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Merika

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Everything posted by Merika

  1. Merika
    Luvs2eat, uh, I hope that was a typo up there If you are celiac, you are absolutely 100% doing damage to yourself, even if in the short-term you are not running to a bathroom. You are not eating gluten-free if you are eating that way. Neither is your daughter. Merika oh, and I'll try to respond to the post, but my answer flew right out of my...
  2. Merika
    I used to be a total sissy about blood draws Well, I still don't like to watch, lol. Really, it's not that bad. Vaccines hurt just as much and can make you sick for days later, but everyone does those, right? (not starting a vax discussion here, just rhetorical). The momentary pain and inconvenience is nothing compared with the possibility of not knowing...
  3. Merika
    IF he's celiac, 7 weeks may not be nearly long enough to see improvement. Did he see *some* improvement? I have been gluten-free for almost 2 years now. Nausea was one of my biggest symptoms. It's been better gluten-free, and much better the last 6 months, but for a long time it was still there - a littl edifferent, and a bit less, but still there. Also...
  4. Merika
    Hi Heather, I would be shocked too if my otherwise normal kid came home from the first month of school with an add label trailing from his shirt, so to speak! Gluten can do all sorts of funny stuff to your brain/emotions/etc. It seems he's only very recently been diagnosed with celiac. How long has he been gluten-free? he may be feeling all sorts of...
  5. Merika
    Hi, So here is my very mixed review for Juliano's Raw Food in Santa Monica, CA. I'd read about this place a yera or two ago. It's a raw foods restaurant, that happens to also be gluten free!!! Well, tonight I found myself down in Santa Monica and thought I'd check it out. It's on 6th & Broadway. very nice place, very $$, and kinda tricky to...
  6. Merika
    I've just been thinking along these same lines....my mom has one (has for years for other stuff, now celiac too). Jewelry tends to annoy me though...so I've been thinking, lol, do you think a tatoo would work where the breacelet would go? Merika
  7. Merika
    I think it helps to think of an elim diet not as cutting things out, but by slowly adding things in - starting with just basics (like chicken, rice and pears for 3 weeks) and then adding stuff in. Or, just do a food ELISA test. (NOT those horrid RAST things which I'm convinced don't show anything but pollen allergies, lol!) And just to chime in...
  8. Merika
    From the words of Dr. Michelle Pietzak, celiac expert and researcher at Children's Hospital LA, "The recommended dose is 10g of gluten per day for at least 6 months. A slice of bread per day is enough. Some may make antibodiese as soon as three months." My ds is gluten-free, and I'm not sure he's celiac. I'm celiac, so it's easy for me to keep him...
  9. Merika

    ARCHIVED False Negative?

    Merika replied to bex's topic in Doctors

    Bex, There *are* other things that can cause villi damage. I was just reading about a *rare* reaction to soy or milk that can cause similar damage as celiac. The odds are, though, it's celiac. May I suggest trying the diet for one month and seeing if you notice a difference? If you notice NO change, you're probably not celiac. If you DO notice a change...
  10. Merika

    ARCHIVED Newbie

    Merika replied to mark t's topic in Coping with Celiac Disease

    Mark, Being gluten free for 2 days before the test will not affect your results. Merika
  11. Merika
    Frenchie, I have been veggie for 13 years, and gluten-free for almost 2. I am in the process of trying to NOT be vegetarian. I totally completely DO NOT recommend being veggie and gluten-free. (I don't even know if I'd recommend being veggie to anyone, but that's another story.) You will NOT be able to eat out. You are voluntarily restricting your foods...
  12. Merika
    Modified food starch in the US is typically corn (but always call to check). Merika
  13. Merika
    Hannah, That you are in Europe is actually a big plus From what I hear, folks including doctors are more familiar with celiac. This is a good thing Merika
  14. Merika
    Hi Lisa, You are right - you are not taking in nutrients the normal way. And you won't until your gut has healed, which is typically 6-12 months. Personally, I think that if you are over 20 and had noticeable symptoms for more than a year, it is unrealistic to expect to just "bounce back" within a few weeks or months. Being here on the boards is...
  15. Merika
    Dittenheim, Can you post a link to this? I have *never* heard this. Interersting, but I'd like to see some data on this.... Merika
  16. Merika
    Hi, Your mommy gut is telling you something is wrong and you should follow that instinct. Get your dd the test - it's an easy blood test, typically. There is a higher rate of false negatives in toddlers than in adults. So even if the result is negative, trying a gluten-free diet is worthwhile - but do it AFTER the tests (full celiac blood panel) and going...
  17. Merika
    Hi Shannon, I haven't done enterolab testing. I have read some stuff online about gene markers and all that, and my understanding is that they have found the main/most common genes for celiac, which covers about 90-95% of celiac cases. basically, if you have one of the known genes for celiac, you *could* develop celiac (most people don't). If you *don...
  18. Merika
    It's more complicated than this and nearly impossible to qualify for. It's more than just itemizing. Canadians, rejoice, but Americans, forget it, lol! Merika
  19. Merika
    Vydor, Thanks! I never considered not using the grinder at the grocery store or that other people's home coffee maker could have gluten IN it! As luck would have it, my dh is a no-flavor coffee fanatic, so we do our own grinding at home BUT it gives me pause for what goes on in my in-laws home (or rather, coffee maker) and the flavored coffees they...
  20. Merika
    Hahaha, really, get tested. Really. CFS was what my doc tried to diagnose me with 13 yrs ago. He *tried* but I didn't exactly fit his profile right, and he had nothing to offer for it, just said I had something like chronic fatigue. AFTER I then ended up in the hospital for what my friends called the "mystery illness" and -bing- 12 yrs later was diagnosed...
  21. Merika
    Wandering, Your doc is wrong. Your kids should be tested, assuming they are over age 2 or 3 (no point if asymptomatic under this age, as false negatives are common). EVERY first degree relative should be tested. Next time you're there, *insist* he test them. Merika
  22. Merika
    jnkmnky, I see now your point If all your kids eat separately at school, couldn't you feed the non-celiacs normal bread? Or is your point about keeping the entire house gluten-free - inwhich case you'd be contaminating the counters, etc, and keeping gluten in the house for one kid to get into? As for the pricing, hmmm, I'm not so sure anyone's...
  23. Merika
    Congratulations!!! Acupuncture helps wonders for all things pregnancy-related and is totally gluten-free Merika
  24. Merika
    I hear ya that the prices for mock-g foods are high! I was just at WHole Foods, where they just started carrying WF brand bakery goods - gluten-free ones like biscuits, carrot bread, muffins and pies. I bought a $7 carrot cake loaf and $7 biscuits. The carrot loaf was gross, no one in my family liked it, and I'll throw most of it out. The biscuits are pretty...
  25. Merika
    Lorka, There was no test for gluten on the elisa allergy test. Celiac would not show up, because it's not an allergy. I tested negative for wheat, which just means I'm not allergic to wheat (different body reaction than celiac). By now, almost 2 yrs gluten-free, if I were to do a celiac blood panel, I should test negative. As for the wheat allergy, I did...
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