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gf-soph

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Everything posted by gf-soph

  1. gf-soph
    Just to add, I didn't see if you mentioned if your B12 has been checked? I have very similar symptoms when I am low in B12, it's pretty obvious when I am below 200, but for me below 300 also gives me symptoms. The symptoms of low B12 is also exacerbated by low iron for me, as it adds exhaustion to the lack of balance and coordination. If you haven't had...
  2. gf-soph
    In general the gluten free market seems to be doing very well, you just have to look at the explosion of products and gluten free menus over the last few years. Even in the 2 years I have been gluten free there has been some major increases in availability. I live in Sydney and there are a few different gluten free bakeries that I know of, but one in...
  3. gf-soph
    Your dr may be proactive about the B12 as it can cause neurological damage when it's low. I know then when I am below 200 I feel extremely unwell, and I'm under 300 I can feel it as I feel generally unwell. I got to 88 at one point, and was having resting tremors in my feet, as well as weird out of body sensations, i would fall over when standing still -...
  4. gf-soph
    Not a problem. I am on my lunch break right now, so don't have time to write it out. Instead of adding it to this thread I might start a new one outlining the basics of the diet, look for something about RPA elimination diet. It's much easier for Aussies as our dieticians can access the information about the diet, I'm not sure it's so available overseas....
  5. gf-soph
    Your B12 is fine, so it's unlikely that the numb hands are related to that. I didn't get neuro symptoms from B12 until I was below 200. I don't know much about D deficiency, but I haven't heard of it being related to numbness. Are the numb hands only at night? If so, it is when you are in bed? I have had numbness in my hands and arms at times, and for...
  6. gf-soph
    I'm looking into fodmap again after trying it out last year, one of the articles I have lists cabbage as an unfavourable food as it contains "raffinose and other galacto-oligosaccharides". Of course, you can always trial a little at a time and see how you react, the negatives of having a little extra raffinose in your system may be outweighed by better digestion...
  7. gf-soph
    yep, i'm talking about natural chemicals - salicylates, amines and glutamates, and while on the elimination diet you also cut out most preservatives and colourings. I recently challenged salicylates, and boy did I react! Ironically organic foods can be higher in these chemicals - salicylates are like the foods own pesticide, so you get higher leves if...
  8. gf-soph
    I have a very small family so not much chance to see any patterns that may show up in a larger group. Saying that, my grandmother survived colon cancer in her 50s, she came very close to dying. She recently went gluten free and is doing amazing, from her symptoms we think she's had gluten problems all her life. I recently had a precancerous colon polyp...
  9. gf-soph
    Your dr can be the nicest guy in the world, but if he isn't helping to get you well then he is worth nothing to you. Drs can be lovely people and still be WRONG! I had a nice old dr for a while who neglected my care so much I almost ended up with permanent neurological damage from low B12 - mine was 88 at one point and I had developed a tremor in my leg...
  10. gf-soph
    That's great that you've had improvements from the iron. I had a rollercoaster of low iron and B12 for about a year, until I got a good GP. We were monitoroing both at 2-3 week intervals for a while, as my levels would just totally crash. It got to the point where i could walk in there and say I feel low in iron, and she would just inject me, as she knew...
  11. gf-soph
    Yikes, that is a long list. I do sympathise, as I have had to cut out a lof of the same things. I'm a vegetarian, and over time I had to stop eating all legumes and pulses, onion, garlic, broccoli and all similar veggies, most fruit, with the worst reactions from grapes, citrus and apples, artificial sweeteners, fatty foods, spicy foods, and alcohol, on and...
  12. gf-soph
    I know it's not much to guide any real world treatment, but the possibility that the fructose may bind to proteins or animo acides in the intestines is at least interesting. It's annoying that there isn't any further follow up, you'd think recruiting a sample of fructose malabsobers, testing their blood levels/depression, then getting half to follow a...
