jkr
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Latest Celiac Disease News & Research:
Everything posted by jkr
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I have a recipe for vegetable beef soup that calls for barley that I used to eat. What can I use to replace the barley? Thanks!
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I haven't been taking my B12 & magnesium regularly so I'm going to make sure I do. Thanks for the info.
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I have numbness in the thighs also. It comes and goes. I have celiac disease. I have had nerve issues in my thighs for years. I think mine could be from the celiac. I went to a neurologist years ago and he gave me anti-depressants which can help with nerve pain but it didn't help. I take Advil also and it sometimes helps. If I'm walking for long periods...
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I've gained about 12 lbs ever since I went gluten free. Is it because I'm absorbing more fat or maybe because I have gone crazy with sweets! Could be a combination of both I guess. I'm trying to limit sugar and carbs. Hopefully it will help. I've never had to watch my weight ever, so it's weird.
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ARCHIVED V8 Butternut Squash Soup
jkr posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I thought the V8 Butternut Squash soup was gluten free but after seeing some old posts I guess it isn't, correct? My stomach told me it wasn't - I had such pain just like in the the old days. -
I also have been experiencing a "sensation" like yours. Was it right under your ribs?
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ARCHIVED On & Off Anemia
jkr replied to semsiren's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The hematologist told me to take Ferrous Sulfate 3 times daily and surprisingly I did not have any side effects from it. I think it's a good supplement. My hgb and hct looked good after taking it for 3 months and my iron stores came up nicely. -
ARCHIVED Endoscopy Tuesday
jkr replied to dmurth01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I did have severe intestinal damage but the doctor couldn't tell by the pictures. The biospy told the story. Good luck and I hope your damage is minimal. -
There is so much information to obtain on this forum it is wonderful. I have found so many great recipes here and on the internet. Thank goodness mainstream stores carry gluten free foods. When I'm at the grocery, I use my iphone and go on this site and I have the app "Is this Gluten Free" to help me choose wisely. Good luck and happy healing!
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I didn't think an elevated ttg could mean gluten intolerance. I thought it was just an indicator of celiac.
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ARCHIVED Stomach Irritation
jkr posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For the last few days I've been having a "sensation" to the right of my navel. It's not a pain, and it comes on after eating. I've read older posts similar to this. Has anyone had this issue lately? I wonder if it has to do with the celiac. I will go to the GI if it keeps up. It's very annoying. -
ARCHIVED Received Enterolab Results
jkr replied to sunnybabi1986's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Is there a blood test for soy intolerance or is it just a stool test? -
My periods came back this summer after not having periods for over a year. I became gluten free this year when I got diagnosed. I think it had something to do with my periods returning. I'm 50 so we will see how long it lasts.
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ARCHIVED 2nd Biospy?
jkr replied to L13's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My GI didn't want to do a repeat biopsy. I don't feel the need to have another one anyway. He didn't even tell me to come back for repeat blood tests which I think I should have. I am going to call him in a couple of months (I had the endoscopy in July) and ask him when he wants me to have another blood test. I had forgotten to ask him about this... -
It's grocery store stuff.
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ARCHIVED Gluten Free Flours
jkr replied to jkr's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you so much! -
ARCHIVED Gluten Free Flours
jkr posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I have a question: When a recipe calls for a certain type of flour, can I subsitute any gluten free flour? Thanks in advance! -
ARCHIVED Ibs Vs Celiac Disease
jkr replied to amiller1030's topic in Parents, Friends and Loved Ones of Celiacs
The same thing happened to me in regards to the anemia. They thought I was bleeding somewhere in my intestine. I had both colonsocopy/endoscopy and they found celiac with the endoscopy. I had intermittent issues with IBS all of my life, but like a lot of people, I just thought my bowel was irritable. I do feel so much better overall and I didn't realize... -
ARCHIVED Dark Circles Under Eyes?
jkr replied to BloatusMaximus's topic in Coping with Celiac Disease
I've had dark circles under my eyes all of my life. I know I've probably had celiac since I was a child. My dark circles haven't gone away but I've only been gluten free since August 4th. We'll see. I was always sick of people asking me " are you feeling alright?" -
My doctor thought I was in menopause because my period stopped from Sept 2007 until May 2009 except for one period in July, 2008. I went gluten free for good after my endoscopy and official celiac dx in the beginning of August and I started getting regular periods again. I've read posts here about early menopause because of the gluten. I just think...
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Yes, I have the "Is that Gluten Free" application. It's very helpful. It doesn't have everyting I have looked for but it's a good basic guide for you when you're at the grocery store.
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I will remember that if he takes a biopsy. Thanks for your reply.
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I don't need any responses to this. I went on-line again and found the exact name of the condition. I'll wait to see what my dermatologisit thinks. The blister broke on it's own last night and looks flat now.
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Hello, A blister formed on my arm, just a single blister that doesn't itch. When I first saw it, I tried to remember if I burned myself, because there was a little rash by it. Now it's just a blister. I've read older posts about it, I don't remember the name of the condition. Has anyone else had this recently? I made an appt with a dermatologist...