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chiroptera

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by chiroptera

  1. chiroptera
    Soy milk isn't dairy. There is also rice milk, almond milk and even coconut milk. The other thing I did want to mention is that sometimes people who can't eat gluten are also casein intolerant. That is different than "just" dairy intolerant. Dairy (or lactose) intolerant refers to one part of the dairy, casein refers to the milk protein in dairy. So...
  2. chiroptera
    Amy's brand makes many gluten free pizzas. Some are even dairy free. They make small ones that cost $4.99 at our stores here. Could you buy one of those and make it? I have made in in the morning, cut up and wrapped in tin foil and put in a thermos. It may not look pretty but they are good and certainly better than getting sick.
  3. chiroptera
    Hello. Do any of you or your children happen to get a red rash around the mouth (but not the actual lips; more of like a ring around the lips) and/or have earlobes or the whole outside ear that turns bright red after eating gluten? We think our son does when he has gluten (which is not intentional) but are also thinking it may be related to blue dye ...
  4. chiroptera
    Definitely! Migraines were one of my daughters main Celiac symptoms!
  5. chiroptera
    It just dawned on us that perhaps our George Foreman Grill is probably contaminated from all our gluten eating years? What do you think? thanks.
  6. chiroptera
    Sorry to be Debbie Downer here but just pulled our twin daughters out of school due to issues........I am homeschooling them now........
  7. chiroptera
    WOW Sounds like a "big episode" I had in the Spring, about 2 months before going gluten free. I had been standing for about an hour ironing, stopped, called my mom on the phone (as I was still standing) and all of a sudden I told her, OMG, I feel like I'm falling, I AM, and I gently fell to the floor on my left side all the while talking. I never ever...
  8. chiroptera
    First of all, you are NOT complaining! You have been in pain of different types this whole year. That just isn't good no matter how you look at it or what is happening to other people, should they be nice things or worse things. One thing I have learned (and I've had some really really bad years, this being one) is that what happens to other people truly...
  9. chiroptera
    OH, If your hospital has special trained social workers then I definitely would ask for their help! That is great!!!
  10. chiroptera
    Yes, we seem to do fine with the Rice and Corn Chex, but get sick from the flavored ones as well. All four of us (me and my kids).
  11. chiroptera
    Well, I certainly am NOT trying to disagree with the pp who suggested getting a social worker, but please be careful with that because one, they made "invade your territory and read too much into this" and two, betcha they will have no experience with gluten moods. Our five year old does the same thing. We know we are in trouble and storms a brewing...
  12. chiroptera
    Thank you so much for your feedback! Every year I call the doctors and since their bday is in November and often their thighs are still a mess and I just hear "oh, just give them some motrin and put some ice on it." I feel better knowing that my family and I are not the only ones thinking their may be another issue involved. I had one of my twins tested...
  13. chiroptera
    All this talk about shots made me think this would be a good place to ask this question: A little background: My twin daughters never got the flu vaccine until 2003 when they were 4 years old. EVERY singe year they get it (and we haven't yet because one, our doctor didn't get it and two, we may be dealing with an antibiotic allergy and one of them has...
  14. chiroptera
    After you get glutened (or glutenated as my 5 year old says when I look pregnant)? I am specifically talking about the upper stomach under the ribs big bloated when you are far along in pregnancy not the "gotta go now" lower abdomenal bloat....... thanks! Mine seems to last a really long time, like a week or more and I am trying to figure out if I...
  15. chiroptera
    Hey there just wanted to mention a quick thing: as explained in the book I mentioned, sometimes you may feel not better but that may not mean your new diet isn't working! Very impt to know and is in the book. I never knew that either but with an elimination diet there are various timelines for feeling better, worse, or the same. HTH
  16. chiroptera
    I don't know is anyone has suggested this book and I don't have time to read through all the posters right now, but I love it and it has great elimination diets in it all step by step and laid out and what to expect, etc. Food Allergies and Food Intolerances I believe it by Dr. Branoff can't check right now but try to have a look at it; it should...
  17. chiroptera
    OH MY GOODNESS!!! Sounds and looks just what my now 10 year old daughter just had for weeks ALL over her expect for parts of her torso. The little girl itched SO SO SO bad she broke her skin all over and had to take a zpack to prevent infection. I could cry when I think about how itchy she was. She was so miserable. The doctors (ped and allergist...
  18. chiroptera
    I find this very interesting because I had NO problems with any food at all until I almost died from a severe c. difficile infection in 2003. My gut was ripped out but thank goodness I didn't have a complex toxic megacolon that burst. SO, for me anyways, the c. difficile (I believe) caused my problems with gluten and casein. I am SO much better now off...
  19. chiroptera
    I have had two endoscopies as an adult and had NO problems at all! The first one I didn't feel a thing, although for the second I did start to wake up as they were pulling the tube which was rather freaky but not at all painful. Really, it will be fine and if I had to have another one tomorrow I would be fine with it! The one "funny" is that...
  20. chiroptera
    Cool, lots more replies! My kids (now ages 10, 10, and 5) are taking the Jarrow suggested by a previous poster. I don't know if it's a fluke, or maybe because they are healthier off gluten, but only one of the three got strep throat last week. One twin was only very mildly sick and their little brother didn't get sick at all. Usually my daughters...
  21. chiroptera
    OMG, I am SO sorry! First of all, PLEASE do not give her the money for the mix!!! After how nasty she has been? Heck NO. And if the harassment continues I would go to the superintendent. This is no different than harrassing a special needs child for needing a diaper. Everyone is different, you did ALL the right things and this teacher is a creep...
  22. chiroptera
    Just going to chime in and say that I do not like it when anyone implies that they should vaccinate their child because "oh if you don't the diseases may come back and oh, you are putting my child at first who is comprised." I say this as my children do get vaccines and are up to date, but to suggest to someone that their BABY is the sacrificial lamb...
  23. chiroptera
    We ate Lay Ruffles for a while and did okay with them then look out, got real sick. Then when also recently got sick from the regular chips and Tostitos as well. Tried the Fritos and that made us really sick. I guess my point is yes we have had problems too. We buy very little processed foods (granted it doesn't sound like it) but boy I am done with...
  24. chiroptera
    What really bothers me is that you went out of your way to make sure the vegans had something to eat (which is a choice not for medical reasons typically) and your little one MUST eat gluten and egg free or he could be VERY ill and NOONE carried?????? And he was in the hospital and you got NO support???? What the heck??? I do not think you are wrong...
  25. chiroptera
    YES!!! Not to sound weird but I get happy to hear that others have the same problem as one of my twin daughters!! GERD was her MAIN symptom of Celiac; her identical twin had more typical digestive issues. We found out via Enterolab testing that she is gluten, casein (the milk protein) and egg intolerant. If she does not eat ANYTHING with those ingredients...
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