KaitiUSA
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Latest Celiac Disease News & Research:
Everything posted by KaitiUSA
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ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Wandering Hermit-There are 2 cereals that are gluten free and they are cocoa and fruity pebbles by Post. Post won't hide anything either. -
I agree go with GI doctor for celiac related things
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ARCHIVED Taco Seasonings
KaitiUSA replied to jknnej's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't used it ..that I know of...my mom might have in the food she makes for us...but I know McCormick will not hide anything in their products. -
awesome I look forward to hearing it Karen Also anyone who has any suggestions on things they would like to see in a book...as a reader what would catch your eye? Thanks
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ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Well do know which tests that you had done? Some are specific for celiac and have a low false rate. Do you know how high they were? If they were elevated the chances are that you do have it. Some doctors use an endoscopy to officially diagnose it after the blood results and others just use blood tests. -
Hey all I am in the midst of writing a book. I am putting a chapter or 2 in the book of celiac experiences from numerous people. If anybody would like to add theirs just email me and let me know. I would like at least 5 more but could use more. Thanks everyone
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ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
It depends on the blood tests you have done some are specific for celiac. I was diagnosed through only blood tests done. The doctor didn't even want to do an endoscopy on me because he knew it was celiac through the blood tests. If there isn't damage or they look in a spot where it is not damaged it will come back negative anyway. -
Dying From Celiac?
KaitiUSA replied to SharonF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
http://www.glutino.com/english/interieur/a...e.cfm?art_id=88 Here is a article I found and it says "One of the causes of death" in the first sentence. ok what were the pills for? And why did he have a tube in his stomach because of celiac? does it all add up in your minds? or do you think they are not telling us something? -
ARCHIVED Viatmins, Minerals, Supplement - Oh My!
KaitiUSA replied to tdrew's topic in Gluten-Free Foods, Products, Shopping & Medications
Here are some things I highly recommend: Liquid Vitamins Plus by Utrition...I prefer liquid because of the absorption. Enzymes-Enzymatic Therapy Probiotics-Enzymatic Therapy, Kyo-Dophilus by Wakunaga of America There are alot of good brands to get but these things I find essential. All of the things above I take and are gluten free and say so... -
ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Well you should keep pots and pans clean, the cookie sheets you should not make anything on because of the flour caked on it, you need to get a new toaster...there are some good gluten free breads available. You should keep your toaster separate and if you touch food you are preparing for them wash your hands before getting into your food. Also you may want... -
ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Yes breathing in flour is then ingested so that will cause damage. Open Original Shared Link Here is a link to doctors recommended by celiacs in different states. You may want to consider finding a doctor well versed in celiac. Alot of doctors do not know what they should know about celiac. Some doctors have bad advice that can hurt us instead of... -
ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Here are also some brands that Richard(lovegrov) posted a few months ago in another post. These brands will clearly list wheat,rye,barley,oats. If that is not listed on these labels below then the product is safe. This is very helpful especially at first when you don't know what to look for. Aunt Nelly's Balance Baskin Robbins Ben & Jerry Betty... -
ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Well everyone has accidents sometimes and once a year consider yourself lucky. If you have frequent accidents then you need to be concerned but sometimes accidents are inevitable. As for the indulging if you get glutened....I used this analogy in another post as well....If you have a car and you get into an accident does that mean you should be careless... -
Dying From Celiac?
KaitiUSA replied to SharonF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I understand the being short maybe because of a bad case of it...but the pills he took everyday? Sounds to me like he had something else wrong from the article that I read (posted above) -
ARCHIVED Disodium Phosphate
KaitiUSA replied to abby0501's topic in Gluten-Free Foods, Products, Shopping & Medications
Disodium Phosphate is fine -
ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Sometimes celiacs can be lactose intolerant because of damage to the villi. I was lactose intolerant my whole life...after going gluten free I can tolerate it with no problem now because my villi is healed. If you do not follow the diet you are 40-100 times more likely then the normal population of developing cancer. You would also be more likely to... -
ARCHIVED Modified Cellulose Gum
KaitiUSA replied to skbird's topic in Gluten-Free Foods, Products, Shopping & Medications
Modified cellulose gum is fine. -
ARCHIVED Celiac Disease In The News
KaitiUSA replied to celiac3270's topic in Publications & Publicity
I like to see them too celiac3270 Thanks for posting them -
Dying From Celiac?
KaitiUSA replied to SharonF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
He died from complications I guess. Celiac can cause many problems if left untreated. Maybe he didn't follow the diet and ended up with getting something else due to severe damage. I have no clue why he was taking 60 pills a day...maybe that had something to do with him dying. Something just doesn't seem to add up in my mind about him...maybe someone else... -
ARCHIVED Yet Another Newly Diagnosed Celiac
KaitiUSA replied to Wandering Hermit's topic in Coping with Celiac Disease
Welcome to the board You will find so much useful information and supportive people on here. https://www.celiac.com/st_main.html?p_catid=12 This is a link to lists of forbidden and safe things for celiacs. It will help as a guideline especially while you get to learn the ropes...if you have any questions just ask -
You would be more sick then you were.That's really not a good idea you get more sick and more damage. Let's put it this way....If you have a car and get into an accident and it gets some damage... does that mean go around and act careless and keep trying to give it more damage?
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ARCHIVED Wheat Harvest
KaitiUSA replied to scaredparent's topic in Parents, Friends and Loved Ones of Celiacs
If your son has gluten intolerance then an allergy shot will not help because celiac is not an allergy.The only way an allergy shot would help is if he had a wheat allergy not celiac . If he has the chance to breathe wheat in then that can he harmful because then traces are breathed in and ingested then. An air purifier in the house may be a good thing to... -
ARCHIVED "gluten Shock"
KaitiUSA replied to kvogt's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Peaches The longer you are gluten free the more sensitive you will become. I am very sensitive and usually have nausea and anxiety for about 2 weeks after accidentally ingesting any amount of gluten. I don't have gluten shock like some people do. Try not to worry about it too much and if you do get it at least you will know what it is. Just be careful about... -
I'm for starting the script Sally...does everyone think it's a good idea to try this out? I can write some of it...we need characters, scene where this happens, and so forth...ideas anyone?I think I can get someone to present it I've been looking myself but if I can't find one my friend can hook me up with one I am sure so I think I have that part covered...
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There is one 35 miles away from my house. I should call them and see what their policy is on gluten free pizza. They should make a chain that is only gluten free so there is not cross contamination and so forth.