  13. gf-soph
    I think with specialists who are behind the times, they need the scientific evidence to consider changing their minds. The paper that TH linked to is a good one, there is another I saw, reference is Neurologic Presentation of Celiac Disease, KHALAFALLA O. BUSHARA, GASTROENTEROLOGY 2005;128:S92
  14. gf-soph
    I can see why you are scared, it must be a horrible feeling. You have been the hospital, which is good. If the pain was from your heart being damaged, they can pick that up using blood tests, which I imagine they looked in to at the start to make sure you weren't having a heart attack. Due to the pain you are in you also may have strained muscles in your...
  15. gf-soph
    Fructose Malabsorption is Associated with Decreased Plasma Tryptophan M. Ledochowski, B. Widner, C. Murr, B. Sperner-Unterweger & D. Fuchs Scand J Gastroenterol 2001 (4) p 367-71 The abstract and citing articles are free to view.
  16. gf-soph
    I would second the corn thins, they are pretty tasty. Not quite sure what else, I have recently cut out rice too, and haven't looked in to replacing it for snack yet. I'll let you know if I have any great ideas Just fyi, asparagus is pretty high in fructans, which can upset some people. If it's just that, it may be specific to the food. If you are also...
  17. gf-soph
    Oh, IBS. Any time a dr brings out that gem, I know I'm not getting anything from them. If you are being kind, at best IBS is a description, not a diagnosis. It doesn't help you get anywhere. Overall, it's good to get the colonoscopy done to rule out anything nasty, but you are missing a lot of info if they don't do the endoscopy too. There is no point...
  18. gf-soph
    I suspect there are a few people here with fructose malabsorption, I'm pretty sure I'm one of them. Here's some food for thought... I have been doing some research, and came across a paper called "Fructose malabsorption is associated with decreased plasma tryptophan" (tryptophan is a precursor to serotonin). It turns out that *women* diagnosed...
  19. gf-soph
    I've been on an elmination diet for 2 months now, and have just got well enough to start introducing things. I have been gluten-free for almost 2 years, but still had lots of problems, mostly GI but also a lot of brain fog/mood issues. When you say elmination diet, have you just cut out the foods you mentioned, or are you right down to a very basic diet...
  20. gf-soph
    I used to think that to have a problem with rice would be the end of the world, but I have felt so good the last few days I honestly dont care! I am not planning on cutting it out unless I really need to, but I have plenty of things to introduce before I get to it. Wolicki - thanks for the info, I'm hoping I can increase my tolerance over time once I have...
  21. gf-soph
    Hi all I am on an elimination diet at the moment, have been for about 2 months. I have had some good improvements in GI symptoms, but still had problems with exhaustion and brain fog in particular. Things were reasonably consistent until I had a really bad week last week. I couldn't get out of bed until midday, missed work, felt moody and exhausted and...
  22. gf-soph
    I totally get you wanting a gluten free ktichen, but the practicalities depend a lot on how your house is set up. When I went gluten free initially my family wouldn't change the kitchen, they thought I was being paranoid or that i could just deal with it. I got my own crockery and pans and all that, but the crumbs and food was too much to handle in the...
  23. gf-soph
    Instead of freaking out about it, try looking at it from her point of view. If you were going out with someone new and were accidentally making them sick from something you could control, wouldn't you want to know and stop it? I know it's not super romantic, but changing her brand of lipgloss and brushing before kissing someone isn't that big a deal really...
  24. gf-soph
    I think how you go with introducing meat will depend a lot on your emotional state towards it, but also partly on how long you have been vegetarian. I am 24 and raised as a vegatarian, I had tried fish as a child and didn't really like it, and had never even tried any other meat. I went on a very strict elimination diet last year, and as my symptoms...
  25. gf-soph
    I've spent a lot of time feeling down about my health, about the pain and discomfort, about the fact that I can't start my higher study until I get my brain function back, and all the fun I've missed out on over the last few years. But, I had a colonoscopy recently as the Drs thought I might have Crohns. They didn't find anything to explain my symptoms...
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