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GottaSki

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GottaSki

  1. GottaSki
    Lol Nicole...gotta admit Colleen had me googling a bit yesterday...but didn't post as I didn't find much except my guess that the high sugar could be connected to the LDH Deficiency. Perhaps even the high B12 as both glucose and B12 are part of the production of energy....but could not find anything specific on high B12 low LDH...only the reverse of low...
  2. GottaSki
    Happy 3rd Silly Birthday to Irish! Was up long enough to make a "Better Than Sex Pumpkin Cake" for you....well you and son's birthday
  3. GottaSki
    You were diagnosed correctly. Most folks only have a gene test IF the other criteria are not clear OR they are looking for answers for their family. You clearly have the most important diagnostic criteria. No question here...you have Celiac Disease. Carry on
  4. GottaSki
    I agree with the doctor - very few are willing to diagnose based on positive blood along with symptom resolution. At 43, I was only weakly positive on all antibodies except the DGP-IgG was much higher. I had severe intestinal damage and had symptoms now known to be associated with Celiac Disease since childhood. My children (adult and teens at the time...
  5. GottaSki
    I agree with both gene test for you and complete celiac antibody panel for the kids. I was initially tested for genes as my children tested mostly negative with a wide variety of celiac symptoms...turned out I have two copies which means all of my children have at least one - it was important information for our family. Talk to your primary doctor and...
  6. GottaSki
    Did your daughter have a complete celiac antibody panel or just the tTG? Do you have a copy of the pathology report from the procedure? The early stages of celiac have cellular changes that are sometimes noted in the report, but are not conclusive for diagnosis. How many samples were taken? Many doctors do not take enough as damage can be spotty...
  7. GottaSki
    I agree....once gluten is reduced significantly it can affect the antibody tests. If everyone feels better gluten-free - great - except you lose this data and may need to perform a gluten challenge if a diagnosis is needed in the future - which can be extremely difficult. I'd vote for complete antibody panels all around. Your primary can order these tests...
  8. GottaSki
    PS....if you are going gluten free with him you should have a complete celiac antibody panel before removing gluten as celiac disease is genetic.
  9. GottaSki
    It is indeed frustrating! I can tell you it gets better with time. For now try not to be too hard on yourself --- mistakes will happen, but they will become fewer and farther between as time goes on. Often the reactions to small amounts of gluten become worse...which is no fun, but does help to reinforce the need to be completely gluten-free ... 4...
  10. GottaSki
    Welcome Lynn! Your son may feel better within weeks rather than months. Young kids tend to improve quickly once all gluten is removed. Learn all you can about how to keep him gluten-free and preventing cross-contamination. Take a look at the "newbie 101" thread: https://www.celiac.com/forums/topic/91878-newbie-info-101/ It will take some time to correct...
  11. GottaSki
    The Immunoglobulin A and G tests are done to be sure you have enough IgA or IgG for the celiac antibody tests to be accurate. You seem to be deficient in both which means your celiac antibody tests that are in normal range could be incorrect. This does not mean you have celiac disease - just that more investigation is needed. I know it is very frustrating...
  12. GottaSki
    Bananas Cheetos (and other individual bags of chips - not healthful, but no gluten)
  13. GottaSki
    I have never seen a list like this...what type of doctor ordered the panel? FWIW...all your results look to be within the normal ranges specified. Good luck to you
  14. GottaSki
    Just my opinion but keep taking both, drink lots of water, eat what bothers you the least, continue to lay off the weed and give it time without changing things -- along with checking in with gastro.
  15. GottaSki
    I agree. It sounds like your gut is inflammed and can react to anything. Eat what was working for 2-3 weeks and wait for your gastro appt. Cant recall if you are taking probiotics and/or digestive enzumes - if not give think about starting and do give it more than a couple weeks to help. Once you get your system to settle...wait another month then introduce...
  16. GottaSki
    Pamela's makes an individual brownie mix.
  17. GottaSki
    I agree with Colleen completely. Sorry to hear of yet another doctor that is uneducated to correct celiac testing procedures. If you are not able to resume ingesting gluten....perhaps talk to your primary about running an antibody panel....it is a long shot, but some folks antibodies don't return to normal range for several months. Or request...
  18. GottaSki
    Good plan. Celiac affects many systems of the body...you will likely be pleasantly surprised with improvements once you are able to eliminate gluten. Let us know if you have more questions.
  19. GottaSki
    I know...I carry nitrile gloves in my go pack...but have never thought to use them to protect from gluten... And I would certainly be allergic to a hazmat suit
  20. GottaSki
    Allergic to latex...sticking with soap and water.
  21. GottaSki
    I agree. Ask your primary to run a complete celiac antibody panel as it is strange that gastro skipped this step. As soon as blood tests are complete remove all gluten. You may find your family will be onboard once you regain health gluten-free. Hang in there
  22. GottaSki
    Welcome! The first two tests are celiac antibody tests. The last test is done to be sure there is enough IgA in the body to assure the antibody tests are accurate. The next step is to make an appt with GI - the celiac center is preferable. Do not remove gluten from his diet until he has seen Gastro....and do mention his positive antibody tests...
  23. GottaSki
    You are not alone in these lines of thought. Thanks again for the update!
  24. GottaSki
    Nice...we can get a scientific celiac update along with a map to the fountain of youth
  25. GottaSki
    I would make sure you had a complete celiac antibody panel to include both IgA and IgG versions of tTG and DGP along with Total Serum IgA; nutrient testing of minimally B12, D, Iron along with recent CBC and CMP so that all the results are available for your gastro appt. Do not remove gluten until the GI appt is completed in case you decide to have an...
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