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seashele2

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by seashele2

  1. seashele2
    Hello, My chest pain/abdominal pain/nausea/possible Costochondritis didn't start until I had been gluten-free for 4 years. In the last 2 years years they have done 2 cardio work-ups, 2 abdominal ultrasounds, and 1 abdominal CT scan with a second scheduled. They come up with nothing each time and I have suggested Costochondritis with no acknowledgment...
  2. seashele2
    I have known many, many celiacs that once they heal their intestinal damage begin reacting to other foods. You would fit that time frame since it takes 3-36 months to heal from the gluten damage depending on the severity and length of undiagnosis. It took me 3 months to start feeling better and at 2 years, I developed sensitivities to additional foods....
  3. seashele2
    Hi Evangeline. Actually many of the symptoms you listed, if not most of them, are standard celiac signals. I experienced them and so did my uncle, my daughter and my sister-in-law. And yes, I was sleeping up to 20 hours a day when I was finally diagnosed. We have tracked mine down to onset 36 years ago, but I was not diagnosed until 5 1/2 years ago...
  4. seashele2
    Yes, white sugar has no wheat, rye, oats or barley in it. It is just sugar cane. However, some less expensive brands of brown sugar might not be gluten-free. If a company uses molasses to turn cane sugar brown the cheap way, and if the molasses is also a cheap brand, it may contain barley malt. Stick with name brand brown sugar to stay safe. Also...
  5. seashele2
    There are false negatives and false positives on celiac panels. And no, just because someone tests negative once, doesnt' mean they will never have celiac. The body can turn on itself at any point of a person's life if the genetics are there. Six years ago after my diagnosis, my daughter was tested. The result was negative. We were told at that time...
  6. seashele2
    I will be interested in reading what you hear back. I can't offer anything except that my daughter is facing the same dilemma. I am lab & endoscope diagnosed celiac. My uncle is as well. My husband's sister is diagnosed, not sure the method(s). My daughter gets very ill eating gluten and we removed it from her diet about a year ago. Now in order...
  7. seashele2
    When we are in need of a chocolate fix, I throw a handful or two of Enjoy Life chocolate chips into Namaste brownie batter. That makes the most awesome brownies! I have never had a problem with Enjoy Life chocolate chips melting. In fact, I buy them to make my daughter candy all the time. I melt them and put the melted chocolate into candy molds, let...
  8. seashele2
    We love the Namaste mixes and blends! We buy the brownie mix (our absolute favorite!), the spice cake mix, the chocolate cake mix, the biscuit, pie crust & more mix, the perfect flour blend, and others I can't think of right now. We have had the pancake mix in the past, but haven't recently. I just use the perfect flour blend and some light buckwheat...
  9. seashele2
    Hi! Our house is also gluten, soy and corn free, in addition to some others. I know of two flour mix subs that are free of all those things. I am currently using Namaste Perfect Flour Blend. (Ingredients: sweet brown rice flour, tapioca flour, arrowroot flour, sorghum flour and xanthan gum) It does have xanthan in it, but I called them a few years ago...
  10. seashele2
    Marsha, Eggs and chicken should be OK for you if you are not tremendously sensitive to soy. Chickens, even natural, pastured and free-range chickens are fed a diet including corn, soybeans and a variety of gluten-grains. I was quite purturbed when I learned that even pastured chickens are fed these things. That said, if you are not super sensitive,...
  11. seashele2
    I am sorry you are struggling, but please know that it does get easier over time. There are alot of gluten-free convenience foods: TV dinners, frozen pizzas, cookies, etc. Yes, they are more expensive than regular, but probably not a whole lot more than fast food. I know it's not a "guy thing" but you may have to spend a little of your time off cooking...
  12. seashele2
    Fresh sweet potatoes are gluten-free. No wheat, barley, rye or oats inside a sweet potato. They cook just like a regular potato. Baked in the microwave or oven. Make sure there is a plate or baking pan under them while they are cooking however. They do leak sticky juice more so than a regular potato. Peeled, boiled and mashed is good. Cubed and fried...
