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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by koolkat222
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ARCHIVED Shocking Places You've Found Gluten!
koolkat222 replied to GFLindsey's topic in Coping with Celiac Disease
Same here! Wheat in licorice?! I, too, would like to know why. -
ARCHIVED Eating Out
koolkat222 replied to masterjen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's been almost fours years gluten-free for me, and I've only eaten in a restaurant once. It was three months ago at the Raintree Cafe. Wasn't planning on eating, just accompanying the family. Explained why I wasn't ordering. Manger came over, was very knowledgeable about gluten, and assured me they could make a gluten-free meal. It was only a cheeseburger... -
ARCHIVED Is This A Catchy Way To Start My Celiac Presentation?
koolkat222 replied to runningcrazy's topic in Publications & Publicity
Catchy! It will grab their attention and they'll recognize it from the start. Let us know how it goes! Terrific idea! -
After too many "glutenings" I don't eat it unless I made it. It's just not worth it. Most people don't understand, but I can't worry about that anymore. It helps that I can vent here
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I rarely eat out because the risk is just too much for me. But, last December, I was pleasantly surprised when we went to Disneyland and Downtown Disney. At the Rainforest Cafe, the manager was familiar with Celiac and knowledgeable about gluten-free preparation. She had them prepare me a fantastic cheeseburger. This may not sound like much, but it was the...
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ARCHIVED Is Low Blood Pressure/being Extremely Cold
koolkat222 replied to SLB5757's topic in Coping with Celiac Disease
I have the same- low blood pressure, and I'm always cold. You didn't mention your pulse. Mine is always high. Makes me think my heart isn't working as efficiently as it should. I'm wondering how common this is in others with Celiac. -
I wouldn't worry about having an "official" diagnosis unless that is something that's important to you. The main thing is that you feel better eating gluten free, and that's what is important!
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I think a lot of women use their ob/gyn as their main doctor. Mine also discovered my Celiac. I would get iron, B6, and B12 checked. Good luck
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ARCHIVED Finally, A Diagnosis!
koolkat222 replied to sc63's topic in Introduce Yourself / Share Stuff
Welcome to the Gluten Free World. I know what you're feeling! I was so relieved to have a reason for so many of my health issues, and I could finally eat without the constant pain after meals. -
ARCHIVED Wondering If I Have Celiac
koolkat222 replied to David in Seattle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes!! Looking back, all of my health problems (Celiac is just one of many big ones) appear to be caused be a huge stressor in my life. I didn't believe that stress could be this physically destructive to anyone until it happened to me. -
ARCHIVED Wondering If I Have Celiac
koolkat222 replied to David in Seattle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
David, When I first started gluten-free, I had next to nothing. I found that an Ensure type supplement was safe, and I lived on that for awhile. Little by little, I added different foods to my diet. I knew I was ok because I was getting nutrition from the Ensure; this made it easier to stick to adding a food at a time. I hope this helps. You're right... -
ARCHIVED Wondering If I Have Celiac
koolkat222 replied to David in Seattle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know how you feel about wanting to check out permanently. Don't give up yet! As daunting as a gluten-free diet was, I was willing to do anything to avoid the pain that came an hour or two after eating! I'm so sorry about your personal situation. Things are tough for you right now, but gluten-free just may be your answer to many issues. -
ARCHIVED Baking Subs For Egg, Dairy, Soy, Yeast....
koolkat222 replied to elle's mom's topic in Gluten-Free Recipes & Cooking Tips
Ener G Egg Replacer is what I use in baking. It's a powder; it's worked for me. -
ARCHIVED Glutened By The Steering Wheel! I Just Want To Cuss,
koolkat222 replied to txplowgirl's topic in Coping with Celiac Disease
I feel so bad for you! And very angry at him Celiac and avoiding all gluten even through cross contamination-it's part of who you are. If he isn't willing to accept this and work with it, you're better off without him. Sorry for being so blunt, but life is too short.Celiac is difficult enough to deal with, but when you add an unsupportive partner to it... -
ARCHIVED Dream Rice
koolkat222 replied to Diva1's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you to happygirl, ravenwoodglass, and Juliebove for setting me straight!I am always so careful about checking labels, but that explains the issues I've had these few months. I switched to Rice Dream (from Soy Dream), yet have had lingering problems. It didn't occur to me that Rice Dream could be the source of it. Thanks for the help! -
ARCHIVED Dream Rice
koolkat222 replied to Diva1's topic in Gluten-Free Foods, Products, Shopping & Medications
I checked the ingredients earlier, and it looked fine. Now, looking at the front of the box, it is labeled "Gluten-free" -
ARCHIVED Dream Rice
koolkat222 replied to Diva1's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm a super-sensitive celiac. I started drinking Rice Dream a few months ago, and I haven't had any problems. I just checked the label, and I didn't see any gluten ingredients. Have you tried any other new items lately? -
ARCHIVED I Think I'M Still Consuming Gluten Somewhere, But Where?
koolkat222 replied to c12's topic in Coping with Celiac Disease
Be sure to keep an eye out for cross-contamination. Remember- all it takes is a crumb. -
I have chronic sinusitis, but I don't think it's Celiac related. More due to the neglected building (and denial of higher ups that there's anything wrong with it) I work in. Have you been suffering long? I know it's painful.
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ARCHIVED My Dad Was Just Diagnosed
koolkat222 replied to a topic in Parents, Friends and Loved Ones of Celiacs
I use a lot of peanut butter. What I didn't realize for awhile was the cross contamination. My boys eat peanut butter almost daily. Whenever I made sandwiches for them I would spread the peanut butter on the bread, then re-dip it into the peanut butter, leaving crumbs every time. Now I have my own jars of many items, and my family is used to not using the... -
ARCHIVED Land'o'lakes Website With Recipes And gluten-free Tips
koolkat222 replied to StacyA's topic in Gluten-Free Recipes & Cooking Tips
Thank you so much for posting this! These recipes look terrific! -
ARCHIVED Feeling Hurt And Depressed
koolkat222 replied to mweinand's topic in Coping with Celiac Disease
My husband and kids get it, and finally after a few years, my parents are starting to get it. My mom was always saying to try just a little. On several occasions, she just went ahead and cooked her way and didn't tell me! Finally, I said, "Mom, why don't you put JUST A LITTLE rat poison in your food or eat A FEW pieces of jagged glass? That's what gluten... -
ARCHIVED Suggestions On Handling Family Holidays?
koolkat222 replied to waitingdorothea's topic in Coping with Celiac Disease
I don't take any chances! I made a Christmas Eve dinner for my immediate family- turkey, mashed potatoes, yams, the works. Then I pack up a good amount of it the next day to take to the bigger family gathering. That's the only way I can eat at a family gathering. Others just don't realize the whole cross contamination issue. We're the ones who suffer.... -
Since any amount of gluten triggers a reaction, levels don't really matter, do they?