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T.H.

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Everything posted by T.H.

  1. T.H.
    I think one of the biggest successes was that my daughter was diagnosed in the first place. With my own new diagnosis on top of that, we put the whole family on a gluten free diet, and suddenly, my son (who had tested neg. for celiac) has improved immensely too, both his health and his emotional issues. It is such a gift to go through a day and neither...
  2. T.H.
    Thank you for that information. I was not aware of that, and it was a test I was thinking of getting for my son when he's older. He's negative for celiac, but he does better without gluten, so we went gluten free anyway. A good thing to know to look out for if he's tested later on! I wish you luck that your daughter goes back on the diet again soon.
  3. T.H.
    Welcome to the community! I was diagnosed right around the same time as you, actually, early August last year. And I would say definitely err on the safe side, as you said, and stay away from gluten 100%. A gluten free blogger was talking about her GI doc, and he described it in a way that really made me think about what eating gluten every once in...
  4. T.H.
    It sounds like you have some ideas for where to look for the possible problem, but I figure I'd add one thing, just in case it helps. When I went gluten free, I did end up having a reaction similar to what you describe. Dizziness, stomach pain, elevated heart rate, etc... (by the way, extremely elevated heart rate can be a sign of an allergic reaction...
  5. T.H.
    The one thing I would do is make sure you find a very, very celiac knowledgable doctor. If you have the cash, they can give you the prometheus test (blood test) to see if you have the gene for celiac. That combined with your symptoms might make a believer out of your doc. However...the reason I say you should get a knowledgable doc? - if you have been...
  6. T.H.
    I don't know if other diseases cause flattened villi, but I would assume so. I ended up getting the biopsy first, and they still insisted on doing a blood test to 'confirm' celiac. That seems to me like it means there are other possible causes of flattened villi, yes? However, my GI had some stuff to say about the food sort of thing. This is what he...
  7. T.H.
    If you have the money(about $450), one test will make it more plausible that you have celiac disease, and doesn't require you to go on a gluten challenge. There is a genetic test by Prometheus that can tell if you have the gene for Celiac Disease. If you have the gene, then with your symptoms, it would seem to me that people will get off your back. ...
  8. T.H.
    re: the prilosec. After having an allergic reaction to a food that landed me in the ER, I was given prilosec, too. I was told that on top of the antacid properties, prilosec also acts as an anti-inflammatory in the gut, so it can help calm things down in that area of the body, for some people. I'm assuming maybe that's what they were thinking of?
  9. T.H.
    Well, let's see, successes and failures. :-) Going Gluten free didn't do it for me. I noticed no change except I felt worse! Like many people here, I had to drop a lot of other foods as well. Some were allergies I never knew I had (like sugarcane, waaah), some may be intolerances, and some? I don't even know. Seriously. I just know that if I eat them...
  10. T.H.
    I'd look at it this way: if you are reacting to grains, then you're not getting your carbs anyway, because your gut is going to be so messed up, yes? So in that case (if that's the reason behind the shift), I'd say going grain free would be a healthy choice. And it IS possible to go off grains completely, to the best of my knowledge. I say this as a person...
  11. T.H.
    Not sure if this would help, but I've read that sometimes, anti-inflammatory foods can help, a little. Fish oil, things high in omega fatty acids, olive oil, pumpkin seeds, vitamin e supplements. Nightshades, and foods high in dairy and sugar, seem to have the opposite effect (you can google anti-inflammatory foods and find all sorts of info. on-line. Just...
  12. T.H.
    Honestly, I would call if the product doesn't say gluten free. On top of that, I would hunt down what the labeling laws are in your country; that may provide some help. Here in the States, if the seasonings contained wheat, that would have to be labeled as containing wheat. However, the same is not true of rye and barley. As for spices...I honestly...
  13. T.H.
    A great big 'I hear you' sympathy pat on the back! I'm only 6 months into the diet, and my life has had to change so much, it's crazy. I don't really enjoy cooking all that much - it's something I did because eating out all the time with 4 people and one income was too much to afford. And even then, we still ate out a lot. I'm not a good cook, I didn't...
  14. T.H.
    Oh, related to the soy lecithin! my GI doc was just telling me about that, warning me to stay away from it. He was saying that he's noticed most of his celiac patients and others with auto-immune issues are more sensitive to genetically modified foods, and tend to develop food allergies more readily when they consume them. And on top of that, he was saying...
  15. T.H.
    Well, one bit of advice I don't think I read yet. :-) If you are breastfeeding when you introduce gluten, it increases the chances of at least delaying the onset of celiac disease, if not helping prevent it. However, it can also lessen the symptoms of the disease, which can make it less likely for a doctor to diagnose it. That's what happened with my...
  16. T.H.
    First - oh man, I can relate to the hunger!! I was so hungry after going gluten free, it was, as you say, horrible. I remember being happy during the times when the hunger would just be a gnawing ache rather than a full blown pain. I was losing about a pound a day, at that point. Awful. But my doctor did tell me why that happened, or at least one of...
  17. T.H.
    Sounds like it could be, or it could be allergies, or intolerances or sensitivities that don't show up on allergy tests. Did you have prick test allergy tests or blood test ones? But a delayed reaction is how gluten hits my dad. Sensitivities tend to hit later, too. I'll share my symptoms for comparison, see if they help? I was tired a lot, depressed...
  18. T.H.
    First, a sincere good luck. It's tough, but at least you know what's going on with your body now, eh? that's such a huge thing! Second, as a relatively new Celiac in her thirties (diagnosed 7/09), let me share an important statistic I found out. (you may already know, but it's such a big deal, I pass it along) If you have celiac Sprue, there's a good...
  19. T.H.
    And just something that might help when you are trying to figure out what to do with these foods? If you look up raw foods or garden foods or 'natural' foods, those are terms that have helped us find good recipes on-line that have ingredients that are less processed and more in their natural state. As an aside? If you are making a lot of changes in your...
  20. T.H.
    Something that's not quite the same, but might be acceptable to the little guy? Have you checked out Tings? They look like crunchy cheetohs, but with no cheese, and they are corn and rice based. I've seen them on some gluten-free snack lists, and we used to love them. They are very salty. I haven't verified with the company yet that they are gluten-free,...
  21. T.H.
    That is awesome. So glad to hear he's doing well on taking that active role to keep himself healthy and well! And congrats to you, too. I'm sure his attitude towards it is a great reflection on how you've been approaching it with him.
  22. T.H.
    It's so motivating, isn't it?? My son is the same with dairy. It's like I suddenly have 'demon child.' So hard to cope with. It was starting all over again - I was at my wits end - and then we found out corn does it to my son now, too! Everything from scratch, all the way. Now if I only knew how to cook better. :-) Shauna
  23. T.H.
    what foods have you been introducing, and how much are you feeding? I agree that you should check with the doctor, as weight loss is worrisome, but here's some thoughts. 1. Are you still brestfeeding your son significant amounts? Babies this age need a fair amount of fat and tons of calories, which most baby foods don't have, so if he's getting a lot...
  24. T.H.
    Oh man, I'm so sorry you hear you have to go through that! I would say that first off...I think it's a good decision not to leave the kids with them. If they don't believe it's a problem, even if they follow the 'diet,' they're not likely to take all the precautions necessary. I don't know if this would help, but have you asked why they don't believe...
  25. T.H.
    I actually think people with the 'silent celiacs,' where you get no symptoms, have it worse, in some ways! There's no real way to tell us that we're getting the gluten, right? It's real obvious that we're hurting ourselves if we get the runs or stomach pain every time, but if we don't? Hard to believe just a teeny bit can do it to you, yes? I can tell...
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