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kareng

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Latest Celiac Disease News & Research:

Everything posted by kareng

  1. kareng
    It is too bad the doctor didn't advise you to take the blood tests before going gluten free. There is a chance they could still be positive..... But a good chance that being gluten-free for weeks will make them negative. I Have not seen any medical evidence that Celiac disease is caused by any other disease. It is a genetic auto immune disease....
  2. kareng
    There are no warnings, in the US, from Celiac center's or various Celiac Societies that a Celiac cannot eat plain meat. If you are worried about what might be added to your meat, buy high quality meat that is cut or ground at the grocer. Look at the sodium contents on pre-packed meat. You will see that salt water is sometimes added - the sodium amount...
  3. kareng
    If you are going to copy someone else's article, please link to the source. If you want us to believe it is true and from a reliable source, linking would help with that.
  4. kareng
    Did they say if the villi are damaged? did they do a full Celiac panel or just a TTG?
  5. kareng
    I have brought this to Admin's attention.
  6. kareng
    Looks like you got some good info from previous posters. I don't understand why you and your doctor think that dairy contains gluten? Lactose is a sugar not a protein like gluten. I think you have some other issues.
  7. kareng
    The last post was from 2011. if you can eat a regular pizza crust with no issue, then gluten isn't your problem. You might want to look for something else. The amount of gluten in a beer or fryer cc is very very small compared to eating a pizza crust. I am assuming you do not have Celiac disease.
  8. kareng
    Those don't look like they are from the restaurant. If the actual restaurant doesn't know the ingredients in the food - RUN!
  9. kareng
    It is probably fine. Very few meds actually have gluten. shows as gluten-free on this list Open Original Shared Link
  10. kareng
    The letter I am suggesting has nothing to do with the doctor. I would type it and walk it to the desk when are in the building for your other appointment.
  11. kareng
    Sort of funny. Says no wheat at the bottom but also says this " Other Ingredients: Proprietary Protein Blend (Soy Protein Isolate, Whey Protein Concentrate), Cocoa (processed with alkali), Inulin, Oat Fiber, Fructose, Natural Flavors, Maltodextrin, Soy Lecithin, Tricalcium Phosphate, Xanthan Gum. Contains milk and soy ingredients. Contains wheat...
  12. kareng
    I am assuming United States- It has been a long time since I studied health info law, but I doubt this part has changed. A doctor would not change the record just because you said its wrong. They might make a correction if they remembered or had actual facts (like a lab test read incorrectly or appearing later). What you are allowed to do is write a letter...
  13. kareng
    I looked them up and they do not contain gluten in any flavor. Sometimes it can be other things - acid in the juice, for instance. some days I am fine with fresh tomatoes and lemonade, etc and some days, I get heartburn. And once I get it, it takes a few days or a week to get back to eating them again. Probably some sort of imbalance in my stomach acid...
  14. kareng
    I have never seen cranberry juice with gluten. which one is it?
  15. kareng
    You are talking about lactose intolerance. It is the sugar in dairy. Many adults, Celiac or not, cannot digest the lactose. For a Celiac, the part of the villi damaged by Celiac produces the enzyme that digests this sugar. When your villi heal, you may regain the ability to digest this sugar. You may not, because many adults don't make that enzyme. ...
  16. kareng
    I have never heard of a pad with gluten in it, even if skin contact could give a Celiac reaction.
  17. kareng
    Could be. Give it a day or 2.
  18. kareng
    You have to ingest the actual " seed" to get gluten. So, on a very windy day, maybe some seeds would get loose and fly over to your house? Then, you would have to swallow the seed. I can't believe a farmer would just change what he or she is growing because you have Celiac. If you are worried that a windy day during harvesting season would cause...
  19. kareng
    Don't see why. She has an exceptionally positive test and is getting a biopsy. When a ttg is that high, it can only mean celiac . Check the univ of Chicago celiac center site for more info. Not able to link right now. She can follow up in 6-12 months with the dgp and the ttg and see how they look then
  20. kareng
    I don't think any of us mentioned that? But there is medical research on "leaky gut". If you would like to discuss that , please start a new topic in that section
  21. kareng
    With a ttg over 100, there will be damage. Slightly elevated ttg can mean something else. 100+ is extremely elevated. It will just depend on how good your gi is. Hopefully, he will take at least 6 samples. Celiac damage an be spotty. You can have some good sections and some bad ones, it's possible to miss the and section.
  22. kareng
    I know they would be pleased if you shared it from their Facebook page - Food Equity Initiative. Open Original Shared Link
  23. kareng
    This is the countries first gluten-free and allergen friendly food pantry here in the Kansas City area.
  24. kareng
    I hope you look for other reasons for your symptoms. Celiacs are able to live in the world. I have some gluten eating at my house. I can sit by people drinking beer or eating a sandwich. Sure, I keep my plate where thier gluten crumbs won't fall on it. I ate some strawberries at a grad party from a tray that only had fruit on it and was not next...
  25. kareng
    First - if you actually have Celiac disease, it takes more than a month of mostly gluten-free to heal. It can take months and even a couple of years of strictly gluten-free to completely heal. i think you need to get a positive diagnosis of Celiac and here is why- from what you have said, you should have a very good understanding of a Celiac gluten...
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