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amberlynn

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Everything posted by amberlynn

  1. amberlynn
    Yeah, that's what I thought. I told her this as well, but she seems to think that the test should show something - and the endoscopy will pick up something if my intestines haven't healed (which it sounds like they haven't). I avoid soy for the most part, most meals are dairy free. I haven't noticed any worsening symptoms depending on whether I eat dairy...
  2. amberlynn
    So after a bad 'flare up' of something last month, I called the doc and told him. I've had issues on and off for years with my BM's, but this was exceedingly bad. He sent me back to the GI (last time I went was 3 years ago - they wanted to do a colonscopy then, but couldn't tell me if it was safe while BF, and it didn't seem a big deal then). Saw a new...
  3. amberlynn
    I'm having an upper and lower endocopy on Wednesday, so we can feel nervous together! I've heard it isn't so bad, as everyone has stated - but I'm still nervous . Mine is coming after years of issues, and I finally found someone to listen to me! A nurse practioner at a GI's office - and she thinks its possibly IBS, probably Celiac's and/or Crohn...
  4. amberlynn

    ARCHIVED What A Let Down

    amberlynn replied to jenngolightly's topic in Doctors

    I would call them and let them know that you did wind up with a rash. My friend's little boy had a similar problem, with 'cockroach' on the SPT. They had her measure the size of the rash and took that as a reaction.
  5. amberlynn
    Yeah, I've been reacting severely to even the tracest amounts of gluten. The reaction is ridiculous, lol. But, yes, you could have developed a dairy problem as well. I, personally, am having a sudden severe issue with egg of all things. I've always had a little trouble with them, but now I can't eat eggs (unless they're baked into something, go figure...
  6. amberlynn

