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GottaSki

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GottaSki

  1. GottaSki
    It sounds like he is ordering blood tests on the same day as the procedures. Perhaps call his office before the procedure to make sure this is happening. Not all GIs have experience and/or training in celiac disease. I think we have given you the list included in a full celiac panel, but if not let us know. Yes, EGD is an endoscopy. Do make sure...
  2. GottaSki
    Did somebody say snow 'Course I don't have to shovel it...but do have to drive to play in it!
  3. GottaSki
    Welcome! A couple thoughts: Ask your doctor for written or electronic copies of your blood tests along with both the procedural AND pathology reports from your endoscocpy. If the results do not make sense to you - post them here. Your doctor's statement is not enough - Celiac Disease is completely manageable, yet with serious complications should...
  4. GottaSki
    Test #1 is the Total Serum IgA which is run to make sure you have enough IgA for test #2 the tTG-IgA to be accurate. Your tTG-IgA is possitive. A complete celiac antibody panel should be run. Were you diagnosed by these two tests alone? If more testing is yet to be done, don't remove gluten until they are complete. As for severity...the amount of antibodies...
  5. GottaSki
    Motion is always good...but when in pain I wouldn't push the sweat factor. Consistent moderate exercise until you are feeling stronger with less pain.
  6. GottaSki
    The link for this article did not work for me.
  7. GottaSki
    She needs to be seen by a doctor. Primary, Endocronologist or Gynocologist (if "endless Pd" means period) -- just get in soon. Suggest including complete thyroid testing. Most important is get in....ask to speak with a nurse if the appointment scheduler tries to make your friend wait...and always ask for written or electronic copies of all tests. Good...
  8. GottaSki
    Most of the major celiac centers recommend at least one slice of gluten containing bread for 6-12 weeks.
  9. GottaSki
    The GI (if well versed in celiac) will likely order the rest of the panel: Total Serum IgA which is a control test to make sure you have sufficient IgA for the IgA antibody tests to be accurate. DGP - both IgA and IgG Along with nutrient testing as celiac prevents proper absorption of many key vitamins and nutrients. Talk with your doctors about adding...
  10. GottaSki
    I had very weak tendons/ligaments my entire life...trick knees that would pop out if the wind blew the wrong way...very weak ankles...etc. I was a long listance runner until my early 20s when my knees would no longer allow running. Was able to ski all these years with tight patella straps....I still use them for skiing, but all of my joints have improved...
  11. GottaSki
    Mine was very bad at age 44 and much improved after 2.5 years gluten-free. Slated to retest again at my five year mark. Bone is replaced -- completely after five years -- live completely gluten-free and consistent/regular exercise will strengthen your bones. I also supplemented with Calcium/D3. Of note...I had a very weak back for several decades...
  12. GottaSki
    My vote is preservatives -- some of the more natural and labeled gluten free brands have very high nitrate levels...but because the nitrate is in the form of celery based items they are allowed to label them - "no added nitrates". Perhaps try another brand of sausage?
  13. GottaSki
    I would try another brand that is labeled gluten free -- if there is still issue it may be an issue with peanuts. Perhaps try almond butter? Perhaps you have already seen this, but thought I'd add if anyone following along has issue with Adams PB: Open Original Shared Link The Adams Website's FAQs states: Does Adams Peanut Butter contain...
  14. GottaSki
    This member has not been active since two days after they posted this thread in 2011 and will likely not see your post. Do you have source for the claim that 1/3 of folks with Celiac Disease have pancreatic insufficiency? Thanks and welcome to celiac.com.
  15. GottaSki
    I researched this quite a bit and found that neither anti-caking or mold inhibitors in pre-shredded cheese contain gluten -- as Peter asked if you have found a recent source that any of these products contain gluten...please provide info. If you are having a reaction to these products you may be sensitive to the additives....but that does not mean they...
  16. GottaSki

    ARCHIVED 3 Months

    GottaSki replied to w8in4dave's topic in Coping with Celiac Disease

    Fantastic News
  17. GottaSki
    Welcome! Make sure you get a written or electronic copy of your tests. Often docs will run only one of the antibody tests included in a full celiac panel. Once you are certain you had: Total Serum IgA tTG - both IgA and IgG EMA - IgA DGP - IgA and IgG and they were all negative...it is time to remove ALL gluten for 3-6 months to monitor...
  18. GottaSki
    Another AI Flare from hell that came on a few weeks ago...turned me into the Human Amoeba once again...thankfully this one seems to be much more shortlived than years past....docs stumped...me too Irish is ok...BUSY with packing up her house and then hitting the road.....will prob be scarce for the next week still...safe travels IH
  19. GottaSki
    Thanks All Enchiladas for my men tonight!
  20. GottaSki
    Food/Symptom Journal is essential. I also second the trying simple baked chicken or bone broth to start with cooked vegies...raw can be tough on a damaged digestive system. Try eating just plain meat and vegies with a small amount of fruit for a week to see if you improve...if you can get your system to settle then add one food (whole food, not food group...
  21. GottaSki
    Anticipation -- Carly Simon
  22. GottaSki
    Ski finally checkin in-- been MIA literally Thanks everyone for the love ....trying really hard to get over this latest flare from hell and know better than to hope docs will ever figure out why this keeps happening to me -- thankful that I had a good 10 months without major flare -- so here's hoping I'm at the end of this sucky-ness! Have cooked...
  23. GottaSki
    Everything still booked here...just need my body to cooperate!
  24. GottaSki
    Seems that we have the same eyeballs....ditto ditto (since 18) ditto ditto & ditto! But still thankful that my night vision resolved gluten-free.
  25. GottaSki
    Very interesting. Cooking does increase the antioxident level of the tomato: Open Original Shared Link But I suspect the cooking of the tomato breaksndown the lectin content thereby allowing you to digest without reaction. For me - I can eat heirloom tomato sauce with much less reaction than raw tomato - my reaction to all nightshades are muscle/joint...
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