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beebs

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Everything posted by beebs

  1. beebs
    Wow - that is scary. How do they know this child has outgrown Celiac anyway? The only way they would be able to tell is doing follow up endoscopies every 6 months to check for damage. This dr sounds very irresponsible. Maybe don't say anything but direct the parents to this forum?
  2. beebs
    When I was preg every single symptom went away - I felt for awhile, like it may have been all in my head. But not so, as soon as the baby came out it all came back with a vengance, I guess that is why I don't blame absolutely everything on gluten - for people like us it could really be anything Stupid autoimmune diseases! I have just been told that I could...
  3. beebs
    Hmm- I'd ask for a referral to a rheumatologist if I were you, celiac disease goes hand in hand with the connective tissue autoimmune family, Lupus, Sjogren's etc etc. Not saying that is what it is -it sounds like your joints are affected, so not just like you have pulled something iywkim!
  4. beebs
    I was thinking about this in terms of cross contamination- it must be almost impossible to keep it gluten free?? I eat gluten free pizza and never had a problem, I'm not overly sensitive I don't think though. What are your thoughts?
  5. beebs
    To be honest - my husband went gluten-free for this very reason- and now he has found out he has a problem with gluten and he'll need to have the tests done. How ironic! B
  6. beebs
    Oh god yes! Those shortbreads are to die for! YUMMO! I just picked up the new Leda arrowroot biscuit - I wonder how they will be??
  7. beebs
    This sounds so similar to my story. As a precaution a few years back I had a celiac panel and genes test (my mother has it). The panel came back negative and the Dr told me my genes weren't the common ones so there was no way I could be celiac anyway. A few years later my symptoms started to come thick and fast - although not the usual type. I ended up seeing...
  8. beebs
    This topic was split from the "Forum Peeves" topic in Chat by moderator psawyer. This is *Exactly* what I was I was talking about!! I'm on another forum for mothers with multiples and there is a woman there whose child has ongoing problems for years and years, iron deficiency , severe chronic constipation, weight loss, shocking behavioural problems...
  9. beebs
    I was hoping beyond hope that my arthritis/Inflammation problems were all gluten related, now I have been gluten free for a year in a few weeks and I have come to terms with the fact that it is not so. In fact it is all getting worse. I think I have to accept that it is connective tissue disease. I wonder if there is a chance you have another autoimmune disease...
  10. beebs
    I'm not saying it isn't rare, but it does happen. And I was just pointing that out
  11. beebs
    Oh yes, me too! That drives me insane. My pet peeve is when people give out medical advice on the internet and its wrong. Not you guys - you are all so well read. But like - people on other forums who don't have a clue - it drives me mad!
  12. beebs
    I am grateful that at least one of my autoimmune diseases can be put into remission with no hardcore drugs that are often worse than the disease itself. Seriously- I just think my mum is so lucky that she was undiagnosed for 40 years but it didn't trigger anything else. (Although her bones are shot to heck which is bad) . The other autoimmune stuff I have...
  13. beebs
    Look through your cupboard and throw out any thing that has gluten in it and then start again. Get that book "Gluten free for Dummies" by Dana Korn -that is helpful. I'm in Australia and the coeliac society puts out a little card with what we can't have that fits in your wallet- If you can find something like that its helpful too!
  14. beebs
    If I were you guys I'd be finding out who the best Celiac GI doctor in your area is and getting a referral to him/her. Alot of people on here don't mind if they get a diagnosis or not and if it doesn't matter to you guys then yeah go gluten free and see if it helps - just be aware that if it is gluten he may react even worse to it after cutting it out of...
  15. beebs
    Sounds like it could be celiac, do you know if he has been tested for it? Even if he has false negatives can happen.
  16. beebs
    Sorry - was that directed at me? I was just pointing out that Celiac can cause life threatening events even after having it just one time. I wouldn't have mentioned it except it seemed like maybe you didn't realise that?
  17. beebs
    Hey domesticactivist = that sounds like hairy tongue? Do you think it could be that? I get it when I'm on antibiotics and it throws of my gut flora - so gross!!
  18. beebs
    I get small bowel intussusception from exposure to gluten which causes me to end up in emergency and so far I have been very lucky that they have resolved on their own. One day it is likely that it will not resolve and I could die from it. It is considered a life threatening medical emergency. It is scary stuff and for me its totally cause by gluten.
  19. beebs
    I only ever made it in the summer! It was crazy - I have never seen so many people in my life! I would love to go back in the quiet season - its a beautiful city!
  20. beebs
    See - I don't have dry eyes- or what I mean is, I don't feel like I have dry eyes, they don't feel gritty or annoying or anything. But I had the shirmer's test and scored 0-0 which means I produce no tears when there is a foreign thing in them (dry as you can get) - we don't have the salivary gland test in Oz - and my bloods are negative. At this stage I...
  21. beebs
    They have to do specific tests to check for autoimmune disease and I guarantee you they wouldn't do them unless there was a reason for it. Anyhow - ask your GI and see what he/she says.
  22. beebs
    Yes - exactly skylark. There is a correlation between SJogren's and Coeliac, if you are getting things like dry eyes and dry mouth you should see your Dr.
  23. beebs
    I do not have *normal* GI symptoms either. Some people only have neuro symptoms, some celiacs don't have one symptom. Yes you can feel better quickly, the day I quit gluten was the day that I stopped taking meds for GERD, and I had been on meds for years and they didn't even work - my reflux was bad, I couldn't swallow water. So anyhow - It was noticeable...
  24. beebs
    I haven't heard of it myself, but it can be a sign of other things. I think you should see your Dr.
  25. beebs
    I think you should make a complaint to the powers that be, food safety Australia or something. I could possibly die if I eat gluten (because I get intussusception)-gluten-free is not something to mess around with (as you know ) and hearing that stuff is terrifying. PS - I used to work at a place that sounds very similar to that in Canberra - I wonder...
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