Jump to content

Skylark

Advanced Members
 View Profile  See their activity

  • Posts

    5,198

  • Joined

  • Last visited

  • Days Won

    79

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by Skylark

  1. Skylark
    Yes to all three questions!
  2. Skylark
    My SiL cooks rice and potatoes when I'm around, which are cheap. The kids are fine with rice and love tater tots and frozen french fries. My super-picky nephew tasted a rice cake when I visited a few years back and decided he loved them. He isn't even celiac and asks for a rice cake instead of bread half the time. You can also warm a corn tortilla and...
  3. Skylark
    It will pass if you let yourself grieve. It's a big deal when your child is diagnosed with a lifelong disease, even if it's treatable by diet. It's natural to be sad for a time. Sometimes a good cry makes a world of difference. (((hug)))
  4. Skylark
    Not only that, but I'm pretty sure you have to have enough other deductions to itemize in the first place.
  5. Skylark
    Out of curiosity would anyone take ALV003 if it becomes FDA approved? The celiac enzyme drug in clinical trials? Would you take it only for safety from CC and be afraid to still eat wheat? The reason I ask is this is bacteria doing the same enzymatic process, only it's done as the bread ferments/rises instead of in your stomach. Naturally there is no...
  6. Skylark
    I got really sick a couple months ago and the only thing I ate that was unusual were some Trader Joe's shelled macadamias. I can usually eat them. It's so confusing. The bag did have a "shared facilities" label but the only ingredients were macadamia nuts and salt.
  7. Skylark
    This is not as farfetched as it seems. Luigi Grego has been working on a safe sourdough bread since 2004. It uses a special strain of bacteria selected to break down gluten, and a flour mix that is lower in gluten to be sure the bacterial digestion is 100%. Open Original Shared Link
  8. Skylark
    You have had all the testing done. Try the diet! If you feel better, you are probably somewhere along the road of developing celiac disease. It is a process, starting with gluten intolerance, and ending with tons of antibodies and villous atrophy. Doctors only diagnose the people who are the most sick but you can feel 100% better if you are anywhere in...
  9. Skylark
    I'm not sure the lipid profile is going to be completely normal when your total cholesterol is so low. HDL above 60 is considered good anyway, and your HDL:LDL ratio is below 3, which is also considered very healthy.
  10. Skylark
    Don't worry. It's just another sign of celiac. Celiac can cause low cholesterol if you're not absorbing fats very well.
  11. Skylark
    I believe that was a gluten challenge, not his regular diet.
  12. Skylark
    I'm glad to hear the diet is working out for you. It's not hard at all once you're used to it. Some of the breads have a lot of xanthan gum that gets some people. I don't know why you would react to pasta. I like Tinkyada and the Trader Joe's rice pasta.
  13. Skylark
    I mentioned in your other thread that DGP and a positive biopsy is absolutely, positively celiac. The genetics are not 100% but rather a risk factor and do no over-ride the biopsy. The TTG and EMA are less sensitive, which is why they came back negative.
  14. Skylark
    Based on this new study, I would say anyone with a positive blood test and a response to the diet has celiac disease. Open Original Shared Link Gluten intolerance looking more and more like an inflammatory reaction to gluten. That reaction is thought to be the trigger that eventually develops into celiac in some people. In others, it looks like just...
  15. Skylark
    HLA-DQB1 is the name of the gene they are testing. Your first copy is commonly called DQ2 and is a celiac gene. 0201 is the scientific designation. Having 0201 almost always means you're DQ2.5, which is a high risk gene for celiac. This is your other copy and is more commonly called DQ7. 0301 is the scientific designation. It is sometimes inherited...
  16. Skylark
    How perfect! I can't believe you just got a blender. That's really funny. The supplement I take comes as capsules or a smoothie so that's what I started with when my stomach was torn up. I had to start with half doses. Open Original Shared Link is almost more of a "medicine" that's formulated to fix mental health problems. It costs a lot but it...
  17. Skylark
    Are you unable to tolerate oats? I thought I couldn't eat them until I learned about all the wheat in regular oatmeal and tried the Bob's Red Mill gluten-free oats. I also eat cream of rice and grits.
  18. Skylark
    I was never "diagnosed" with chronic fatigue but OMG I remember the exhaustion when I was on gluten. I would work all week and the weekend would come around and I didn't want to move a muscle I was so tired. How long have you been gluten-free? It can take a while for the diet to "kick in".
  19. Skylark
    I sure would find out about the IgG. There are IgG versions of all the celiac tests, anti-EMA, anti-TTG, anti-gliadin, and DGP I hope you get things sorted out.
  20. Skylark
    You are NOT a hypochondriac! Yes, you can have your symptoms, your biopsy, and be celiac. Intraepithelial lymphocytes are the "bad boys" that do the villous damage in celiac disease. There should be a few, but if there are a lot there is inflammation in your intestine. Increased IEL (Marsh 1) can be either early celiac disease or inflammatory bowel disease...
  21. Skylark
    It sounds to me like you have early celiac disease, which reversed itself when you started on the diet. Some Drs seem to want dramatic evidence with tons of antibodies and totally flattened villi to diagnose celiac. It's really irritating.
  22. Skylark
    Ugh, ouch. What an awful day. ((( hug ))) Betcha you're low B12. You can get a sublingual at the health store that won't cause you any tummy issues. A trick to tolerating vitamins is to buy powder and put it in smoothies. Make a smoothie with a little Lactaid milk, a handful of ice, and half a banana in the blender. Add berries or other fruit...
  23. Skylark
    Yes, sorbitol, xylitol, and the other sugar substitutes can do this. For a substitute, may I suggest lots of water? It will keep your mouth occupied and your stomach fuller. Americans often don't drink enough so our bodies send a "hunger" signal to trick us into eating more so we can get a little water from the moisture in the food! Crazy, huh? Drink...
  24. Skylark
    Has your doctor ordered the IgG versions of the celiac panel? That's the standard of care for IgA deficient folks. If your biopsy mentioned increased intestinal intraepithelial lymphocytes (IELs), that is Marsh 1. As your doctor says, it suggests mild to moderate celiac disease. Those are the cells that are doing the autoimmune damage. It just hasn't...
  25. Skylark
    Great! I'm so glad you two connected. I didn't want to say something wrong about diabetes. Fortunately I haven't needed to manage that particular health condition.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.