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nmlove

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nmlove

  1. Just wanted to say that the ttg test is pretty specific but there's still 5-10% chance it's not celiac. My son's GI told us this. He didn't go into detail what other conditions could be a problem but this is what he did say. If my son's endoscopy was negative (it wasn't) he would do a genetic test to rule celiac in/out. If he was negative, he'd still have...
  2. I'd go back to what you were feeding him before the problems started. He's a year so he really doesn't need formula, right? I breastfeed so I don't know how long formula goes for. Though I do know it's the main nutrition for the first year. What if you weaned him entirely off formula now or just go back to the original brand? Then, slowly make changes...
  3. There's a couple of questions in there. From what I've read on allergies, if you have allergies that ups the chance your kids will too. But then again, they might also be allergy free. Also, just because you have an allergy to soy doesn't mean your child will but they could be allergic to something else instead. Before bed snacks. She likes milk. Will...
  4. Those are some major lists! Good luck with the prep! My family's going to my in-laws and my two boys are the gluten-free ones. Since they're young they don't stuff themselves. So they picked a few things for me to make and take. Cornbread (in place of stuffing) and pumpkin bars for dessert. At my in-laws they can choose turkey or ham, vegetable side (my...
  5. As you'll read, everyone's sensitivity varies. My two young sons have celiac and we're just over a month into the gluten-free lifestyle. This is what the dietician told us to start out with. She suggested buying flours from dedicated facilities as the risk of contamination is too high. Otherwise, go by the label. If it doesn't say wheat, barley, rye, malt...
  6. Hey thanks, I'm heading to Trader Joe's tomorrow to stock up. I like theirs better anyway! My boys are just flying through the stuff!
  7. Well, I'm new to gluten-free baking too but I have been using Domata flour. Personally I'm not going to use it again but I don't want to waste it either. For me, it has too much rice flour. What I've been finding with my baked goods is that I need to bake longer than I think. I've even inserted toothpicks. Came out clean and still was too gummy once it had...
  8. My household is mostly gluten-free. My two youngs sons recently diagnosed with celiac. We've been gluten-free about a month. Lunch and dinner are gluten-free. So I end up eating mostly gluten-free, though I occasionally have something with gluten (like cereal or sometimes a flatbread or something). But here's the funny thing, I'm eating super healthy - lots...
  9. My son's been gluten-free for a month now and I noticed differences in the first week, more the second. I'm curious to see how my 2 year old changes once gluten-free (he just tested positive too). Just wanted to say I didn't know about Rice Dream (by all appearances, it looks gluten-free). I typically use Trader Joe's brand, plain but I have to get there...
  10. Hi there, my two year old has a suspicious rash too. His older brother (4) was recently diagnosed with celiac and now my younger one's bloodwork came back positive. I wouldn't be surprised if the rash is related. I actually thought it was eczema, as did the pediatrician. I knew nothing of dh or celiac disease. Now, I look at it differently. Both my sons had...
  11. Yes, it's on their website.
  12. Agree on the temporary gluten-free status. Plus, I'd do up frozen meals (at least the main part) so it's easy for them to put it on and do up the sides. You can have a menu of sorts. And if they're not willing to stick with it, then maybe they shoudl have to stay out of the kitchen. It really depends on them and their eating habits. For instance, my parents...
  13. Yes, I am glad we are finding out early. It's kind of funny though. I was doing pretty well with everything but after I got the call last night I felt down so I guess somewhere deep down I'm not done grieving. It'll pass, I know. And yes, that's exactly why I've decided to keep my daughter gluten free for a few years. Not to risk her development. Because...
  14. My son (4 years) was diagnosed with celiacs nearly three weeks ago (positive blood and endoscopy). And we just got the news that my 2 year old's bloodwork is positive. On one hand, it'll sure help with cross-contamination in the kitchen but at the expense of him having this disease? -sigh- I guess gluten-free for my littlest one for quite awhile (nearly...
  15. Thanks! Do you put it in straight from the oven or let it cool for a bit, then stick it in? I'll have to try this.
  16. So I haven't done much gluten-free baking but I seem to be having a problem. I've made two great recipes - one a pumpkin "bar" (more like a cake) and cornbread. Both are good but on sitting out they start to get gummy in the middle. I thought the bars did that because I put the frosting on before it was cooled all the way. But now the cornbread did it too...
  17. My household didn't get it - my husband, me, 4 and 2 year old, 4 month old. There was no sense because the flu hit us before the vaccine was even available. I think we all experienced something but my 2 year old was the classic flu case - fever, fatigue, not eating, vomiting. He got over the cough last week and is now on to another virus. What a fall season...
  18. We decided to test my 2 (almost 3) year old after my 4 year old was diagnosed. We're waiting on the results. I know there's a strong chance of it being a false negative but what if it was positive? And according to symptoms, it sounds like they're all over the place and even the doctors/dietician we met with say some say they have no symptoms but once they...
  19. My son was just diagnosed (+ bloodwork, + biopsy). Before he had the biopsy we asked his GI what could it mean if he had a negative biopsy. His response? To do a genetic test - that would rule out celiac or have it in the running (meaning his biopsy would eventually be + if it was celiac). With or without the genes, he'd still have to go gluten-free because...
  20. I just made the tropical chex mix - yum! I can't wait to try out some more for some easy kid snacking (and me too!).
  21. I'm sure many can relate. My own MIL is very confused with my son's diet and keeps saying she doesn't "get it." And here she hadn't even read what I sent her! A very simplified overview of celiac disease and the diet. Like I've read on another post, some of it has to do sometimes with a different generation. If I were in your shoes, I'd leave it at what...
  22. Hi Amy and Sarah, Take it a day at a time, step by step. You're not going to make a lifestyle change over night. While you go through your food at home, keep meals simple - meat, fruit, vegetable, some rice. Then you can slowly start experiementing. My son is 4 and was just diagnosed. I think the transition for me isn't too awful merely because I've already...
  23. I found this little blurb. It may or may not be helpful. Open Original Shared Link
  24. A fun, quick lunch/dinner that my boys love is pasta pizza. Cook up some pasta. Coat with pizza sauce and add anything you would to a pizza (or process veggies to hide in the sauce): black olives, cut up pepperoni, mushrooms, peppers, etc. Have the sauce warming up before pasta is ready. Precook veggies if desired too. Top with cheese. They love adding the...
  25. Thanks Peter. I bet the dietician was talking about the top 8 allergerns (as regulated by the FDA) being voluntarily put on meats, etc. Good to know grains must be put on the label. There was a lot of info coming at me, as you can imagine!
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