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GottaSki

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GottaSki

  1. GottaSki
    Welcome Maxx! Unfortunately, your story is not unusual here. Which blood tests were run for Celiac? Often docs don't run the entire celiac panel. GI did a scan, but no endoscopic biopsies. With your symptoms, nutrient deficiencies and a sister with Celiac Disease....sure sounds like Celiac is a very real possibility. There are folks that...
  2. GottaSki
    A person that is neither celiac or gluten sensitive can stop and start eating gluten without issue. If a person removes gluten for a period of time and then has adverse reaction when they resume eating gluten they either have an allergy, intolerance or Celiac Disease. Forgive me, it seems you are struggling with accepting your diagnosis. How long...
  3. GottaSki
    Another thought...perhaps add nutrient testing if the doctors haven't ordered yet. If he is continually ingesting enough gluten to prevent complete healing, he may be deficient in some nutrients: CMP B6, B12, D, K, Iron, Ferritin, Copper and Zinc Just another piece of the puzzle.
  4. GottaSki
    Again, everyone is different...but generally it takes continued exposure to have levels rise, not one accidental gluten exposure. Just my opinion, is his levels have consistently come down -- I'd be more concerned if they were moving both up and down. It is tough to know, but getting the rest of the antibody tests may help to pinpoint if there is...
  5. GottaSki
    Welcome Amelia! Just to let you know, most of the folks on this thread have not been on in a while. Hopefully someone will be along that can help.
  6. GottaSki
    Welcome! I'm assuming these numbers are all for tTG-IgA? 113 is a high starting point and each of his checks have consistently come down....it can take a very long time to become normal and the rate of decrease is different for everyone. Most return to normal within the first year -- but not all. Has he had a complete celiac antibody panel during...
  7. GottaSki
    Glad your bff left the track....was very glad they were able to squeeze the race in between storm cells and not have to holdover to a Monday restart!!!! Really glad the Little E won what a great victory lap...never seen him look that happy. Fun sandwiches....you'd need an extra big sandwich considering how long it took to get the race in the books ...
  8. GottaSki
    This is excellent news
  9. GottaSki
    I've got nothing fun to share...so I thought I'd add RMJ's recipe to this thread https://www.celiac.com/forums/topic/106470-gluten-free-grand-marnier-souffle-with-creme-anglaise/?p=906861 Daytona under rain delay...and tornado warning??? IH...did you blow away today? edited...just checked the radar...looks like the storm is well north of Irish...
  10. GottaSki
    Sounds delicious! Thanks for sharing
  11. GottaSki
    If I Can't Have You -- Bee Gees
  12. GottaSki
    Was a bit disappointed with the outcome of the Gold Medal Match ... then shortly after watching the recorded hockey game there was the tribute to one of our ski heros...Canadian Sarah Burke...her death two years ago hit everyone throughout snowsport circles hard ... her dedication to bringing women's ski half pipe to the olympics was celebrated tonight ...
  13. GottaSki
    Been meaning to post this .... while nothing matches Thin Mints... these Brownies come very close to the Thin Mint flavor -- certainly helped me thru a few post dx Girl Scout Cookie seasons Open Original Shared Link
  14. GottaSki
    Don't Stop Believing -- Journey
  15. GottaSki
    Heartbreaker -- Pat Benatar
  16. GottaSki
    My Best Friend's Girl -- The Cars
  17. GottaSki
    Wow...that a GI at a children's hospital would call IgG celiac antibody tests crap and dismiss the need for the test that specifically indicates if the body is reacting to one of the peptides specific to the protein of gluten is...well...very sad and incorrect. You've done all you can for now. Do make sure you remove all gluten and keep a log of symptom...
  18. GottaSki
    Interesting...I read about banana flour some time ago when I started using coconut flour, but could not find any sources to buy it. Also....interesting fundraising plan for a new product.
  19. GottaSki
    Great. Glad you'll have a full panel before removing gluten. Also, be sure to have a full panel run again at six months gluten-free. If the antibodies drop significantly and his symptoms resolve gluten-free that should be sufficient to diagnose Celiac Disease. As for family members, you can ask your GP to order complete celiac panels for you based...
  20. GottaSki
    I disagree. This child has low IgA and should at least have DGPs run before removing gluten again. Because he does have some IgA I think it wise to run both DGP-IgA and DGP-IgG. While the IgA is likely be negative, why not run the complete panel? I do agree that the biopsy is a choice you have, but make it after you have had a complete celiac panel...
  21. GottaSki
    Hi Shadow! What you thinking of making? Stir fry, teriyaki, sushi, tempora???
  22. GottaSki
    Ugh...Idiots!!! http://www.nascar.com/en_us/news-media/articles/2014/1/30/chase-for-the-nascar-sprint-cup-championship-format-changes.html Clear as mud A$$CAR is perfect and I'm stealing it What the hell was wrong with racing straight out until all the races in the season were done? There were plenty of points to go 'round. Never been...
  23. GottaSki
    Tried to buy them in San Diego...we are not one of the test markets...I'm told Riverside was the closest test market in SoCal. The cookie mom I spoke with said she has had several requests for them so hopefully next year they'll carry them nationwide. I think I may dash off an email to request gluten-free thin mints....I sent an email my first year...
  24. GottaSki
    Good plan...be sure to have your celiac antibody panel drawn again before you trial gluten again in 6 months. Really the only follow up needed is annual antibody panel/nutrient levels after the first six month check as long as you improve gluten-free....your GP should be able to do this for you. Oh and make sure you obtain written copies of the endoscopic...
  25. GottaSki
    I Love Rock and Roll -- Joan Jett
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