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nmlove

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nmlove

  1. nmlove
    My son's three, recently diagnosed with celiac disease (by serology, family history). He's not reacting as fast to the gluten-free diet as his older brother. Apparently he has DH - not biopsied but considering the rash started to go away once gluten-free, what else could it be? Anyway, he was looking good but then almost 3 weeks ago the little stinker grabbed...
  2. nmlove
    Obviously stay gluten-free. With that said, having a baby can do funny things to your body. Glad yours is a positive thing! My third is 7 months and I started having food issues while pregnant and after - some were totally new, some had been there all along. Enjoy your baby!
  3. nmlove
    Our favorites (some me, some my kids) are: EnviroKidz (any), Erewhon (I like the rice + dried berries best) and Chex (rice, corn).
  4. nmlove
    I can't help with the traveling but as far as new food experiences, I find myself branching out more and more (I did to an extent before but now am really gung-ho). Of course, we make most everything at home. But a change in diet for no migraines? I'd gladly do that. I don't get as many as you but I have/had enough to know I wouldn't want to!!! Good luck...
  5. nmlove
    My sons were diagnosed in the fall. My oldest showed immediate improvement on the diet (he's 4). He does great. I've only seen a few sad faces (one over no hot dog bun and another at a brownie at a play date). Otherwise, he asks if it's gluten-free, accepts the diet and loves all our baking experimetns! My middle child (just turned 3) hasn't responded as...
  6. nmlove
    This such a touchy subject. Our daughter's 7 months. Her two older brothers have celiac. We enrolled her in Dr. Fasano's research study. Because of her age, she's in an observational group. But they did genetic testing (waiting for results) and they take blood/stool samples every 6 month. We're keeping her gluten-free until a year but then we'll decide where...
  7. nmlove
    I completely understand! It's totally a personal decision. But if you are going to do more tests she must stay on gluten. It will be much harder to put her back on later if needed. The biopsy could be negative because of her age (her gut's not as damaged as someone who's been suffering years and years undiagnosed and the biopsy just missed it). The good thing...
  8. nmlove
    Can you get a 2nd opinion? Here's what my son's GI doc said he'd do if his biopsy was negative (it wasn't). First, do genetic test to rule out celiac. If that was "+" then it was most likely celiac, just gut not damaged enough. If "-", not celiac but something's causing the blood work to be + so he'd have to go gluten-free anyway. I don't know names of diagnoses...
  9. nmlove
    My sons were actually pretty healthy. I mean, they got sick, had colds here and there but nothing overly wacky (or constant) except one incident that I'll mention in a minute. As far as bowel habits, both just had exaggerated habits from the time they were babies and exclusively breast-fed which is why I didn't think too much of it (one always pooped, the...
  10. nmlove
    It's really a personal decision. Talk to the doctor. For us, our oldest had a very positive blood test, no family history. The GI doc talked to us about it, saying they look to make sure it's celiac (at that point, there was a 5-10% chance it was something else), to see the damage done(could affect aggressiveness of treatment beyond just gluten-free diet...
  11. nmlove
    Our son had some accidents between 4-4 1/2 (after being trained for a year). Except he started out with just peeing and then it went into poop, but most especially diarrhea. At the time he was under stress. He had been in/out of doctors, hospital, doing tests, etc. for something unrelated to celiac disease (he was also undiagnosed at that point). As that...
  12. nmlove
    Oh bread... We just made Karina's sorghum millet bread over the weekend. Yum! Check out her stuff at glutenfreegodess.org. She's free-of lots of stuff.
  13. nmlove
    I'm confused as well. Seems like the doc said it looked like celiac so why wouldn't it be? ??? If he's showing an allergic reaction, all the more reason to keep him off. I'm sure others know this but I had no idea. When I was at my boys' follow-up yesterday (3 months gluten-free), their GI doc sent my youngest for additional bloodwork as this was the first...
  14. nmlove
    Here's a weird/interesting thought. My sons' just went to their follow-up today. My oldest has been gluten-free for 3 months and the doc asked if he'd been complaining at all of stomach pain. He hasn't. But the reason was that sometimes kids complain because they're not used to the feeling of formed poop (he had diarrhea as one of his symptoms). Just an interesting...
  15. nmlove
    A gluten-free diet can also lead to deficiencies in certain things, like iron, folate, etc. simply because gluten-free foods aren't fortified with them like a "normal" gluten diet. Iron and folic acid can definitely affect a pregnancy. I'd make your ob aware and they can test for that. Mine always does an iron test along with the diabetes test anyway. Congrats...
  16. nmlove
    SandSurfGirl - you sound like me! I'm about a week and a half into gluten-free and finally starting to turn around. Just going gluten-lite, if you will, when my boys were diagnosed in the fall, helped so much with the patience around my kids. I noticed when I did eat a lot of gluten (such as pasta or a pizza) I'd have a few days of, um, being not so nice...
  17. nmlove
    I agree with Richard. If the test is positive, great (well, not great but at least you know). If negative you can still do the diet to see if it affects them. My kids' pediatric GI doc told us blood test, then biopsy (we didn't have to biopsy my 2nd). If both were negative (they weren't), they'd do genetic testing to rule celiac out. Regardless of the genetic...
  18. nmlove
    Have you tried other alternative milks like almond, hemp? I see this issue in my breastfed daughter. I kept reading how the oil and soy lecithin were ok but my daughter kept proving they were not! It's a pain reading labels for soy because it's not always bolded or in the "contains ..." statement if it's just the oil or lecithin. Plus, it's in everything...
  19. nmlove
    I'd say so. You should do some research on Juice+. I briefly considered it for my kids but researched it and was very iffy. I can't remember the details so you'll have to do it. Basically, if you're eating lots of fruits/veggies, you don't need it. You can get more out of eating the whole foods than taking a pill. Plus, it's expensive. Also, when I talked...
  20. nmlove
    Isn't that great! I've been the same way. My boys were the ones who had to go gluten-free (back in Oct/Nov). I went mostly gluten-free but it wasn't until recently that I decided to go 100% despite negative bloodwork. I too have slowly gained over the years, especially with the help of three pregnancies, but I've been steadily losing weight without even trying...
  21. nmlove
    That sounds like a good plan to me. And the good thing is, if it is allergies/intolerances, she has a good chance of outgrowing them if you keep them away from her for the first few years. I still question the celiac testing (as far as accuracy) but that's something to go through with the doc. By the way, do you breastfeed? I know it seems hard to believe...
  22. nmlove
    I'd lean towards allergies myself. Interesting her doc jumped to celiac. Of course she could have it. But you also said she's not consuming that much so I'm wondering if the tests will even be accurate. Also, has she reacted to wheat in other things? Sounds to me, based on your post, she's reacting to oatmeal (as a cereal) and in a product (the puffs). Good...
  23. nmlove
    Whoops, guess I goofed on that one, sorry!
  24. nmlove
    Mine has a horrible habit of not eating breakfast and even worse, many days at work he ends up skipping lunch because he's so busy. Let's just say he has bad eating habits and leave it at that. I'm sure you all know you can't change someone else... And because he eats what I make for dinner, he wants his "gluten" some time (not really gluten, just junkier...
  25. nmlove
    It's funny in a way, isn't it? It seems like you either shy away from foods that your body doesn't like or you crave them. I saw that in both my boys with gluten. One started eating more gluteny foods, less "good" stuff. And the other slowly started eating less, of everything.
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