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BlessedMommy

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Latest Celiac Disease News & Research:

Everything posted by BlessedMommy

  1. BlessedMommy
    Your Ttg was sky high! You definitely should get levels rechecked as time goes on.
  2. BlessedMommy
    Brown rice is significantly higher in arsenic than white rice, as the arsenic tends to settle in the outer hull. I picked white basmati rice from India as our rice to stock up on, as I read that had one of the lowest arsenic levels. Open Original Shared Link Here's a chart with levels of arsenic in various rice products. Open Original Shared...
  3. BlessedMommy
    We still eat rice, but I eat a lot more white rice than I used to and try to somewhat limit the brown rice. I buy white basmati rice from India. We eat some brown rice, especially if I can find Lundberg rice at the Amish discount store.
  4. BlessedMommy
    Rinsing rice is a good idea because it helps lower the arsenic content as well.
  5. BlessedMommy
    Lundberg Farms rice is completely safe. (processed in a dedicated gluten free facility) According to my wholesale/retail outlet, you can get a 25 lb bag of it for around $31. Do you have a source where you can order stuff like this? Do you know of a family in need who could use the rice that you have? Maybe you could donate it.
  6. BlessedMommy
    I agree! Definitely very strong positives on several of the tests.
  7. BlessedMommy
    Ditto to the above. Have you tested for celiac and ruled it out? It's possible to have celiac and not have visible outward symptoms when cross contaminated with gluten.
  8. BlessedMommy
    Serving everything sounds like a good plan!
  9. BlessedMommy
    Hang in there! Remember any ill person can start a strict gluten free diet with no permission from anyone. I'm working to get to the point where I don't care about what people think anymore. I still struggle with it sometimes, but I'm getting better at advocating for my need to bring my own food and avoid CC. If you've exhausted all testing means and...
  10. BlessedMommy
    That's great that you got the endoscopy done. I hope that you get answers soon! Either way, though, like you said, you know gluten is a problem for you regardless of which box it fits in. Are you getting any celiac bloodwork done?
  11. BlessedMommy
    The irony is though that the scope is more likely to turn out falsely negative on kids, because their damage may not be as progressed as adults.
  12. BlessedMommy
    I'm glad that you found a safe place to eat. There's nothing like that feeling of relief when I find a celiac friendly restaurant to eat at! What is really cool is when you can find an exclusively gluten free restaurant to eat at. They're semi hard to find, but they are out there! It's so frustrating when things don't go as planned on the road, but you...
  13. BlessedMommy
    It's best to get tested for celiac disease first before making any dietary changes. I changed my diet before I even knew that I should be tested for celiac and by the time I wanted to pursue diagnosis, it was too late and I couldn't tolerate a gluten challenge. I had a rare and serious complication from reintroducing gluten and for my own health and safety...
  14. BlessedMommy
    That's interesting, I didn't realize that. Are symptoms and diet response more vague in children?
  15. BlessedMommy
    As a rule of thumb I try to eat mostly at restaurants that have an established protocol for G.F. food. Places like Red Robin and P.F. Chang's for example. Red Robin's is very careful of CC and even puts the "allergen" orders on different colored plates.
  16. BlessedMommy
    Those tests are very strong positives. You may want to shop around and find a doctor who will diagnose without a biopsy or at least a doctor who will still diagnose based on the bloodwork, even if the biopsy is negative. What will this doctor do if the biopsy is negative? Will he tell her that it's fine to keep on eating gluten? Negative biopsies should...
  17. BlessedMommy
    It's my oldest kid's birthday today. (she's 8 years old) We're having baked spaghetti, salad, fruit skewers, and smiling apples. https://www.google.com/search?q=smiling+apples+marshmallows&es_sm=93&tbm=isch&imgil=BcF67qiikE9GwM%253A%253BF2G7GEzx-IAZCM%253Bhttp%25253A%25252F%25252Fcarlsbaddspediatricsmiles.com%25252Ftooth-inspired-apple-smiles...
  18. BlessedMommy
    I'm sorry that answers don't seem to be coming. I would double check with the doctor and make sure that all the blood tests were ran, not just the Ttg. If they were and they were all negative, then you could have the biopsy. If you've exhausted all testing options, you could try the diet 100% for about 6 months. If you experienced substantial health improvement...
  19. BlessedMommy
    After trying a few different cat foods, I finally settled on Purina Beyond grain free food for our cat. Open Original Shared Link Our cat just adopted us a few months ago. Our cat loves the flavor of the food! And apparently it's doing him good because MIL stopped by and commented on how healthy he looked and how good his coat of fur looks. She asked...
  20. BlessedMommy
    You could try this one and simply substitute a gluten free flour blend. Open Original Shared Link
  21. BlessedMommy
    First of all (((hugs))). Second of all, breathe! Everything will be okay! 1) Yes, it gets easier. The gluten free diet gets easier with time and practice. 2) I wouldn't worry about educating someone if they don't want to be educated and don't care about your wishes. Just get a different house sitter who won't gluten your kitchen. 3) Unfortunately...
  22. BlessedMommy
    If my 2 year old has eaten something gluteny, is it sufficient to wipe her face down with a baby wipe? Or does it need to be washed with soap and water? Seems like one could theoretically get glutened by kissing a gluteny baby face and it's becoming more of a worry now that my kids eat more gluten.
  23. BlessedMommy
    Keep in mind that there is a 5 factor list. If you have 4 out of 5, it is solid enough for a celiac diagnosis. 1) Symptoms of celiac 2) Resolution of symptoms on the gluten free diet 3) Genes for celiac 4) Positive bloodwork 5) Positive biopsy So if you had everything but the positive bloodwork, then likely the doctor could diagnose it from those...
  24. BlessedMommy
    There are other members here who have gotten negative bloodwork and a positive biopsy and their doctors diagnosed them with celiac. I think that unless you can find some other explanation of why the biopsy is positive, then that is pretty diagnostic right there.
  25. BlessedMommy
    Thanks everybody! She did not seem bothered in the least by what I wrote, but completely skipped by the testing part that I mentioned and asked for my favorite bread recipes. That's alright. Everybody has to make their own choices. I just know, that for me, I started cutting out wheat before I was even aware that I should've been tested for celiac and...
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