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seashele2

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by seashele2

  1. seashele2
    Since my diagnosis 8 1/2 years ago and going gluten-free, I have had to take one food after another out of my diet: corn (which causes me gluten reactions/damage), dairy, soy, beef, pork, sulfites (onions, garlic, brussel sprouts, cabbage, and a hundred others). I can only do very few things with soy lecithin in them. I think it has to do with how the particular...
  2. seashele2
    That is totally disheartening. There is no way we can afford to buy EZ Gluten test kits, so I depend on manufacturers being truthful. I know when I have a gluten reaction to not buy it again but that is all I can go by. Michelle Western Washington state
  3. seashele2
    I have been diagnosed for 7 1/2 years. (Undiagnosed for 32 yrs before that.) My diagnosing physician, who is also celiac, said that any celiac who is gluten-free would have negative results on labs and endoscopes. Sometimes people who were undiagnosed as long as I was sometime have residual damage, but a young person should completely heal on a gluten...
  4. seashele2
    The app is designed for simplicity, but you can alter it to be a little more precise by adding, editing or deleting foods or symptoms. I took wheat off and added things like rice, potato, xanthan gum and guar gum. I am already soy-free, but sometimes eat something with soy lecithan, so I changed soy by adding lecithan. I am already MSG-free, so took that...
  5. seashele2
    I have been conversing with the app maker via e-amil this afternoon and the Food Allergy Detective app allows users to change the default/current time/date when entering foods or symptoms, so I am going to buy it. It is available for the iPhone, iPad and iPod Touch. So excited to get a handle on what's bothering my system. Before I was diagnosed, I seemed...
  6. seashele2
    Yes, that's the one I was talking about. The main reason I haven't gotten it yet is that you can not enter specific times for foods or symptoms. It relies on the user to be able to do that at the time they eat or have a problem. If I get a stomachache at 3:00am, I don't want to have to go put it in my phone, but if I wait until the next morning, that would...
  7. seashele2
    I am searching for something like this too. I found an app I might buy for iPhone for $2.99 called Food Allergy Detective. It has good reviews although not a great number of them yet. I think it was 9 or 10. Since almost everything I eat is at home, I'd be interested in a computer based one too. I look forward to seeing what anyone else recommends.
  8. seashele2
    I have three or four sets of toaster bags from the last 7 years. I don't travel often and it seems every time I need to go somewhere, I can't find where I put them so I wouldn't lose them. :-/ I think they are all different brands. The last pair of "Toast It" bags I got was on Amazon. I have never bought any that weren't full bags. I haven't even seen...
  9. seashele2
    Actually, in our state, we found the big universities really didn't care. Our daughter selected a smaller state school after visiting 4 schools that offered good programs in her major and they are wonderful. She also got a freshman exception to the first-year dorm rule, but for her corn allergy, not her gluten or dairy-free requirement. With her corn allergy...
  10. seashele2
    We're very lucky that my daughter's college in the fall does not use Sodexo. If they did, we would probably have researched longer to find another university! We met with the head of dining services and the campus dietitian last summer before she decided where to apply for transfer. We also met with the university's disability services office. Her college...
  11. seashele2
    Where I buy my hazelnut flour is: Open Original Shared Link . If the link doesn't post, it is from holmquisthazelnuts dot com. Bob's Red Mill also makes hazelnut flour and that brand is available in most healthfood stores and regular grocery stores around me. It can also be ordered online at Open Original Shared Link or on a m a z o n dot com. (The page...
  12. seashele2
    A study was done in the late 1970's that indicated that around 40% of celiacs react to corn, about the same amount as react to oats. Oats were out, but corn was not for some reason. (The corn lobby is a very powerful force.) My daughter and I both can not tolerate corn, but my daughter is corn-allergic. My reaction to corn didn't start until after I healed...