  13. seashele2
    My daughter just had labs for B12 and Folic Acid (B9) drawn this morning. I think for me, they have just drawn B12, but I can't remember. I'll be getting my next lab slip on Wednesday, so my memory will be refreshed then. Michelle Western Washington State
  14. seashele2
    It is gluten-free, or at least it is labeled as such, but I, too, react to it. Soy should have to be declared on the label, but it is the only intolerance you and I seem to have in common besides gluten. I e-mailed them to verify. If I learn anything different, I will post again. Michelle Western Washington State Family is: gluten, corn, dairy,...
  15. seashele2
    I can't wait to try this recipe. I'll need to alter it a bit, subbing for the soy flour and dry milk powder. Might try light buckwheat flour and ricemilk powder and see how it works. Thanks for the recipe reprint! Michelle Western Washington State
  16. seashele2
    You can still be bloated and have gas if you are intolerant to something else. I developed other intolerances after my body was finally absorbing foods I was not during 30+ years of misdiagnosed/undiagnosed celiac disease. Now gluten, dairy, soy and MSG cause bloating in me. Michelle Western Washington State
  17. seashele2
    My family prefers the brown rice Tinkyada pastas. They all would rather eat white rice, but the white rice pasta didn't have as much flavor, the texture didn't taste as wheat-like and it seemed stickier. One of the things we love about Tinkyada pastas is that they usually aren't sticky, even if you get sidetracked and they overcook. $3.59 each seems...
  18. seashele2
    Hi Marsha, I am gluten, dairy and soy-free, plus a few others. My daughter is corn, dairy and gluten-free. For milk and ice cream products, I buy So Delicious brand. They have Coconut Milk beverage, sold in the refrigerated case in half gallon cartons. They also have Coconut Milk Kefir and coffee creamer in the refrigerated case. They are all excellent...
  19. seashele2
    Hi! I went through a similar ordeal with my in-laws 5 1/2 years ago. Let the experts explain it to them. I sent them links if they were online and printed stuff out for those who were not. All the celiac organizations - GIG, CSA, etc. - have fliers you can print or that they can mail you on what celiac is and that the only treatment is a life-long completely...
  20. seashele2
    In the U.S., caramel coloring is almost always made from corn. If it were to be made from wheat, wheat would have to be listed on the ingredient label since it is a "top 8". So, unless the ingredients say wheat, caramel coloring is gluten-free. Vinegars vary. White vinegar is corn-derived so should be gluten-free. Cider vinegar is apple-derived so should...
  21. seashele2
    Maltodextrin in the U.S. is almost always made from corn. A few of the "health food" companies use tapioca. I have never heard of it being made from wheat here. My daughter is allergic to corn, so we check everything that has maltodextrin in it for the source from the manufacturer. Even though it is processed and the proteins are supposed to be gone,...
  22. seashele2
    Guar gum works better as a substitute for xanthan gum that those other starches do. I buy it because my daughter is corn allergic and xanthan is grown on corn. I find it in my health food store in capsules in the supplement section and then open the capsules to use it. Not sure why someone would take it as a supplement. but that's where I find it. ...
  23. seashele2
    I have never used that product, so don't have first hand experience with it. Not sure on the Diflucan for candida either. When I take it, it is for something else and I just take one. Everyone jumps and saws see a doctor. They probably haven't ever been without health insurance, hence the huge debate in our country whether every one is entitled to health...
  24. seashele2
    McD's has to state they have wheat in them because of a flavoring, but the protein is so far removed, that there is less than 5ppm gluten left in them (the lowest that can be tested for). Every celiac organization and testing system in the U.S. has deemed them gluten-free, based on the acceptable 10ppm level, but there are still people who insist they are...
  25. seashele2
    If you can tolerate barley flour, then you are probably not celiac. From a non-medically tested observation, you are probably just allergic to wheat. If you were celiac, you would react equally to the proteins in wheat, barley and rye. The only way to tell for sure is to go back to eating all of it and be tested, via labs and endoscopy. Short of that...
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