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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Gluten-free non-food products
kareng replied to Newly Diagnosed's topic in Gluten-Free Foods, Products, Shopping & Medications
First, there is very little or no gluten in most products. They usually are happy to proclaim "wheat germ oil" or something like that. I try to avoid those obvious ingredients because I tend to get shampoo in my mouth, slop my face lotion around, etc. Gluten is only dangerous to a Celiac when ingested. So I guess you could roll in it as long as you... -
No need to be rude. I just answered your question. I came on to approve your topic and I didn't have much time so I gave a basic answer. I knew others would fill in more info for you.
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It wouldn't have take more than a few minutes to draw your blood before you went gluten free.
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ARCHIVED SO confused by my gene test results!! Can anyone help me please??
kareng replied to MissMom03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No. NCGS would not raise your tTg. Sounds like you endoscopy was negative for Celiac, also? -
I am sorry that you got a bad Doctor. Very irresponsible of him or her not to have you tested before going gluten free. Very lazy of them to not treat a serious disease in thier patient. Because , now, you are left wondering if you really need to be gluten-free and if it is serious. To to be honest, it sounds to me like you will not stick...
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ARCHIVED Possible DH after night of pizza and beer?
kareng replied to Leugim23's topic in Dermatitis Herpetiformis
I am not sure how you jumped to DH? I would think it is more likely a reaction to not taking your regular medicine. Check with your doctors about the side effects of taking and stopping and starting your medicines. I would hope a doctor would not prescribe dapsone to someone who has not been diagnosed with celiac and DH. To diagnose you with... -
I eat plain chicken breast and other meats.
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ARCHIVED Celiac specialist in middle PA area
kareng replied to stef-the-kicking-cuty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you willing to find out what is wrong with him if it's not Celiac? There are other reasons that a gluten-free diet can make a non- Celiac feel better. He can have pain but not be Celiac. My toe can hurt but not be broken. It's not all or nothing. -
ARCHIVED Celiac specialist in middle PA area
kareng replied to stef-the-kicking-cuty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You don't know if you don't try. This what I would do in if I were in your situation - you could mail, or fax might be better, a list of symptoms . Put on it that you want it in the record of son, date of birth, date of appointment, dr he is seeing. Call the office and see what works the best. Explain nicely that you can't get off work because of driver... -
ARCHIVED Celiac specialist in middle PA area
kareng replied to stef-the-kicking-cuty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds like it is a good thing he is seeing a GI. He can start with the basic blood tests based on symptoms. You could certainly send a 1 page or less note detailing his symptoms and response to a gluten-free diet. If it's too wordy, it won't all get read - so make it short and sweet. Good luck -
ARCHIVED SO confused by my gene test results!! Can anyone help me please??
kareng replied to MissMom03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Open Original Shared Link "We rule out other causes of elevated tTG by evaluating the other known possible causes, such as liver diseases or the concomitant presence of other autoimmune disorders. January, 2013" -
ARCHIVED SO confused by my gene test results!! Can anyone help me please??
kareng replied to MissMom03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Was it very high? It's possible something besides Celiac caused it to be elevated. Open Original Shared Link "tTG normalizes slowly when on a strict gluten-free diet. This process may take years if the starting level is very high. If tTG is still high after a long time, aside from gluten sneaking into one’s diet, this may simply mean, e... -
ARCHIVED Is it gluten fee-sourdough bread
kareng replied to Bindy's topic in Gluten-Free Foods, Products, Shopping & Medications
Here's an explanation -from Gluten Free .watchdog that she has made public "NOTE: The study referenced in this write-up is a 2011 study by researchers Greco et al. What the researchers actually report:When two study participants ate baked goods made using extensively hydrolyzed flour (gluten reduced 97% and containing 2,480 ppm gluten) no clinical complaints... -
ARCHIVED Is it gluten fee-sourdough bread
kareng replied to Bindy's topic in Gluten-Free Foods, Products, Shopping & Medications
Whoever told you that, didn't even read the first part of that Italian study correctly. Lol because you don't have Celiac, I suppose you can eat what you like and see how you feel? -
ARCHIVED Prego Spaghetti Sauce
kareng replied to eternity's topic in Gluten-Free Foods, Products, Shopping & Medications
Just an FYI - all the previous product info is 12 years old. Products change over that period of time. -
I sent Admin a message. It sounds like a post he would make. Not sure why the system used your "name" for it. Sorry. Hope we didn't interrupt anything fun!
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Whoa! Sounds like the computer system got glutened!
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to me, it looks like you posted it. Does it look like that to you? Did you get a notification that I responded to your post? I'll try to alert Admin
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I am not sure what you are trying to say? Why do you want to get an error code?
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ARCHIVED Getting glutened from neighbor's cooking
kareng replied to musichillpark's topic in Coping with Celiac Disease
But that is an allergy and Celiac isn't an allergy. I would think that the previous neighbors, and any other neighbors on the other side or upstairs or downstairs, probably cook with gluten. If Celiacs react to the smell of bread, we would never be able to go to the grocery or walk down a street or eat at a restauruant or be near people eating a sandwich... -
ARCHIVED Getting glutened from neighbor's cooking
kareng replied to musichillpark's topic in Coping with Celiac Disease
You can't be glutened by smells. Airborne gluten is usually something like flour that can be in the air for a short time when mixing it. I know that smelling things like bread baking can make people feel sick to thier stomach or anxious. It's an understandable " mind trick" . You know it's bad for you so you feel bad. Edit it to add... -
ARCHIVED Werther's Original Products
kareng replied to gancan's topic in Gluten-Free Foods, Products, Shopping & Medications
Sounds like they are gluten free they just don't want to label them that way. Glucose syrup is gluten-free, even if it started as wheat ( which is what the post about the coelic Society.) in in the US, it will say something like glucose syrup ( wheat) so you can avoid it if you would like to. I usually do, just because it's easier for me. -
ARCHIVED Juice Plus
kareng replied to Estes's topic in Gluten-Free Foods, Products, Shopping & Medications
My point is - its not physically possible to "powderize" a veggie and give you the whole veggie in a tiny pill. Also, I thought they are not gluten-free? -
ARCHIVED Juice Plus
kareng replied to Estes's topic in Gluten-Free Foods, Products, Shopping & Medications
Can we think of this logically? How much powdered fruit could be in a pill? A couple of molecules of carrot? Just eat a whole carrot stick and you will get more than could be powdered up in one pill. If it is the vitamin equivalent of 1 carrot (as my example), than how is that different from eating any other vitamin? -
ARCHIVED Newbie: mother to coeliac kids
kareng replied to Midwitch's topic in Coping with Celiac Disease
I use jar pasta sauce. you could try cooking gluten-free pasta one pot and regular in another (separate colanders!). I tried that for while and it drove me nuts trying to keep them separate. Worked best if I had a teen manage the gluten pasta with his spoon and I managed and held onto the gluten-free spoon. It gets to confusing to keep them separate.