are planning to remove gluten to determine if there is an issue with gluten whether it be Celiac or NCGS. Based on information from the major Celiac Centers (UoC, Univ of Maryland, UCSD and many more) you understand...
  6. GottaSki
    You need to be ingesting gluten for any celiac antibody test. Many folks become even more frustrated than you have been this past week when they remove gluten and then find out the tests are invalid. Even a gluten challenge of 6 to 12 weeks is not as accurate as the data you would receive before initially removing gluten. I agree with Paul....try...
  7. GottaSki
    Thanks Addie A bit creeky and moving slow today...but moving
  8. GottaSki
    Then living gluten-free sounds like a wonderful plan to improve your health! Wishing you much more improvement...do learn about cross contamination and eating out safely as most folks become more sensitive to minute amounts of gluten as their time gluten-free increases. This thread has great info: https://www.celiac.com/forums/topic/91878-newbie...
  9. GottaSki
    We were up and out early too...but I finally had a full day We hit the road...Made it to Morro Bay where the hubs got on his bike for the last 45 miles while I drove those last few miles to check in at Ragged Point (just south of Big Sur). Dinner tonight was my usual chicken, sweet potato, asparagus, garlic and cilantro, but eating it in a beautiful restaurant...
  10. GottaSki
    Right 30% of population has one or both genes. Approx 1% of poplulation has Celiac Disease. Last numbers I read -- 6% of population has Non-Celiac Gluten Sensitivity.
  11. GottaSki
    Thanks Nicole
  12. GottaSki
    Welcome Marina! Have you been tested for Celiac Disease? If not, it is a very good idea to do so BEFORE removing gluten is removed. Once gluten is removed the blood tests are not valid. But you are correct ..... Living gluten-free can indeed improve many AI disorders
  13. GottaSki
    Guidelines have indeed changed a great deal since you were diagnosed. All of your children should be tested every three to five years (sooner if symptoms arise). For your son with the recent panel....request written or electronic results before you head to the GI. Make sure the following were included to save time by having as much info for the GI...
  14. GottaSki
    Journaling food & symptoms is a big undertaking....thankfully it is worth the effort to weed out possible dietary solutions to health issues. There is no need to replace dishes, utensils or most cookware. Nonstick pans, toaster, cutting board, colander should be avoided. If you haven't - give the Newbie 101 thread a good read. I'm on mobile...
  15. GottaSki
    Now that testing is complete....I strongly suggest you remove all gluten for at least three months due to the inflammation of the small intestine and symptoms. Non-Celiac Gluten Sensitivity has many of the same symptoms as Celiac, but there is no test other than elimination of gluten to monitor for symptom improvement. Hang in there
  16. GottaSki
    Oops...my misread...I thought you said sister... Correction...If your SIL is positive all of her siblings and your children should be tested.
  17. GottaSki
    Yes, with her symptoms she should be tested for Celiac Disease - there is no s in Celiac If possible find out if your sister already tested positive for any of the celiac antibody blood tests. If those or her biopsy indicate Celiac Disease, both you and your daughter should request a complete celiac antibody panel. Good luck to your family
  18. GottaSki
    You are welcome. Do try to get some rest. For now close your eyes...breathe in through your nose and out through your mouth...then repeat....and again. And do speak to your primary care and the GI about your high level of anxiety. Lastly as someone else mentioned removing gluten can help anxiety...so regardless of results it would be a good...
  19. GottaSki
    I am unclear what you are asking. This thread provides exactly the same information we have suggested to you for the past 24 hours in your other thread. Go to your doctor and request the original pathology report. The member you have replied to is no longer active on this board, thus will be unable to respond.
  20. GottaSki
    Extremely....extremely rare. MOST people diagnosed with Celiac Disease improve within weeks and their intestines are healed within six months. Please re-read the positive comments and stop researching worst case scenarios for a disease that you have not been diagnosed with.
  21. GottaSki
    It looks like the IgA numbers are total serum IgA - if I could see ranges I'd know for sure. If it is Total IgA then these numbers show IgA deficiency which means the IgA based tests are not accurate. This explains why the IgG based test had a higher value...again without ranges it is hard to know if it is a positive. I don't see a tTG-IgG...If it has...
  22. GottaSki
    Hello again... Do you have the reference ranges for the results you listed...they can vary between labs. For now do not remove gluten.
  23. GottaSki
    It is very frustrating to be told you don't have Celiac Disease -- this happened to one of my teenaged sons right after I was diagnosed -- yet nearly all of his health issues were resolved eating gluten-free. It took about a year and about three intentional slips for him to decide he coe uld never eat gluten...regardless of the label. Have you had gene...
  24. GottaSki
    And Jagermeister is 70 percent! Anyone who mixes Jager with tequila, rum and whiskey is going to feel pretty darn bad for more than a day - celiac or not. Just my opinion here...but if you want to let loose...go for it, but try to stick to one type of alcohol. Drink lots of water. Hope you feel better soon!
  25. GottaSki
    I understand what you have read has scared you -- incomplete information will do that. We have all been through the necessary adjustment to live gluten-free, IF needed you can too. While the transition can be tough -- it is far from a dire diagnosis. I don't think there are any conclusions to be made until the doctor clarifies the information obtained...
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