  13. seashele2
    My daughter and I both have microscopic colitis and we both have celiac. It is more of a case of correlation than causation though. Celiacs have a higher chance of having microscopic colitis than the general population. I'm not sure about "regular" colitis however, the kind they can see without a biopsy and microscope. Michelle Western Washington State
  14. seashele2
    Which Namaste products are you getting the reactions from? My 18 year old daughter, who has been allergic to corn since birth, hasn't reacted to any of the Namaste products we are using. I also react to corn, in addition to others, but not as strongly as she does, and I haven't noticed anything either. Maybe we're just not using the same products? ...
  15. seashele2
    They diagnose microscopic colitis via biopsies taken during a colonoscopy. It is not visible when they look around, but is under a microscope. My daughter (17) has it and so do I. We are both celiac too. Michelle Western Washington
  16. seashele2
    A lifetime of being completely gluten-free is the only treatment for celiac and other gluten-caused diseases. In our family, I am celiac, my uncle is celiac, my sister-in-law is celiac and my daughter is celiac. She got the genes from both sides of the family. My sister-in-law used to do the part-time gluten-free thing and couldn't figure out why she was...
  17. seashele2
    I have been gluten-free for 6 1/2 years. I was doing much better for the first 2 years, aside from gaining weight. Then I started having problems with MSG. Then dairy. Then soy. Then corn. Then pork. Now sulfites. It seemed after my system was actually absorbing the food I was eating, it didn't like it either. I am incredibly tired of it because...
  18. seashele2
    In addition to my celiac, I can not tolerate dairy, soy, MSG, corn, and sulfites. I am continuously ill, but hadn't placed the sulfites until my daughter's pediatric gastro mentioned, after learning I was allergic to sulfa drugs, that with all the other things we avoid, it must be difficult to eat low-sulfite too. None of my doctors had suggested that connection...
  19. seashele2
    A doctor gave an interesting talk including the subject of gluten and dairy similarities at our GIG meeting last weekend. Many celiacs, maybe even most, are dairy intolerant. Lactose intolerance is totally different as it is a sensitivity to milk sugar, not protein. The incompletely digested dairy protein chain shares peptides with the incompletely digested...
  20. seashele2
    Silk Pure Almond milk in the refrigerated case states on the carton it is soy-free and I haven't had any allergic reaction to it. Seems strange that Silk would be soy-free, but no eczema from it for me (my first soy symptom), so you might want to give it a try.
  21. seashele2
    We have multiple avoidances besides gluten and we eat lots of cold cereals. Enjoy Life Crunchy Rice or Crunchy Flax are good. There are a couple Bakery on Main granolas I like, but I like them better dry. I think Arrowhead Mills Maple Buckwheat Flakes are my favorite. I can't remember the brand (might be Barbara's?), but we buy Puffins sometimes and I...
  22. seashele2
    My sister-in-law is the only person in my husband's family who has celiac and everyone living has been tested. In my family, my uncle has it, I have it and my daughter has it. I guess it just depends on the family. Other autoimmune diseases are the same way. I am the only person in at least 5 generations in both my mom and my dad's families who has type...
  23. seashele2
    Costco doesn't publish a gluten-free list because they bring products in on good deals and their inventory changes. Yes, some things are pretty much regular items, but there is enough variable that they don't publish a list. About the only way you can tell if an item is gluten-free is to read the label and/or call the 800 # during business hours to verify...
  24. seashele2
    I wouldn't go through a gluten challenge for an endoscope. I had mine before I went gluten-free, but if I hadn't, I wouldn't go backwards. If your lab test and genetic test were both positive, that should be all the proof a relative would need to be tested. Why would an endoscope matter more than positive genetic "proof" to someone who is genetically linked...
  25. seashele2
    My daughter and I, both celiac, love Glutenfreeda instant oatmeal and neither of us react to that like we have to others. What I would love a company to perfect and release is gluten/corn/soy/dairy free toaster pastries. You know, like Pop Tarts. I know they aren't a "health food" but when I want something fast and warm before racing out the door, or...
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