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StacyA

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Latest Celiac Disease News & Research:

Everything posted by StacyA

  1. StacyA
    Touching gluten is not the same as ingesting gluten. Gluten has to get to the intestines to cause the autoimmune response (ie via the mouth/swallowing.) Similarly - HIV has to get into the bloodstream for you to contract the virus. Don't try this at home, but if your skin is fully intact (no scratches, hangnails, ect) you can stick your hand in blood...
  2. StacyA
    I know that symptoms vary from person to person when they have exposure to gluten. But have you all noticed if your own individual symptoms are consistent each time you are glutened, or do they vary? I would like to be able to tell when I'm glutened, to help me figure out what products or kitchen habits are risky (I'm diligent in reading labels, but...
  3. StacyA
    In my Sunday paper I recently found a $5 off coupon for Align (it's $30 for a month supply around here!)
  4. StacyA
    I know Hershey's doesn't have a good reputation on this site, but I really like Special Dark, and I did some research on the baking chips but saw conflicting info, so I spoke to a rep today who confirmed they are gluten-free - but they just aren't listed on the 'short list' of 'suggested gluten-free items' that Hershey puts out. I asked why, and she said...
  5. StacyA
    I also react to MSG, so I look for 'gluten-free' and 'no MSG'.
  6. StacyA
    I bought some 'Pecan Pie' glazed pecans - Emerald brand (owned by Diamond) because based on the ingredients list they look gluten free. The only questionable ingredient is 'natural and artifical flavorings'. I went to the Emerald/Diamond website to make sure and in their FAQ they list 4 'Emerald Premium Snacks' products that contain gluten: "Within...
  7. StacyA
    I also vote for marriage counseling: psychologist. licensed social worker, licensed counselor, or licensed marriage and family therapist. A third person, trained in human dynamics, can be a great interpreter between the two of you. If you find someone good it shouldn't be for a very long time, either. And couples' counseling truly should make things better...
  8. StacyA
    I was just diagnosed in Aug and brand spanking new to gluten-free in Sep. and I went on a week-long business trip in Oct. I was NOT looking forward to it, but I had made the committment months earlier, before I had even heard of celiac's disease. However I made it through surprisingly fine - but with a lot of preparation. I packed a lot of food that...
  9. StacyA
    I hadn't heard of this and went to get more info, but my computer keeps freezing up at the Apple website (maybe because I don't have an Apple computer and they KNOW.) Is there restaurant info or just grocery store type stuff?
  10. StacyA
    He's right that problems caused by ADHD sometimes don't show up until later years for kids with AHDH Primarily Inattentive Type (back in the day we called it ADD, and if you had hyperactivity it was ADHD), but the disorder was always there. I've talked to a lot of parents who had no clue their child had ADHD Primarily Inattentive Type until problems start...
  11. StacyA
    Professional thought and research points to the fact that ADHD is an inborn condition. Actual ADHD is not a side effect of something. Depression, however, can result in some symptoms that mimic ADHD - specifically the difficulty concentrating or withdrawal that looks like not listening or following through on things. However if the depression is successfully...
  12. StacyA
    Sorry I didn't reply back in Oct. when you queried, busy month (I'm newly diagnosed). I don't necessarily have a personal history with depression, but my profession is that I provide outpatient psychotherapy (independently licensed social worker). Sounds like a lot going on with your daughter, and any good therapist will be open to re-evaluating opinions...
  13. StacyA
    I just bought a month's worth of Align (that was the sample my GI doc gave me) - so I'll try that. - Stacy
  14. StacyA
    What about Carnation Instant Breakfast powder? I used to use Ovalteen every day in my coffee, and I switched to Carnation when I went gluten-free. (However I'm still in the early stages of gluten-free, so I may not yet be able to recognize getting glutened) This is from the Carnation website, and there have been prior posts about it: "For our Powders...
  15. StacyA
    Yes, most FSA plans allow for the extra cost of a special diet to be included. You'd have to check with your employer - you may need a letter from a doctor and you'd have to keep receipts.
  16. StacyA
    I'm new to gluten-free, and even had to go back on gluten for 3 weeks for my biopsy, so I know that it'll take time for my GI sxs to clear - however my villous damage was only 'mild' and I'm experiencing a lot of intestinal gurgling and mucous in my stool and I've started to wonder about yeast (I searched through old posts about my symptoms). I think an...
  17. StacyA
    If you have a wellness reimbursement account through an employer (where you set aside part of your paycheck in a tax-free account) - the extra money you have to spend on gluten-free stuff can be reimbursed through this account. Ask your human resource person if it's something offered through your job - it at least can save you a little bit.
  18. StacyA
    Regarding 'half of celiac's are casien/lactose intolerant' - that may just be at first, due to the intestinal damage. I saw a dietician last month (who herself has celiac's) and she told me not to worry about dairy unless it was already obvious to me I had diary problems (I loooove dairy.) Now, I caught my celiac's early and only have mild damage - your...
  19. StacyA
    When it comes to your health and a major change in your diet - you should get as much accurate testing as you can get. Ask for biopsies while you're getting the endo - and don't rely on your GI doctor just 'looking' while s/he's there. Plus you'll have to be eating gluten for awhile first (opinions vary, my GI told me that 3 weeks was okay.) I just had...
  20. StacyA

    ARCHIVED Chipotle's

    StacyA posted a topic in Gluten-Free Restaurants

    I've reviewed old posts about Chipotle's - and have seen mixed opinions. I'm new to gluten-free and had never been to Chipotle, but I had heard it was a good place for gluten-free options. I'm traveling right now and was happy when I saw a sign for Chipotle along the highway, so I stopped. The employee was really nice. I didn't get a tortilla or chips...
  21. StacyA
    I made a batch and froze most of them in sealed plastic bags. I pulled them out one by one and ate them still a little frozen - nice and gooey. Thought I'd just pass that on. I had to hide them from my husband and boys!
  22. StacyA
    Thank you sooo much - your examples are exactly what I was asking for. It helps to know what to look for (at least for the companies that promise not to 'hide' gluten.) - Stacy
  23. StacyA
    I checked in September and Chocolate Chex was not gluten-free - only Corn, Rice, and Strawberry Chex were gluten free. I thought I had seen somewhere that the chocolate was gluten-free, and I got excited and went to the store, but it wasn't labeled as 'Gluten-Free' on the front like the other ones, and when I reviewed the ingredient list I must have seen...
  24. StacyA
    This is from an email I got from the NE ohio celiac support group, although the spots may already be taken up. The Northeast Ohio Celiac Support Group & Tommy's Pizza Chicken Ribs have once again joined forces to plan a GLUTEN-FREE BUFFET! Date: Sunday, October 18, 2009 Time: Choice of 2 Seatings: 2pm or 5 pm. Place: Tommy
  25. StacyA
    I'm also confused about the fries. I checked last week, and their website says wheat on the fries, but just 3 weeks ago I went to a dietician who has celiac's herself and she said the fries were gluten-free and she even showed me last month's edition of some celiac magazine with McDonald's fries right on the cover and it said 'Yes, they're gluten-free' or...
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