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kareng

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Everything posted by kareng

  1. kareng
    Once again, I think you don't understand the concept of gluten testing. There is no test that can say 0. Less than 10 ppm could mean 9 ppm ( an incredibly small number) or 0 ppm. If your Celiac blood antibodies are very high, that is not likely from 1 or 2 servings of turkey with gluten. You might want to check out the Fasano diet for people who...
  2. kareng
    The fact is, there is no way to test for 0 gluten. A test that says less than 10 ppm could very well have 0 or 1. 10 parts per million is so small. You will never find anything that can guarantee there is absolutely no gluten with current tests. Let me say it again - testing at less than 10 ppm does not mean there is any gluten in it.
  3. kareng
    Open Original Shared Link I usually get Eddys, too. I just read ingredients
  4. kareng
    If you have an Amazon account, you can get the kindle version free Open Original Shared Link
  5. kareng
    If you want some suggestions for things that require little or no refrigeration - go Picnic boxes - you can check the contents on line for the gluten-free ones and use them as suggestions to make your own boxes Open Original Shared Link Hummus and crackers - there are a couple of kinds in tubes that are shelf stable. Open Original Shared Link Carrots...
  6. kareng
    I don't know how you travel, but if you travel by car, you could bring a small cooler for fruit or yogurt. You could stop at groceries for fruit, carrots, microwaveable dinner, cheese, cold cuts, nuts, etc. If your hotel doesn't give you a fridge, you can ask for one for " medical reasons". Sometimes you can get a microwave that way, too. Or they will...
  7. kareng
    This was the one I remembered Open Original Shared Link
  8. kareng
    That glutamate part doesn't make any sense. Wonder if Amazon or whoever is selling it added that? Glutamate is part of MSG but not gluten. It does naturally occur in some foods. I think there are a few other brands that you could try. Were you the one with that Thread this week?
  9. kareng
    Actually, durum, semolina, spelt, kaput and graham are actually wheat. They are just a slightly different version of wheat. Like a Granny Smith is a bit different version of an apple from a Red Delicious.
  10. kareng
    I am no expert on DH, but I know people will want to know the answers to these questions - Was the Celiac test a blood test or a proper skin biopsy next to a fresh lesion? Were you gluten free for an extended time before the blood tests? Are you currently gluten-free? Edit - I just looked it up and it does say it presents as similar to DH and is...
  11. kareng
    That was funny!
  12. kareng
    I don't use the dry onion soup mixes but I have seen one in the " healthy" section that was gluten-free. It was white and green and maybe named " simply". Or "organic". The point being.... There are some out there, you just have to look hard. They aren't very big....
  13. kareng
    Open Original Shared Link Just as good as " gluteny" and this brand is everywhere. Also, Progresso has a mushroom soup that is gluten-free but it isn't condensed so you may have to adjust fluid in a recipe.
  14. kareng
    I moved this to " Other food intolerances" because you are talking about allergy testing, not Celiac testing. I don't know a lot about allergy testing, but I have heard it is very hard to test for food allergies.
  15. kareng
    You should be eating gluten to be tested for Celiac - blood tests or endoscopy. Stool tests cannot tell you if you have Celiac. The only mention of stool testing is the ones for non- Celiac gluten sensitivity because there aren't any for Celiac at this time. Open Original Shared Link "Why don’t you recognize tests (stool tests or otherwise) for n...
  16. kareng
    The picture of the couscous is odd. I think she is supposed to be sorting food and removing it. Otherwise, this is a new food pantry here in the KC area. I have heard that they already have a big demand. Open Original Shared Link
  17. kareng

    ARCHIVED I Want To Cry.

    kareng replied to Shade's topic in Coping with Celiac Disease

    This is horrible. I don't know where you live, but maybe there are other food pantries? I know we have some here that allow you to " shop". You could choose things like beans and rice and canned veggies. Not exciting, but safe. I think someone suggested this but check with your local Celiac association or food allergy support groups. Some of them...
  18. kareng
    trying to get this topic moving again. I am getting bored with my old standards. Hoping for some ideas. Last night we had a pork stir fry. I take ground pork (which is low fat and cheaper than chicken or beef right now). I mix in a bunch of Chinese Five Spice powder, then cook it and remove it from the pan. Then I stir fry whatever veggies I have...
  19. kareng
    Not necessarily. Many don't get an "immediate" reaction. It can take hours or even a day to react. Sometimes, people don't even get a reaction every time. Probably has to do with amounts of gluten, stomach contents, a reaction that you don't realize is from gluten (like a headache, for example), probably other reasons. I can see you are really sure...
  20. kareng
    How would you know if you don't get tested? You certainly have the symptoms of Celiac. No - Celiac disease is an autoimmune disease. So far, there are no complete cures. Eating a gluten free diet can eliminate the symptoms and manifestations - so I guess you could think of it as a cure.
  21. kareng
    Sorry. I thought you were talking about the test to see if you even make IGA. When yousaid "deficient" that's what I thought you meant as you aren't "deficient" if your Celiac antibody test is negative. You want to not have very many of those. You seem to be talking about the actual antibody tests? The tests will come with a range that is "normal...
  22. kareng
    Open Original Shared Link "Is an IgA result of 39, where normal is 81-463, considered deficient and could it invalidate anti-IgA tests? Any level of IgA above 20 mg/dl should make the tTG-IgA test valid, regardless of age." Open Original Shared Link " What can I do about IgA deficiency? You can’t do anything about IgA deficiency. ...
  23. kareng
    Wash your bedding and clothes? That should get rid of whatever dirt that is on them. Vacuum, dust, wipe down...... Just like you would clean for any other dirt or dust or crumbs. A couple of places that you should make sure to clean for gluten are kitchen drawers - seems like crumbs always fall in. And toasters/ toaster ovens. And , of course, the...
  24. kareng
    Looks like you have Celiac disease. You really should be completely gluten free. Read ingredients on all of your food. You will have a hard time feeling and healing well if you continue to eat small amounts of gluten. There are a few brands that make gluten-free noodles that might be similar to those noodles. You may want to look on line at gluten-free...
  25. kareng
    In the US, and many countries - if wheat is added it must be listed. Plain meat isn't likely to have any wheat added. Lea and Perrins Worcestershire sauce is gluten-free in the US, but not in all countries.
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