Jump to content

kareng

Advanced Members
 View Profile  See their activity

  • Posts

    15,640

  • Joined

  • Last visited

  • Days Won

    300

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by kareng

  1. kareng
    Maybe... but if its in a sealed bag and your lunch is in a sealed bag or container - I don't see how gluten will fall from one into the other without some powerful magic! Open Original Shared Link
  2. kareng
    This is a bit old, but I believe she just meant that this person needs to be gluten-free & not accidentally eating gluten for a while before they worry that they are "super sensitive".
  3. kareng

    ARCHIVED Travel

    kareng replied to mfarrell's topic in Related Issues & Disorders

    Call the hotel and ask for a fridge for medical reasons. According to the ADA and some subsequent rulings - a hotel must provide you with a fridge and may not ask what the medical reason is. I have only had one place charge me for the fridge - which is wrong. If the hotel has a breakfast room with a microwave, you could use it.
  4. kareng

    ARCHIVED Travel

    kareng replied to mfarrell's topic in Related Issues & Disorders

    If it is used to boost the immune system in Chemo patients - Why would you want to boost your immune response to gluten? Open Original Shared Link
  5. kareng

    ARCHIVED Travel

    kareng replied to mfarrell's topic in Related Issues & Disorders

    Currently, there are no legitimate medications, supplements, enzymes, etc that can help a Celiac ingest gluten safely or reduce the effects of gluten. There are some medications being developed but they are NOT available yet. Anything you see that claims it helps "digest" gluten is ..... trying to think of a nice word here...... not succeeding.....
  6. kareng
    You can call the company and ask them to look at the "ingredients " and see if there is really soy in it.
  7. kareng
    The few times this has happened, I put the food aside while they are here. Later my hub can eat it or I have given it to a neighbor. If people want to bring something & ask first, maybe you could suggest a treat for overlooked older siblings? Something packaged and specific - " a really nice treat for us would be Izze soda". Or " I have a craving...
  8. kareng
    A summary of a small study of athletes and gluten free. Suggests that going gluten-free for someone without Celiac does not help athletic performance. https://www.celiac.com/articles/24026/1/Gluten-free-Diet-Useless-for-Athletes-Without-Celiac-Disease/Page1.html
  9. kareng
    People with untreated Celiac disease can have some major vitamin deficiencies. Those deficiencies can cause a lot of issues like muscle cramps, fatigue, etc. As well as the most well know symptoms like bloating, gas, " brain fog", headaches, etc. there are non- Celiac people who go gluten-free to help thier athletic performance. Whether it is really...
  10. kareng
    I am sorry because your doctor is wrong. Maybe you could get him to run the basic Celiac blood work before you go off it? Give him these links from real docotrs- Open Original Shared Link "Elevated liver enzymes are one of the extra-intestinal signs of celiac disease, so patients with elevated liver enzymes should be tested for it." This...
  11. kareng
    Welcome! Did you or the doctor suggest a blood test for Celiac? You certainly have many of the symptoms. Or a biopsy of the rash?
  12. kareng
    If I remember correctly, you do not have Celiac? Or weren't tested? I am getting dizzy jumping from one topic to another. Maybe keep some of these questions in one place with all the info we need to know? Maybe it's not gluten but something else? You might need to go to a few basic foods and slowly add things back to see if any food is your real...
  13. kareng
    I write it on my stuff just like Nicole says - Celiac disease - NO gluten - wheat, rye, barley, oats. I add oats because non- gluten-free oats aren't OK but a camp or hospital might serve granola or oatmeal. When I had a outpatient procedure, the recovery nurse asked what I could have and we settled on Sprite and applesauce - nothing else. There may have...
  14. kareng
    Just to clarify for those reading along - soy beans and soy bean oil DO NOT contain gluten. This poster appears to have a separate issue with soy. And, as has been pointed out a few times - the original post was 7 years ago - the OP might not still be around and ingredients change.
  15. kareng
    No. But i have heard about stuff like this - Someone saying that Bisquick isn't flour!
  16. kareng
    It could be that bad. If you don't have a definite OMG moment - "what? You thought my gluten-free pancake mix was too runny so you added a little regular Bisquick?" It can be hard to know if it's really gluten you are reacting to. It could be a stomach virus, food poisioning ( not what yours sounds like), a reaction to another food, a combo of different...
  17. kareng
    I'm sorry Barty!
  18. kareng
    To the Original Poster - I am sorry this thread was hijacked. Unfortunately, sometimes that happens on an open forum like this. It sounds like you did get a few good ideas. If you have more questions or comments, please let us know. You can either continue on here or start a new topic.
  19. kareng
    It doesn't look like you had the total serum IGA - that just checks to see if you can make IGA that they are testing for. A few people (10%?) can't and those types of test are not valid for them. Open Original Shared Link is an IgA result of 39, where normal is 81-463, considered deficient and could it invalidate anti-IgA tests? Any level of IgA...
  20. kareng
    Sorry you didn't care for my answers. The sad fact is that avoiding foods others claim glutened them will leave you with nothing to eat. Another sad fact is that I have seen people insist that pretty much anything has gluten in it and newbies believe them. Many later found out it wasn't gluten bothering them, but their posts about oranges and bananas containing...
  21. kareng
    Open Original Shared Link "Which blood tests should I have to screen for celiac disease? You should have both tTG-IgA and total serum IgA tests to screen for celiac disease. As long as you produce IgA (total serum IgA confirms you do), tTG-IgA is 98% accurate in measuring elevated antibodies. If IgA deficient, or if there is some other equivocating factor...
  22. kareng
    I think a couple of us answered this for you on the Benadryl thread? On that thread, you said you were diagnosed with Celiac in December. Open Original Shared Link There is no such thing as a gluten allergy. You could be allergic to wheat. Celiac disease is not an allergy. Benadryl is not a treatment for Celiac disease or its skin manifestation...
  23. kareng
    I do use McCormicks. But I think no one mentioned it because that wasn't part of the discussion/original quesiton? This thread would be a million pages long if we could find the time to list every thing we eat !
  24. kareng
    There is no medication for Celiac disease at this time. Benadryl is for allergic reactions and Celiac is not an allergy. You say your were diagnosed with Celiac in December - why would you need to eat gluten for more testing? Dermatitis Herpetiformis is the skin reaction from Celiac disease that some people have. Here is some info from a reliable...
  25. kareng
    Catch up - Been eating some turkey sandwiches. Put the rest in the freezer to make pot pie in a couple of weeks. Friday night we went to a big outdoor Jazz concert. Not supposed to bring food so we snuck in some grapes, crackers, cheese & salami. Saturday night - ordered pizza Sunday night - Father's Day - grilled pork chops, crockpot...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.