    ARCHIVED What A Let Down

    amberlynn replied to jenngolightly's topic in Doctors

    Allergy testing is not always accurate. It really only gives the chance that a reaction may happen. There is a small amount of people that allergy testing does not work for at all (something like 5% of people). Skin prick testing is more accurate, but not the end all be all. For some, it works fantastically, for others, not so much. We have a 3 year...
  7. amberlynn
    My doc gave me (forgive me spelling!) Meloxicam? It's an anti-inflammatory. It worked yesterday, thankfully! Today I woke up mostly pain free. I was glutened a week ago today. I have zero interest in taking liver and body damaging pills for forever and a day! I'm just so tired of being in pain and tired. I know that I can't just take a pill and be...
  8. amberlynn
    Is that possible? I know that autoimmune diseases can run together (though I am not diagnosed Celiac, I maintain that I'm highly allergic b/c I do suffer BADLY with even the slightest cross contamination!). And 2 co-workers want me to get tested for RA. I have not been tested for ANYTHING. I'm getting really frustrated with the lack of concern... because...
  9. amberlynn
    My son gets hives (and swelling, etc) from dairy. He's considered anaphylactic to dairy, and we carry benadryl and epipens. I occasionally get hives if I get gluten. Sometimes from sulfites - doc put me on Imitrex, which is a sulfate drug for migraines - and I wound up with some major problems breathing!
  10. amberlynn
    I made this, but subbed all purpose flour, tapioca flour and some sorghum, plus aded a little xanthan gum to keep it together. It turned out great! Nice and spongy, springy! Glad to have something quick to make, cause I am so tired of making a loaf of bread twice a week!!
  11. amberlynn
    OK, here's what I did... I really got to start writing this stuff down, lol. Measured 1 1/2 cups bob's gluten-free ap flour, added tapioca flour to make 2 fulls cups (all together, so 1/2 a cup of Tapioca) 1 package of yeast, 1/2 tsp of xanthan gum, 3 T of sugar, combine all in a large bowl. Add warm water and 1 tsp of salt. Beat with an electric...
  12. amberlynn
    I swear, my best cooking guide is my old Better Home & Garden's cookbook I got for my wedding! I pulled it out today, and made bagels! It took me nearly 2 hours, but they rose, and they baked, and they actually tasted good! Now I want to make some 'kid' friendly ones, different flavors, etc. It was labor intensive, but easy at the same time. ...
  13. amberlynn
    I love your story! So glad you figured out the cause of your family's problem. I just discovered in October that both I and my 4 year old son have a gluten allergy. I'm 75% sure my Mom also has a problem, and relatively sure my Dad has a problem as well. My symptoms were so vague, and seemingly unconnected. Severe nausea, joint and muscle pain, allergy...
  14. amberlynn
    Ha Ha! The sad thing is, he asked for help - and the lady handed him the tartar sauce! WtH? Whatever... Yeah, I made chocolate waffles with some cocoa I had in the cabinent. Put some peanut butter on them, and they were super yummy and filling! As far as dinner goes... I'm still at a loss. Hubby will have to improvise .
  15. amberlynn
    So, I've got no money to get to the store, so I need to make something with what I Have on hand. I've got no yeast, of course, except one packet that I'm pretty sure is nasty bad, lol! I found it hidden under some stuff in the cabinent - and there's no way I'm using it (it doesn't feel grainy, it feels mushy). So, I've got Sorghum, Tapioca, Garbanzo...
  16. amberlynn
    I *might* start feeling a little tired after a few hours, but it doesn't hit til the next morning. Without fail, if I get glutened, I'll get up feeling awful the next day. I'm trying to figure out what my problem is today... I'm hoping its just something simple and not a glutening...
  17. amberlynn
    Get a good gluten-free prenatal vitamin (kirkman labs is good - and it didn't make me nauseated!). Eats good, green, leafy veggies. Get plenty of rest and exercise (and continue while pregnant!). Start doing kegels now Open Original Shared Link. You've gotten LOTS of good advice!! And there's lots you can do while pregnant to help ensure an easier delivery...
  18. amberlynn
    Ha ha, I've lost about 2-3lbs now over Christmas!! In all seriousness, I wouldn't have gone. That's just sucky. My friend is having his rehearsal dinner at my FAVORITE pre-glutenfree pizza place. Needless to say, I called him the other night and explained that I was highly uncomfortable even stepping foot in the place (I get glutened from airborne...
  19. amberlynn
    OK - my kid is severely allergic to dairy, and there is the protein in the butter. He is NOT lactose intolerant, he is anaphylactic to any and all dairy. So, we're not new to this, lol Do not try to clarify the butter either. There is still a chance of the protein being there and making you sick. Smart Balance Light is casein free, and Fleishman...
  20. amberlynn
    Wow, I can remember being in Jr. High and having the big D in the middle of the night. All through HS, etc. Embarrasingly enough, at one point in college after I had mono (really bad, lost 40 lbs in 2 months!), and would constantly be running to the bathroom and even once I didn't even make it. No warning or nothing. So humiliating - but I was alone...
  21. amberlynn
    I ask the checkout lady to make sure that DH's bread is in its OWN bag, and I place it at the far end of the counter, and I put it away first thing when I get home, wash my hands, and then put the REST of the groceries away, lol. My DS is severely allergic to milk, and we have to be just as careful about CC with that as with gluten. His aunt tried to...
  22. amberlynn
    Oh my! Yeah, I've got a sinus infection right now, and it started with a nasty cold a month ago. My Dad said "I told you, your body is short on gluten, you need to eat more gluten!" So, its a big fat joke . Whatever. So, it'll take a LONG time, but eventually they might get it. Once you're better and they can see that, it'll help. Hopefully you...
  23. amberlynn
    Yeah, if having a formal diagnosis would help me pay for the food afterward, I would probably suffer a little while longer! But, what if it just a sensitivity and not Celiac? Tests aren't 100%, what do you do then? Just eat the cost? Just curious. ciavyn - yeah, I'm pretty active too (I went to the gym 3 times a week even). I work retail and...
  24. amberlynn
    jeez, had a nice long post that my 2 year old deleted . I'm also 29, and have long felt much older than my years! Not as severely as you seem to, but I definitely understand where you're coming from. I felt like a horrible mom b/c I didn't have the energy to really deal with my kids. I went through all the motions, but when you've got 2 kids, 2 years...
  25. amberlynn
    I searched and searched and couldn't find an answer!!! Good luck though, I'm thinking maybe not...
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